Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Thank you very much for the email. I do have one or two million questions but I won't ask them all at once. I'll spread them out and ask one or two a day. HAHA I even have a few frustrations. One of my frustrations has been resolved by finding this internet site so that leaves one more and that might be typing with a retarded left hand. I was curious what some of the battles that you and others have fought that I have to look forward to and/or prepare myself for and/or dread? That is question # 1 and question # 2 is what is an example of weapons you have used to get things done and what kind of things will I need to get done??????? Just curious and wanted to get a feel for what I am up against. Thanks again (: Connie Greer --- Ray fourdiamonds@...> wrote: > Connie, > Hi, welcome to the group. You are not alone. > Please do not hesitate to > aske questions here, vent fustrations, or just > converse. I was diagnosed > with MSA two years ago myself and have already > fought some of the battles > you will fight. Many of the people in this group > know the weapons that need > to be used in order to get things done. > > Write if you wish... > > > Dr. Ray > > -- Hi > > This is my first time here in a chat room on the > computer and it will be my first time since I have > been diagnosed a year ago to know or talk to anyone > with my same disease. I am so very excited on the > one > hand because I have felt so alone with this disease. > > On the other hand I feel so scared because it might > be > way to much reality for me. Anyways I have had > symptoms for about seven years they were subtle and > I > didn't pay much attention to them until two years > ago > when my left side quit working. Then it took a year > to > get diagnosed with MSA. My MSA seems to have > progressed very fast in the last two years and my > doctor is so depressing because he gives me no hope > to > work with. I've dealt with a lot of losses in the > last > two years. I've went from a totally healthy 45 year > old women to an old 95 year old woman in just two > years. Actually some 95 year old women probably get > around better than myself. The hardest thing for me > is > that I have to depend on others for so much. I feel > like a burden sometimes to my husband and kids. I am > very grateful for all the wonderful friends and the > wonderful family I have. I could not handle this > horrible cruel mean disease with out there love and > support. I hope I'm not being way to dramatic but it > does seem cruel at times to me and cruel to my > family > and friends who have to live with it. greercj > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Connie, my name is Earnest Brewer, I don't have the disease MSA but my wife was recently informed she probably does. She has been sick for 16 years and is totally disable. I have to feed her bath her etc, the reason I am responding to you is to let you know that you are not a burden. We caregivers may get tired and irritable but never feel our mate is a burden. Good Luck Earnest Hi > This is my first time here in a chat room on the > computer and it will be my first time since I have > been diagnosed a year ago to know or talk to anyone > with my same disease. I am so very excited on the one > hand because I have felt so alone with this disease. > On the other hand I feel so scared because it might be > way to much reality for me. Anyways I have had > symptoms for about seven years they were subtle and I > didn't pay much attention to them until two years ago > when my left side quit working. Then it took a year to > get diagnosed with MSA. My MSA seems to have > progressed very fast in the last two years and my > doctor is so depressing because he gives me no hope to > work with. I've dealt with a lot of losses in the last > two years. I've went from a totally healthy 45 year > old women to an old 95 year old woman in just two > years. Actually some 95 year old women probably get > around better than myself. The hardest thing for me is > that I have to depend on others for so much. I feel > like a burden sometimes to my husband and kids. I am > very grateful for all the wonderful friends and the > wonderful family I have. I could not handle this > horrible cruel mean disease with out there love and > support. I hope I'm not being way to dramatic but it > does seem cruel at times to me and cruel to my family > and friends who have to live with it. greercj > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Thanks for your email. I appreciate hearing your perspective on the matter. My husband tells me the same thing but sometimes I feel a little insecure no matter what he says. Connie --- earnest brewer efbrewer@...> wrote: > Connie, my name is Earnest Brewer, I don't have the > disease MSA but my wife > was recently informed she probably does. She has > been sick for 16 years and > is totally disable. I have to feed her bath her etc, > the reason I am > responding to you is to let you know that you are > not a burden. We > caregivers may get tired and irritable but never > feel our mate is a burden. > Good Luck > Earnest > Hi > > > > This is my first time here in a chat room on the > > computer and it will be my first time since I have > > been diagnosed a year ago to know or talk to > anyone > > with my same disease. I am so very excited on the > one > > hand because I have felt so alone with this > disease. > > On the other hand I feel so scared because it > might be > > way to much reality for me. Anyways I have had > > symptoms for about seven years they were subtle > and I > > didn't pay much attention to them until two years > ago > > when my left side quit working. Then it took a > year to > > get diagnosed with MSA. My MSA seems to have > > progressed very fast in the last two years and my > > doctor is so depressing because he gives me no > hope to > > work with. I've dealt with a lot of losses in the > last > > two years. I've went from a totally healthy 45 > year > > old women to an old 95 year old woman in just two > > years. Actually some 95 year old women probably > get > > around better than myself. The hardest thing for > me is > > that I have to depend on others for so much. I > feel > > like a burden sometimes to my husband and kids. I > am > > very grateful for all the wonderful friends and > the > > wonderful family I have. I could not handle this > > horrible cruel mean disease with out there love > and > > support. I hope I'm not being way to dramatic but > it > > does seem cruel at times to me and cruel to my > family > > and friends who have to live with it. greercj > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2002 Report Share Posted June 13, 2002 Greercj, Welcome, though I am sorry you are here. I am here because my mother Joyce (71, died 11/5/00 from complications) had MSA. She was totally disabled. Although I was not her caregiver (my dad was), I would have loved that role. My mother was never, ever a burden. I know how much she disliked being dependent on others, but the others never minded helping--my mother's friends were incredible. I would give anything to be helping my mother now. Hang in there and be happy you are so lucky to have such caring family and friends. Debbie Quote Link to comment Share on other sites More sharing options...
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