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Fw: shy-drager syndrome

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Could someone please write to Pat and get her on the list. I'm really,

really swamped and trying to catch up.

Thanks!

Pam

shy-drager syndrome

>

> Dear Pam,

>

> I was looking through information on shy-drager syndrome and your name

seems to come up quite frequently so I thought I would write to you.

>

> I am fairly new at sending e-mails or writing to people I don't know but I

thought I would give it a shot.

>

> My Mother was diagnosed with msa back in aug 01. It seems like ever since

then we've been on this worldwind of a ride. I thought maybe you could help

me to understand some of this. She is in the hospital at present after a

fall. She has uti and went through about 3 days of not knowing who I was.

The nurse told me that it was like snapping your finger and she was coming

back to herself. She was confused and didn't know what was going on. Her

primary doctor is new at dealing with this also. Her neurologist is in st.

louis and not on staff at the hospital where she is, so her dr. consulted

another neurologist. I guess what I needed to do is talk with someone who

has the same problems or dealing with someone who has them. Just when we

start getting used to one change something else comes along and throws us

for a loop. Any and all information would definately be appreciated.

>

> Thanks for your time and hopefully help!

>

> Sincerely pat

>

>

>

>

>

> ---------------------------------

>

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