Bill

[Guest guest]

I think that most people on the board know that nothing in my posts

said that Bill should leave. But, for the record and if it helps, I

wanted to ask Bill to stick around.

Pam, thanks for your support and encouragement. I take it your post

to me below goes out to other members who have fallen silent on the

board as well. I do sincerely hope to hear from these great people!

Cheers,

Zac

_________

>

> Zac, Please feel free to post more often, we need insight and

comments from

> those experiencing symptoms. Many people have mentioned to me that

it

> sometimes seems the caregivers voices are the loudest... please

speak up,

> we're listening.

>

> Hugs,

> Pam

[Guest guest]

Vera,

Reading what you wrote helped both me and . It is hard for everyone

involved. Caregiver and sick person. I wish I felt well enough to

elaborate. Just know in your heart that I forwarded this to my husbands

email account as well and I hope after he reads it, he will write and say

what I can't at the moment.

Hugs,

Deborah

From: FVJAMES@...

Reply-To: shydrager

To: shydrager

Subject: RE: Bill

Date: Mon, 17 Jun 2002 13:01:40 EDT

Bill:

I haven't seen you posting today and I'm hoping that you haven't given up on

us here. You can see from Pam posting that times aren't always easy. I

posted the other day asking you to stay, I even got down on my knee's:o) but

today I wanted to really talk to you and tell you why I think you should

stay. You see the other day I almost quit the group. It wasn't because of

anything anyone had done here. It was something that had happen here. I've

told you about how Fred's voice is getting to where it's really hard to

understand him and I know it's part of the illness. Only thing is I'll ask

him again what he said when I don't understand. The rest of the family will

just yes or no or shake their head to things he will say. So when Fred said

something that I couldn't understand again , I asked what he had said I

didn't understand it. He came back with you just don't listen , everyone

else

can understand what I say. You just don't care what I 'm saying. So it ended

up he was upset with me and I was just trying to help. It didn't end there

that day. Fred has some work he wanted done here at the house and I don't

mind that, but the man his going to have do the work, Fred pays him first

and

then the man will take months( as long as 9 months )to do the work and many

times I finish it just to get it done after so many months. So I told Fred I

don't mind you have this work done, but pay him after the work is done. He

got upset with me and told me he never does anything right with me and went

away to his room mad at me. Later when I went by his room , he called me in

and said he needed to talk to me. what he wanted to tell me was that he

thinks that I should pack a bag and get the @%$*& out. I was so upset with

this, just because I asked him to pay this man after the work. I told him

that he had no right to treat me this way, I was the one that was always

here

for him, and this is the way I get treated just because I voiced something.

I

started think why keep trying to find out things on the list, he didn't care

what I did, then I started thinking maybe I should stay there could be

someone on the list that I may help in some way. So I stayed on . Then the

other day posted about her mother passing away. I was sorry to hear it,

but at the same time she had given me some help in that posting, help that

she didn't know she had. There she posted that the MSA booklet and the

information on the lifting really had helped. I had sent her both of those

and then I knew I had help one person here.So I'm glad that I stayed. You

Bill have helped hundreds here,not once, but many times. So if I can stay

when I just hoped that I helped one , can't you stay when we know that you

helped many? I hope to see your name posting again soon.

I have to tell you that Fred said he was sorry to me and told me he does

need me here and wouldn't know what he would do if I did leave, like he

asked. I know one of the caregiver's here said that it wasn't a bunden to

take care of the ill person, and I have to say it's not, but there are times

that Fred can be a pain in the Behind.I've had a good cry this last week and

I hope that this week run's a little better. I just wanted to tell my story

in hopes that you understand why I stayed. Fred isn't just the only one I

hope that I can help here, being on this list. I really do hope that you

think about it Bill and see what a value we have in you.

Hugs Vera

*****************

Bill,

I've taken breaks from this list off and on over the past 6 or 7 years. At

times it gets to be too much to deal with. There have been times in the

past that I've gotten really emotionally involved with some people and their

problems. Because of this it hasn't always been a totally rewarding

experience but I've learned to balance my life alot more than I used to and

separate my work(I don't like to call it work because it never feels like

work to me) on the list from the other things in my life that are also

important and now I can't imagine not being part of this community. As much

as we'd like to, you and I just can't help every single person who comes

here... we have to sit back sometimes and let the others on the list help us

out... and they so often come through with flying colors. Because of you, I

now see many people giving out advice about infections for instance .. even

if they don't have firsthand experience with them. Before you joined the

list I don't recall this EVER being mentioned! Everyone's individual

knowledge and experience has added to the whole and it will always be with

us. There are times that I go quiet and just sit back and read the list and

say nothing and whenever I do I'm always inspired and rejuvenated by it. As

you so often tell others... take care of yourself first. If you need a

mental health break, then take one. We know you won't be far.

Love,

Pam

_________________________________________________________________

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[Guest guest]

Vera:

What a beautiful way of saying what we all feel about Bill. I too hope

he stays.

Barbara