Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 I am a 65-year old male, diagnosed with MSA, living in Denmark, Europa. I have been advised by my neurologist never to lie flat, but to elevate the bed, so that I sleep in a more upright position, preferably the bed should have an angle of 10 degrees. This should be helpful in treating orthostatic hypotension in patients with autonomic failure. Please, do any of you MSA-patients have experience in this? Has it been helpful? I should very much appreciate if any of you, having gotten the same advice, would share experiences, and tell me what it has accomplished for you. Best wished Hans Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Hello Hans. You will find a warm welcome and understanding with this group. They are great with practical advice. I believe it is standard to tell people with MSA to elevate the head of the bed--we used two bricks before we got the hospital bed. I guess it must help, but I often wonder, how do we know, except by taking blood pressure that this works. I guess the blood pressure reading is sufficient. Sam takes proamatine (midodrine) for orthostatic hypotension, and we surely are not going to stop the drug to find out what happens if he does without it. Certainly the disease is unpredictable and erratic. Both of my parents were born in Denmark, and I still have many cousins etc. there. Denmark has high standards of medical care--what do you think of it? Best wishes, Lou R. At 06:11 PM 6/16/2002 +0200, you wrote: I am a 65-year old male, diagnosed with MSA, living in Denmark, Europa. I have been advised by my neurologist never to lie flat, but to elevate the bed, so that I sleep in a more upright position, preferably the bed should have an angle of 10 degrees. This should be helpful in treating orthostatic hypotension in patients with autonomic failure. Please, do any of you MSA-patients have experience in this? Has it been helpful? I should very much appreciate if any of you, having gotten the same advice, would share experiences, and tell me what it has accomplished for you. Best wished Hans If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Hans, my wife has msa and she was told the same thing. We put a block of wood about an inch thick under each of the front bed post. Good luck, Earnest Brewer never to lie flat?? I am a 65-year old male, diagnosed with MSA, living in Denmark, Europa. I have been advised by my neurologist never to lie flat, but to elevate the bed, so that I sleep in a more upright position, preferably the bed should have an angle of 10 degrees. This should be helpful in treating orthostatic hypotension in patients with autonomic failure. Please, do any of you MSA-patients have experience in this? Has it been helpful? I should very much appreciate if any of you, having gotten the same advice, would share experiences, and tell me what it has accomplished for you. Best wished HansIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Hans, My husband sleeps with a pillow that is a wedge under his head. He has OH and with the elevated head he B/P does not got up very high when sleeping. He was diagnosed in 1995. Ann from Soddy, TN, USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Hans, Welcome to the group, sorry you had to find us. Yes raising the head of the bed DOES help with the high blood pressure experienced when laying down. How much depends on the individual patient. A brick (about 6 cm.) under the head of the bed legs helped enough with my wife (she also used pillows to raise her head more). BUT some here have needed as much as 15 cm of spacers under the head of the bed. Take care, Bill Werre -------------------------------------------------- hansjp wrote: I am a 65-year old male, diagnosed with MSA, living in Denmark, Europa. I have been advised by my neurologist never to lie flat, but to elevate the bed, so that I sleep in a more upright position, preferably the bed should have an angle of 10 degrees. This should be helpful in treating orthostatic hypotension in patients with autonomic failure.Please, do any of you MSA-patients have experience in this? Has it been helpful? I should very much appreciate if any of you, having gotten the same advice, would share experiences, and tell me what it has accomplished for you. Best wished Hans If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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