Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Thank You Lillian. My plan is to check with SS on Monday...I appreciate your post..Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 >Hi Rene, Glad to see you back posting again. No pills for the sleep apnea, thank God. LOL Right now nothing is being done. My ENT has nixed the C-Pap because my sjogrens is bad. Love Ya, Sandy > SANDY, > > HI GIRLFRIEND, WHAT DID THEY DO FOR UR SLEEP APNEA. PLEASE DON'T TELL ME THEY > GAVE U ANOTHER PILL. (lol) > > FIRST APPLYING FOR SS NOT SSI, AND U HAVE NO > > RENE' > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 In a message dated 5/21/2001 10:21:15 AM Central Daylight Time, biglou5685@... writes: > No pills for the sleep apnea, thank God. LOL > Right now nothing is being done. My ENT has nixed the C-Pap > because my sjogrens is bad. > Love Ya, > Sandy > > > > THANK GOODNESS (no add'l meds to add to my bag of goodies) lol SANDY, TELL ME, WHAT KIND OF PROBLEMS ARE U HAVING W/IT? THE SLEEP APENA THAT IS. THAT SJOGRENS CAN BE A RUFF BABY ON THE EYES, I KNOW. HOPE U START FEELING BETTER. I'VE BEEN ON 15 MGS OF PRED FOR A LITTLE WHILE, AND I'M STARTING TO FEEL BURNING ON THE OUTSIDE OF MY EARS AND STINGING IN MY NOSE. BOY I WAS HOPING THAT I COULD AT LEAST STAY ON 15 MG OF PRED, BUT O WELL, MAY BE ONE DAY. THEY PULSED MY NIECE 120 MG PRED, THEY FOUND FLUID ON ALL HER INNER ORGANS. I FEEL SO BAD FOR HER, BUT SHE CAN WALK NOW. THAT'S A GOOD THING. THEY HAVE NOW STARTED HER ON MANY DIFFERENT MEDS. SHE TOLD ME THAT HER NOSE WAS HURTING, AND I DIDN'T LET HER KNOW THAT I GOT INSTANTLY DEPRESSED. PLEASE GOD DON'T LET HER HAVE RP. SHE'S SO YOUNG. ANY HOWL, I BETTER STOP TYPING AND TAKE MY HUGE BODY TO SLEEP. LOL TAKE CARE AND I WILL SAY A PRAYER FOR EVERYONE TONITE. LOVE ALL YOU RENE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Rene, I am so sorry to hear about your neice, Please know that you and your family are in my prayers. It is so hard for anyone to have RP, but to think of these young ones getting it breaks my heart. Please know I'm thinking of you. I too can not get below 15 mg of pred. Are you on anything else? I know you have probably told me, but my brain fog is lousy now. LOL Lots of hugs coming your way C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 Rene, My main problem with not getting enough sleep is it makes my fibro worse. I'll sure say a prayer for your niece. Hopefully she does not have RP. Are you going to have to go up on the Pred? I can't get below 30 mg. without breathing problems. So happy you are back with us. I missed you. Love Ya, Sandy > > > > > > > > THANK GOODNESS (no add'l meds to add to my bag of goodies) lol > > SANDY, TELL ME, WHAT KIND OF PROBLEMS ARE U HAVING W/IT? THE SLEEP APENA THAT > IS. > > THAT SJOGRENS CAN BE A RUFF BABY ON THE EYES, I KNOW. HOPE U START FEELING > BETTER. > > I'VE BEEN ON 15 MGS OF PRED FOR A LITTLE WHILE, AND I'M STARTING TO FEEL > BURNING ON THE OUTSIDE OF MY EARS AND STINGING IN MY NOSE. BOY I WAS HOPING > THAT I COULD AT LEAST STAY ON 15 MG OF PRED, BUT O WELL, MAY BE ONE DAY. > > THEY PULSED MY NIECE 120 MG PRED, THEY FOUND FLUID ON ALL HER INNER ORGANS. > I FEEL SO BAD FOR HER, BUT SHE CAN WALK NOW. THAT'S A GOOD THING. THEY HAVE > NOW STARTED HER ON MANY DIFFERENT MEDS. SHE TOLD ME THAT HER NOSE WAS > HURTING, AND I DIDN'T LET HER KNOW THAT I GOT INSTANTLY DEPRESSED. PLEASE GOD > DON'T LET HER HAVE RP. SHE'S SO YOUNG. > > ANY HOWL, I BETTER STOP TYPING AND TAKE MY HUGE BODY TO SLEEP. LOL TAKE CARE > AND I WILL SAY A PRAYER FOR EVERYONE TONITE. > > LOVE ALL YOU > RENE > > > Quote Link to comment Share on other sites More sharing options...
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