Re: jerry - looking for waverley

[Guest guest]

Welcome back Waverley! We all missed you. Sorry you are still battling

with finding a diagnosis and some treatment options. Hang in there!

Hugs,

Pam

jerry - looking for waverley

> Hi everyone, I am back. I had to quit my job abruptly when out

> sick for 3 weeks- they were not compassionate. I was

> overwhelmed by symptoms all day and the stress was making it

> worse.

>

> I was subscribed through my old jobs email plus I only recently

> acquired a computer. But I am happy to be back.

>

> I'm afraid I got much worse fast. I can no longer drive and my

> grandmother lived with me for the lsat 6 months to help me out.

> i aslo kept having adrenal failure, tachycardia, and fasting

> hypoglycemia (when I last left off - I went in for a 3 day fast and

> was very sick afterwards.)

>

> I finally got n appt. with a new neurologist and have been

> traveling from Phila. to baltimore - but it has been 3 months and

> although he says he can help me he says he is too busy right

> now and wants even more tests and I am extremely frustrated.

>

> To top it off, my poor grandmother had a minor stroke this sat

> morning at my place. She has been moved to rehab. at Penn.

> And my Mom is moving to Fla. and is in total denial that any o

> this is happening as is my Dad who lives in Fla. (they are

> divorced.) It has gotten quite complicated.

>

> I need to get well fast and I thought I might be able to be back at

> work now - especially since I am out of funds. The only

> possible new meds they are thinking of are anticholinase

> 9spelling) and beta blockers - but my experience with the latter

> 10 years ago for MVP was bad (it made my hypotension worse.)

> the new dr. has only seen high b.p. and tachycardia on standing

> and is now saying I have POTS. But my ongoing dr. knows

> better - he sees my battle with hypotenson plus all of my bowel,

> bladder, and other neuro symptoms.

>

> hope all have been well, sorry to have left so abruptly

>

> Waverley

>

>