Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Gordon has been taking Ritilinalong with his sinemet for almost a year.(He's been on the Sinemet for a long time). He was put on a low dose - one 10mg/day - because of excessive sleepiness. It really made a difference for about 4-5 months and then lost some of its effectiveness. A few months ago the dosage was increased to two per day and that has seemed to help once again. We'll have to see how long that lasts. We didn't notice any additional side effects when it was added. Janet O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 All this talk about amphetamines and Shy-Dragers and PD is really not very productive. Many patients with PD take Eldepryl which metabolizes into an amphetamine in the system. That is why people are advised to take it only before noon. Ken took it for many years with wonderful results. His Neurologist says it does nothing for many, but she has seen many like Ken who get amazing results. It did tend to lower his BP, so he didn't take it the last few years of his life. Also, remember, Ritalin and other amphetamines calm the nervous system of children and usually do just the opposite when they become adults. It is prescribed (admittedly too often) for ADD children. It is now known that for some ADD patients, Ritalin will work in the same perverse manner even in adulthood. So, ADD patients seem to be wired differently than others, at least sometimes. And there are studies being done to see if ADD and PD and MSA are somewhat related. I also remember when Benzedrine was available over-the-counter and most of us used it to get through Exam week in college. With most neurological diseases all we a re trying to do is alleviate symptoms since there are no cures yet. What works for some does not work for others. Noone on this list pushes anything over anything else, but hearing what has helped others and asking our doctors about trying it is how we gain some quality to our lives. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Barbara, I agree with you 100%. We might all have a rare disease but different things help different people. We are here to support all for whatever the need may be and I believe that to me mostly moral support. We all know to ask our doctors before taking anything that might hurt us. I also know that different therapies help some and don't help others. My neurologist when I asked him about certain things that were happening to me meant,like when I and some others have pain and others don't. He told me no one could say why I had those symptoms and others didn't. He worked for NIH and other well known hospitals and has done a lot of research and he still can't say why something was good for one patient wasn't good for another patient. We have to do what helps us, whatever it may be. No one can tell another what they are doing is wrong if their doctor tells them that is what needs to be done for them and it is working for them. God bless, Belinda > > All this talk about amphetamines and Shy-Dragers and PD is really not very > productive. Many patients with PD take Eldepryl which metabolizes into an > amphetamine in the system. That is why people are advised to take it only > before noon. Ken took it for many years with wonderful results. His > Neurologist says it does nothing for many, but she has seen many like Ken who > get amazing results. It did tend to lower his BP, so he didn't take it the > last few years of his life. Also, remember, Ritalin and other amphetamines > calm the nervous system of children and usually do just the opposite when > they become adults. It is prescribed (admittedly too often) for ADD children. > It is now known that for some ADD patients, Ritalin will work in the same > perverse manner even in adulthood. So, ADD patients seem to be wired > differently than others, at least sometimes. And there are studies being done > to see if ADD and PD and MSA are somewhat related. I also remember when > Benzedrine was available over-the-counter and most of us used it to get > through Exam week in college. With most neurological diseases all we a re > trying to do is alleviate symptoms since there are no cures yet. What works > for some does not work for others. Noone on this list pushes anything over > anything else, but hearing what has helped others and asking our doctors > about trying it is how we gain some quality to our lives. > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 each time my dr. adds a new drug he increases the sinemet. new drug works a while, then i get all "overdose symptoms" of sinemet. why do you suppose he doesn't decrease sinemet? he always says to stop the new drug. i think i asked this before but i didn't make it clear that he had done 2 things at once,......a new drug added and the old one increased. i did ask him last visit but think he just shook his head. it is my ccontention that each time we make additions to my regime, my BP goes d o w n! he will return in july so we'll see what he says. THANK YOU ALL FOR ANSWERING SO QUICKLY AND FULLY. YOUR PRESENCE HAS HELPED ME SEVERAL TIMES IN T HE LAST COUPLE YEARS. nancy spires Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 We were told by Ralph,s Dr, that sinemet takes your b p down ask the your Dr. about that !!! Blanche caregiver of Ralph who died from sds 8.23 .2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 BHartz5738@... wrote: We were told by Ralph,s Dr, that sinemet takes your b p down ask the yourDr. about that !!! Blanche caregiver of Ralph who died from sds 8.23 .2001 my mom's neuro told us that sinemet drops your b/p so she put her on proamitine to help keep the b/p up. so far it's not working to well. pat If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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