Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 It often works to just ride the wave and be watchful. He might have had an allergy, I now experience them without the overt symptoms, but I suspect that is what knocks me off my feet here and there. After a rain or that one pollen is over with, it clears up. MSA does not live by the usual rules. At Wednesday 6/12/02 01:10 PM, you wrote: I wrote the e-mail this a.m. about his rapid decline (and I have never seen him this low for so long prior to this) before Sam woke up, and I was amazed to see how well (comparatively speaking ) he was when he awakened. He walked fairly easily into the bathroom, and at length came into the kitchen for breakfast without even a cane. What a change. Not even drooling. What on earth can be happening? However, I'll take it. The physical therapist came right after breakfast and was completely surprised at the difference from when he saw him for the first time two days ago. Sam went through various exercises, standing at the kitchen counter--and so on. I guess I started my airing my worries too soon. I guess we will get a few good days here and there. I was ready to get fulltime help or sit down and feel sorry for myself. We have a new hoyer lift, standing now dominating the living room, and I am glad to hear that that will be so useful. and that I can manage it. Also, as for the wedding, long anticipated, I had already hired an aide to go with us, and planned on using the manual wheel chair that we have now till the motorized one comes,and had plans to bring him home any time from the reception with the aide. I suppose I am one of the few who don't take blood pressure readings, though I do know his regular temp--96. He takes the proamatine, of course, and discontinued the florinef when he was in the hospital in February for a possible pace maker (not needed) and had a stress test==the kind that simulates walking on a tread mill, and of course, he takes lots of salt. Strong heart, but terrible ups and downs in bp. Well, people, thanks for all the encouragement. Today is a wonderful day--I hope everyone out there has a day like this from time to time. Lou R. If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 lou, I'm glad to hear that Sam is doing better. Rob sometimes had bad days with no apparent reason too, although not as bad as what you described. Sometimes the weather seems to have an impact, particularly rapid changes in barometric pressure or extreme heat or cold. Rob is much younger though (56) so maybe that is part of it. We don't take blood pressure regularly either, although we do have the electronic monitor and do use it when we feel there may be a problem. When Rob is feeling badly, that's the first thing I do, and make adjustments to food/water/salt intake if there's a problem -- too low (most often) or too high (only once). I know many take readings daily, but we feel that it's too much a reminder of being sick, so until we get to the point where we NEED to do that, we just do it as necessary. Carol & Rob Lexington, MA --- lou Reynolds mlreynolds@...> wrote: > I wrote the e-mail this a.m. about his rapid decline > (and I have never seen > him this low for so long prior to this) before Sam > woke up, and I was > amazed to see how well (comparatively speaking ) he > was when he > awakened. He walked fairly easily into the > bathroom, and at length came > into the kitchen for breakfast without even a cane. > What a change. Not > even drooling. What on earth can be happening? > However, I'll take > it. The physical therapist came right after > breakfast and was completely > surprised at the difference from when he saw him > for the first time two > days ago. Sam went through various exercises, > standing at the kitchen > counter--and so on. I guess I started my airing my > worries too soon. I > guess we will get a few good days here and there. I > was ready to get > fulltime help or sit down and feel sorry for myself. > > We have a new hoyer lift, standing now dominating > the living room, and I am > glad to hear that that will be so useful. and that I > can manage it. Also, > as for the wedding, long anticipated, I had already > hired an aide to go > with us, and planned on using the manual wheel chair > that we have now till > the motorized one comes,and had plans to bring him > home any time from the > reception with the aide. > > I suppose I am one of the few who don't take blood > pressure readings, > though I do know his regular temp--96. He takes the > proamatine, of course, > and discontinued the florinef when he was in the > hospital in February for > a possible pace maker (not needed) and had a stress > test==the kind that > simulates walking on a tread mill, and of course, he > takes lots of salt. > Strong heart, but terrible ups and downs in bp. > > Well, people, thanks for all the encouragement. > Today is a wonderful > day--I hope everyone out there has a day like this > from time to time. > Lou R. > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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