Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Hi Everyone, Denny and I found out yesterday that he now has diabetes. He has had MSA for 7 years... we think...diagnoised 98. Does anyone out there have a similar situation?? His diet is so limited because of the choking.. we thicken everything. His Dr. and I think it is so ridiculous to put him on a strict diet at this point in his disease, but I certainly want to try to keep it under control to a degree. I don't think we have to think of long term affects like blindness or or loss of limbs, as his MSA has progressed rapidly. Any suggestions would be appreciated. Love to all, Ann in Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Ann, There has been some conversation on the list before about how MSA might affect the endocrine system, since that system is controlled by the autonomic nervous system. I don't know if there is any literature on this aspect of MSA. I would agree that it seems impractical to put him on an even more restricted diet at this point. Can you just manage sugars? I'm sure the doctor can help with some suggestions that will be manageable for you both. Carol & Rob Lexington, MA --- Ann and Denny Poole pooles1@...> wrote: > Hi Everyone, > Denny and I found out yesterday that he now has > diabetes. He has had > MSA for 7 years... we think...diagnoised 98. Does > anyone out there have > a similar situation?? > His diet is so limited because of the choking.. we > thicken everything. > His Dr. and I think it is so ridiculous to put him > on a strict diet at > this point in his disease, but I certainly want to > try to keep it under > control to a degree. I don't think we have to think > of long term affects > like blindness or or loss of limbs, as his MSA has > progressed rapidly. > Any suggestions would be appreciated. > Love to all, Ann in Virginia > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Anne, I developed diabetes from the steroids that I have been on since February. I found a sugar substitute called Splenda. It measures spoon by spoon in exchange for real sugar and taste great. I have found if I eat a lot of starch or breads that my body temperature is even harder to regulate than usual and I'll get hot flashes on top of all of the other horrible symptoms that I already endure. I choke on just about everything also. In my own case. A little bit of diet restriction helps because it does not add to the symptoms that I already have. Hope this helps, Deborah aka Tenacity Reply-To: shydrager To: shy-drager group shydrager > Subject: MSA and diabetes Date: Tue, 11 Jun 2002 08:16:37 -0400 Hi Everyone, Denny and I found out yesterday that he now has diabetes. He has had MSA for 7 years... we think...diagnosed 98. Does anyone out there have a similar situation?? His diet is so limited because of the choking.. we thicken everything. His Dr. and I think it is so ridiculous to put him on a strict diet at this point in his disease, but I certainly want to try to keep it under control to a degree. I don't think we have to think of long term affects like blindness or or loss of limbs, as his MSA has progressed rapidly. Any suggestions would be appreciated. Love to all, Ann in Virginia If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Hi Ann, this is Annette " lovegiver " to , my husband. He also has had MSA for seven years but has been diabetic for 44 (insulin dependent) Because of choking, we went to a liquid diet about four years ago. He drinks Nu Basics (made by Nestles) and Ensure with fiber and a diabetc form of ensure called " Glucerna " ...it's quite tasty and helps even out the blood sugars.....might ask the doctor about it-(oh yes, the hospital dietian recommended Sugar free Carnation instant breakfast (same nutrition but is cheaper and tastes better then ensure) I agree that the main concern is not long term effects of diabetes and I don't try to keep 's blood sugar as low as some doctors recommend but we don't let it get over 200 for very long. short term high blood sugar seems to contribute to growth of bacteria in the bladder;and more urine output as a result of high blood sugars seems to add to the problem of dehydration to some extent. Those are just observations I've made from having " total care " of him for the past 4 years. Keep in touch and let us know how it's going....., Ann and Denny Poole wrote: > Hi Everyone, > Denny and I found out yesterday that he now has diabetes. He has had > MSA for 7 years... we think...diagnoised 98. Does anyone out there have > a similar situation?? > His diet is so limited because of the choking.. we thicken everything. > His Dr. and I think it is so ridiculous to put him on a strict diet at > this point in his disease, but I certainly want to try to keep it under > control to a degree. I don't think we have to think of long term affects > like blindness or or loss of limbs, as his MSA has progressed rapidly. > Any suggestions would be appreciated. > Love to all, Ann in Virginia Quote Link to comment Share on other sites More sharing options...
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