Re: RE:Hi

[Guest guest]

Thanks Vera so much for responding to my email. It

does feel wonderful to have so many people that relate

to what I am going through and being able to have

questions answered. I'm kind of nervous about getting

to much reality but the anxiety of not knowing what to

expect or not knowing what is happening to me or why

it is happening is much worse than reality. Thanks

again for your support. By the way you asked where I

live. I live in Tulsa but I doubt anyone here has MSA

or a group. I've been trying to find something or

someone for a year. Bye Connie Greer

--- FVJAMES@... wrote:

> Connie:

> Now that you've open this door to our house and

> family here on the list,

> don't you feel alittle better? It's a nice feeling

> to know that someone else

> understands what you are up against. We have no

> cure, there isn't one as yet,

> but we can try and put a smile on your face when you

> are down and give you

> some answer to questions you have.

> I know when I found this group a door was opened to

> me. The feeling of being

> lost and not having anyone else know this feeling or

> even understanding it

> was gone. I found other's who knew and boy do they

> know. From no answers to

> knowning so much more. I don't have the MSA, I'm the

> wife and caregiver to my

> husband Fred 61 DX in Oct of 98 after a year of

> looking for " What can it be?

> " Most of the time the answer was nothing? Wrong! it

> was something we found

> the doctor that knew, but then the thing was he

> didn't tell us much and we

> couldn't find much in the book store on it. At the

> time I didn't have a

> computer and didn't really think I needed one, now

> it's attached to my hip. I

> wouldn't live without one. Well maybe I could , but

> it wouldn't be as much

> fun.

> I for one am very glad that you found this group.

> Tell us were you live and

> there maybe a support group close to you. That will

> be of great help to you

> and also your family. It's nice to meet other face

> to face that you can talk

> to and laugh with and be part of.

> Right now I just wanted to say hi and if ever I can

> help you with a question

> , make you smile or just send a hug, just let me

> know.

>

> Hugs

> Vera

>

>

>

>

> This is my first time here in a chat room on the

> computer and it will be my first time since I have

> been diagnosed a year ago to know or talk to anyone

> with my same disease. I am so very excited on the

> one

> hand because I have felt so alone with this disease.

>

> On the other hand I feel so scared because it might

> be

> way to much reality for me. Anyways I have had

> symptoms for about seven years they were subtle and

> I

> didn't pay much attention to them until two years

> ago

> when my left side quit working. Then it took a year

> to

> get diagnosed with MSA. My MSA seems to have

> progressed very fast in the last two years and my

> doctor is so depressing because he gives me no hope

> to

> work with. I've dealt with a lot of losses in the

> last

> two years. I've went from a totally healthy 45 year

> old women to an old 95 year old woman in just two

> years. Actually some 95 year old women probably get

> around better than myself. The hardest thing for me

> is

> that I have to depend on others for so much. I feel

> like a burden sometimes to my husband and kids. I am

> very grateful for all the wonderful friends and the

> wonderful family I have. I could not handle this

> horrible cruel mean disease with out there love and

> support. I hope I'm not being way to dramatic but it

> does seem cruel at times to me and cruel to my

> family

> and friends who have to live with it. greercj

>

>

>

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