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rapid decline

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Sam is having big problems for the most part--can hardly stand (has to be

pulled up) and then can't walk--dizzy and legs like spaghetti. He would

sleep all day if he could nods at the table (when he can get there), has

lost his appetite (this has been coming on gradually), spends most of the

time in bed, and has gone to a wheelchair, and I am learning how to get him

in it--oh boy, do we have fun. However, a week ago he walked around the

block with his pushcart without stopping on two occasions, and that was

quite good. Is this a normal part of everything? I could call the doctor,

but he wouldn't have much to say, I know, as he, like the rest of us, doesn't

know what to expect. What is the group's experience with this sort of thing?

We saw the neurologist a week ago and he walked from the car into the

office (down a long hall etc.) with a cane, but his bp was way down, and

his proamatine has been raised 3 5mg tablets for breakfast and lunch and 2

5mg tablets at dinner--even though this is really pushing the limits on

this drug, and also raised the provigil to lunch as well as breakfast to

keep him awake.

I notice people on the list going places and doing things, and Sam could

never do that sort of thing--he was diagnosed 4 1/2 years ago at 74. This

stay-at-home attitude on both of our parts has been going on for a year or

more, though he could navigate a bit on his own up till the last few

weeks. And thank goodness I found a barber who comes to the house. Our

youngest daughter is being married here on June 22, and I am beginning to

wonder if he can even go to the ceremony. Thanks in advance for any

firsthand experiences that you can give me. Lou R.

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