Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 I think bone marrow treatment has been overtaken by autologous stem cell transplantation. Below is a copy of a note I circulated last year. Ann's doctors have always said these are high risk strategies ( ie with a 25%plus risk of being killed by the transplant process ) and therefore a last resort. The key issue is whether these techniques when used in other more common autoimmune diseases are getting better with experience. " In my recent occasional foray onto PUB MED I noticed an article from a German team ( Rosen. O and others ) which claims to have used autologous stem cell transplantation successfully for rp and lupus. ( this is where you wipe out the immune system and then regrow it from stem cells extracted earlier and it then behaves itself ) I know it is a highly risky treatment and the new rheumy confirmed this. But he also said he thought that a Prof. in a Leeds hospital had had a lot of success with rheumatoid arthritis cases which had not responded to other treatments. I shall try to find out more . I don't think it will help the majority of the group but I think anyone who gets really ill and nothing is working should raise it with their consultant. " Ann is generally feeling better. She is gradually upping the methotrexate without severe side effects. RP remains active but at a tolerable level ( less coughing, less severe flares ) and she has dropped the pred to 12.5. We just hope the existing damage to the trachea is not getting worse without our knowledge IMPORTANT NOTICE: This email may be confidential, may be legally privileged, and is for the intended recipient only. Access, disclosure, copying, distribution, or reliance on any of it by anyone else is prohibited and may be a criminal offence. Please delete if obtained in error and email confirmation to the sender. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2001 Report Share Posted June 16, 2001 , so good to hear from you and updating us on Ann. Sounds like the metho is working. Great that she is able to lower that pred. Please give her my best and tell her hello for me. You know....you really should post more...LOL thought we lost you out there. Hope you and Ann are having a good weekend. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 In a message dated 11/25/2002 11:16:42 AM Eastern Standard Time, PATISINKY@... writes: > What I do not know is after weight loss surgery, how much protein is > actually > malabsorbed by food. I have read over the last year many posts from people > > who have perfect labs without protein shakes and also from those who had > bad > labs without the protein shakes. I was trying to gather my own data to try > > to figure out if it was just the distals who lacked protein malabsorption > but > what I found out was there was no rhyme or reason to proximals, medials or > distals in individual protein lab results with or without protein shakes. > And I think this is due to the fact that everybody's diet is different. **************************And everbody's body is different. >>I ask my doctor and he said he has done over 1500 medials over the last 15 years and never recommended shakes and still claims we don't need them<< ***************************We've discussed this before many times...doctors may take 1 nutrition course in Med school, most still think protein shakes are for weight-gaining body builders and don't even know there are shakes out there that are virtually SF, FF and carb-free, so take what docs say about protein shakes with several grains of salt, unless you know they're very up-to-date on today's products. Also, doctors do not want us to live off protein shakes rather than food, and in that respect, I think they're right. The very nature of the word " supplement, " whether it refers to protein or vitamins is that they are designed to supplement real food and are not designed to be taken alone for any length of time, certainly not without constant medical monitoring. >> Since I don't have any proof one way or the other, I figured I would drink 2 shakes a day. << ***********************Me, too. I drink 2 when I think of it, but usually only have my 1 for breakfast. Why? BECAUSE I LIKE IT! And, because it certainly can't hurt, and probably does help. >>But, I really do enjoy the information Ray provides. I think we should all be able to express our knowledge and opinions because it helps us to learn. << *************************So do I. Again, this had been posted before, we should all just put a little disclaimer after each one of our opinions or experiences, such as " Just my .02, YMMV, JMHO, yadda, yadda, yadda. JMNSHO , in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 I did mean MEDI-CAL.. I looked on obeistyhelp.com and I did find a Doc for her. Turned out to be one in Fresno where she lives. So I called her and she was so happy. She will call first thing in the morning. Thanks Lap RNY Proximal 8-20-03 258/175/130??? Dr. Roger Fast Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 I did mean MEDI-CAL.. I looked on obeistyhelp.com and I did find a Doc for her. Turned out to be one in Fresno where she lives. So I called her and she was so happy. She will call first thing in the morning. Thanks Lap RNY Proximal 8-20-03 258/175/130??? Dr. Roger Fast Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.