Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Dear Judy, I feel so bad for you. Thought I was in bad shape with the aches and pains and rashes and frustration. I'm so sorry you are feeling bad. Maybe by the weekend only a skateboard will get you on your big toe. My thoughts are with you....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 In a message dated 05/17/2001 5:49:57 PM Central Daylight Time, grandm4@... writes: << Maybe by the weekend >> Sue, never thought I would look forward to Monday! I'm usually somewhat OK by Friday. Sat, Sun, and Mon are normal. and then we just forget about Tue, Wed, and Thur. Hey, it's improving! Went from a Mack truck, to a mini-van, to a Harley, who knows, maybe next week it will be a speed bump! I suppose we have to take what we can get and enjoy it while we have it, and store up strength for the bad days! Take care of yourself, and laugh out loud, it helps! Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2001 Report Share Posted May 20, 2001 Hi Judy, Sorry it took so long to repley. No I am not on MTX or any of the anti-immune drugs, but I am on a lot of meds. Hope ypou have a good week-end and holiday coming up. Ruthann Re: wish you enough-Diane > In a message dated 05/10/2001 12:30:02 AM Central Daylight Time, > wankel@... writes: > > << till on pred. I am ectremely wiped out. I cannot do what I used to, because > I am too tired >> > > Ruthann, this is happening to me too, my ENT says it's not the Pred, that > Pred should GIVE you energy. Are you also on methotrexate? Rheumy and ENT > say that is what is doing it to me. Wiped out doesn't even begin to describe > it! Two weeks ago (I was still flaring) Rheumy kicked the metho up another 5 > mgs to 20 and added 5 mg of pred daily. The first Tuesday that I took this, > I was OK, BUT WEDNESDAY!!! I was not only wiped out, I felt like I'd been > hit by a Mack truck and he kept backing up and going forward over my body all > day. I told the Rheumy that I was too exhausted to die, I felt so horrible, > I couldn't even walk across the living room! I forced myself to take a > shower, then I collapsed on the bed, wet hair and all. The second week was a > little better, instead of a Mack truck, it was a minivan! I was truly hoping > this week would be a scooter, but it turned out to be a Harley. The Rheumy > keeps saying I will adjust, but I don't know. I'm OK on chemo day itself, > it's the Weds and Thrurs after that's killing me.! I'm sorry you are feeling > this way, but I'm also glad that I'm not alone! I thought I was just being a > woos, but I just couldn't/can't function. It's frustrating because I knew > that Tuesday would be a write-off, I didn't expect to lose Wednesday and > Thursday too! Is it just us? Love, Judy > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Your absolutely right...if you don't laugh you may cry. Did have a good weekend, for a change, actually planted flowers and felt 75% human. I think the worst may be over for now....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 05/18/2001 7:16:09 PM Central Daylight Time, JOstry93@... writes: << < Maybe by the weekend >> >> It's Thursday, and I do believe I will live! Maybe I'llk get this day back! Hope so! LOL, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 In a message dated 05/20/2001 7:53:16 PM Central Daylight Time, wankel@... writes: << No I am not on MTX or any of the anti-immune drugs, >> Ruthann, do you have RP? Gee, I hope for your sake that you don't! You just never know from day to day what's going to happen, which would be OK if I were in to mysteries, but I prefer " happily ever after " , I'm working on it though! Love, Judy Quote Link to comment Share on other sites More sharing options...
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