Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Okay guys, I've read back, and failed to find any mention of anyone having repeated cases of the " shakes " . I get these " shakes " after I've been up and moving around for at least an hour or two. I literally start shaking all over, not like shivers, mind you, more like how people shake when they have that disorder that Janet Reno has. Can't for the life of me remember what it's called right now. Anyways, my mom is concerned and now I'm concerned, I can't even go into a store or anything without totally wigging out. I'm fine as long as I'm laying down or sitting. If I start shaking and I sit down, it goes away. What on earth is that all about???? I see my OS on Thursday, so I'm gonna run it by her of course, but I was curious as to if anyone else has experience the same thing and if so, how long does it last? Thanks, Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi Cyndi I get the same thing but usually as soon as I get up in the morning. I had lower surgery one week ago - I just assumed it was the diet but I would be interested to know what your surgeon says. I am seeing my surgeon z tomorrow and I will also take care Joanne -- In orthognathicsurgerysupport , " slims1969 " wrote: > Okay guys, > > I've read back, and failed to find any mention of anyone having > repeated cases of the " shakes " . I get these " shakes " after I've been > up and moving around for at least an hour or two. I literally start > shaking all over, not like shivers, mind you, more like how people > shake when they have that disorder that Janet Reno has. Can't for > the life of me remember what it's called right now. Anyways, my mom > is concerned and now I'm concerned, I can't even go into a store or > anything without totally wigging out. I'm fine as long as I'm laying > down or sitting. If I start shaking and I sit down, it goes away. > What on earth is that all about???? I see my OS on Thursday, so I'm > gonna run it by her of course, but I was curious as to if anyone else > has experience the same thing and if so, how long does it last? > > Thanks, > > Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 I'm no expert, but it almost sounds like fatigue, kind of like you get when you exercise too much. But like everything else I would talk to your surgeon. You may be trying to do too much too fast. Marsha > Okay guys, > > I've read back, and failed to find any mention of anyone having > repeated cases of the " shakes " . I get these " shakes " after I've been > up and moving around for at least an hour or two. I literally start > shaking all over, not like shivers, mind you, more like how people > shake when they have that disorder that Janet Reno has. Can't for > the life of me remember what it's called right now. Anyways, my mom > is concerned and now I'm concerned, I can't even go into a store or > anything without totally wigging out. I'm fine as long as I'm laying > down or sitting. If I start shaking and I sit down, it goes away. > What on earth is that all about???? I see my OS on Thursday, so I'm > gonna run it by her of course, but I was curious as to if anyone else > has experience the same thing and if so, how long does it last? > > Thanks, > > Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 it sounds like low blood sugar. i shake really bad when my blood sugar is low. make sure you are getting enough nutrition and putting enough food in your stomach. i've been drinking chocolate peanut butter milkshakes when that happens to me and it helps. > Okay guys, > > I've read back, and failed to find any mention of anyone having > repeated cases of the " shakes " . I get these " shakes " after I've been > up and moving around for at least an hour or two. I literally start > shaking all over, not like shivers, mind you, more like how people > shake when they have that disorder that Janet Reno has. Can't for > the life of me remember what it's called right now. Anyways, my mom > is concerned and now I'm concerned, I can't even go into a store or > anything without totally wigging out. I'm fine as long as I'm laying > down or sitting. If I start shaking and I sit down, it goes away. > What on earth is that all about???? I see my OS on Thursday, so I'm > gonna run it by her of course, but I was curious as to if anyone else > has experience the same thing and if so, how long does it last? > > Thanks, > > Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 I've read back, and failed to find any mention of anyone having repeated cases of the " shakes " . I get these " shakes " after I've been up and moving around for at least an hour or two. I literally start shaking all over, not like shivers, mind you, more like how people shake when they have that disorder that Janet Reno has. I really like this site as it gives alot of information about symptoms or this disease could also be this one etc. http://www.wrongdiagnosis.com/sym/tremor_symptoms.htm =there can be alot of reasons for shaking, diabetic, it can be something neuromuscular, I think even some endocrine disorders like hypothyroid? can do that too. Also epilepsy will do it as well. I think even some anxiety disorders too. As well as some medications.. Start with a full blood work up at your gp and ask for a referral to a neuro if they come back negative. But don't delay as with any of those (and it could be fatigue or a virus) the quicker you get a diagn. the better. Sometimes even parkinson's etc can be mimiced by certain other blood issues like lead poisoning or something like that. Shiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hmmmm... a lot to chew on! I happen to be hypoglcemic and Diabetes runs pretty heavy on my mom's side and I had major head trauma from a car accident I was in back in 1986. I had a grand mal seziure and a couple petite mal in the years following. To top it all off, my grandma on my mom's side was severly epileptic. Jeez... I think I'll be calling my regular doctor in the morning. Thanks for the web site, it was very helpful. Cyndi > I've read back, and failed to find any mention of anyone having > repeated cases of the " shakes " . I get these " shakes " after I've been > up and moving around for at least an hour or two. I literally start > shaking all over, not like shivers, mind you, more like how people > shake when they have that disorder that Janet Reno has. > > I really like this site as it gives alot of information about > symptoms or this disease could also be this one etc. > > http://www.wrongdiagnosis.com/sym/tremor_symptoms.htm > > > =there can be alot of reasons for shaking, diabetic, it can be > something neuromuscular, I think even some endocrine disorders like > hypothyroid? can do that too. Also epilepsy will do it as well. I > think even some anxiety disorders too. As well as some medications.. > > Start with a full blood work up at your gp and ask for a referral to > a neuro if they come back negative. But don't delay as with any of > those (and it could be fatigue or a virus) the quicker you get a > diagn. the better. Sometimes even parkinson's etc can be mimiced by > certain other blood issues like lead poisoning or something like > that. > > Shiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 By the way, are you in the medical field? Just curious! :-) > I've read back, and failed to find any mention of anyone having > repeated cases of the " shakes " . I get these " shakes " after I've been > up and moving around for at least an hour or two. I literally start > shaking all over, not like shivers, mind you, more like how people > shake when they have that disorder that Janet Reno has. > > I really like this site as it gives alot of information about > symptoms or this disease could also be this one etc. > > http://www.wrongdiagnosis.com/sym/tremor_symptoms.htm > > > =there can be alot of reasons for shaking, diabetic, it can be > something neuromuscular, I think even some endocrine disorders like > hypothyroid? can do that too. Also epilepsy will do it as well. I > think even some anxiety disorders too. As well as some medications.. > > Start with a full blood work up at your gp and ask for a referral to > a neuro if they come back negative. But don't delay as with any of > those (and it could be fatigue or a virus) the quicker you get a > diagn. the better. Sometimes even parkinson's etc can be mimiced by > certain other blood issues like lead poisoning or something like > that. > > Shiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Gosh, I don't know anything about the shakes. Are you dehydrated? I had *terrible* shakes once (and I was so cold), and I didn't know WHAT was wrong with me--I called my bro who is a doctor, and he said I was really dehydrated. I drank a bunch of water and gatorade, and I was fine. I don't know about the shakes going on long term ... I think I'd tell the doc right away. Eileen > Okay guys, > > I've read back, and failed to find any mention of anyone having > repeated cases of the " shakes " . I get these " shakes " after I've been > up and moving around for at least an hour or two. I literally start > shaking all over, not like shivers, mind you, more like how people > shake when they have that disorder that Janet Reno has. Can't for > the life of me remember what it's called right now. Anyways, my mom > is concerned and now I'm concerned, I can't even go into a store or > anything without totally wigging out. I'm fine as long as I'm laying > down or sitting. If I start shaking and I sit down, it goes away. > What on earth is that all about???? I see my OS on Thursday, so I'm > gonna run it by her of course, but I was curious as to if anyone else > has experience the same thing and if so, how long does it last? > > Thanks, > > Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Yep. Time for a neuro I'd say. Do you have a blood glucometer? I was misdiagnosed with hypogly. however its good to have so you can check yourself as even a sugar challenge test is only one moment in time. Shiloh > > I've read back, and failed to find any mention of anyone having > > repeated cases of the " shakes " . I get these " shakes " after I've been > > up and moving around for at least an hour or two. I literally start > > shaking all over, not like shivers, mind you, more like how people > > shake when they have that disorder that Janet Reno has. > > > > I really like this site as it gives alot of information about > > symptoms or this disease could also be this one etc. > > > > http://www.wrongdiagnosis.com/sym/tremor_symptoms.htm > > > > > > =there can be alot of reasons for shaking, diabetic, it can be > > something neuromuscular, I think even some endocrine disorders like > > hypothyroid? can do that too. Also epilepsy will do it as well. I > > think even some anxiety disorders too. As well as some medications.. > > > > Start with a full blood work up at your gp and ask for a referral > to > > a neuro if they come back negative. But don't delay as with any of > > those (and it could be fatigue or a virus) the quicker you get a > > diagn. the better. Sometimes even parkinson's etc can be mimiced > by > > certain other blood issues like lead poisoning or something like > > that. > > > > Shiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 > By the way, are you in the medical field? Just curious! :-) =lol no I just play one on TV> Actually I am a narcolept so my doctors and I went through 10 years searching for a diagnosis, I have learned you really have to educate yourself and advocate for yourself - hey most of us on here wouldn't have gotten our jaws done if we hadn't pushed I never even knew it was an option. However much like yourself I do have mild strobe light epilepsy and funny enough eyebrow waxing sezuires - I am serious not the pain but something about there..Was misdiagnosed with hypo as its close to narcolepsy. I have alot of little annoying things however went through all the neuro work ups, 72 hour wearable eeg's.... I ended up with an internal specialist who 'orchestrated' my other specialists...as I am a complicated woman Actually I wanted to become a doctor however because of the narcolepsy I didn't think it was responsible and I couldn't pull 72 hour shifts without passing out...But I prefer narcolepsy over the guilt and grief when I lived 7 years thinking I had hypoglycemia, no coke no sugar, and everytime I got tired I blamed myself. SHiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Wow, and I thought I had problems. ;-) Well, I see the OS tommorow, so I'll see what she says. Thanks again! Cyndi > > By the way, are you in the medical field? Just curious! :-) > =lol no I just play one on TV> Actually I am a narcolept so my > doctors and I went through 10 years searching for a diagnosis, I > have learned you really have to educate yourself and advocate for > yourself - hey most of us on here wouldn't have gotten our jaws done > if we hadn't pushed I never even knew it was an option. > > However much like yourself I do have mild strobe light epilepsy and > funny enough eyebrow waxing sezuires - I am serious not the pain but > something about there..Was misdiagnosed with hypo as its close to > narcolepsy. I have alot of little annoying things however went > through all the neuro work ups, 72 hour wearable eeg's.... > > I ended up with an internal specialist who 'orchestrated' my other > specialists...as I am a complicated woman > > Actually I wanted to become a doctor however because of the > narcolepsy I didn't think it was responsible and I couldn't pull 72 > hour shifts without passing out...But I prefer narcolepsy over the > guilt and grief when I lived 7 years thinking I had hypoglycemia, no > coke no sugar, and everytime I got tired I blamed myself. > > SHiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 > Wow, and I thought I had problems. ;-) Well, I see the OS tommorow, > so I'll see what she says. Thanks again! > Cyndi =hey was that supposed to make me feel better? Just kidding shiloh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 HI there: I had a question for you - you mentioned the " mild strobe light epilepsy " . Is this in any way related to other issues you have (jaw issues) - as I also am epileptic - but we can't find any reason. Just curious. Greta ---- > > > By the way, are you in the medical field? Just curious! :-) > =lol no I just play one on TV> Actually I am a narcolept so my > doctors and I went through 10 years searching for a diagnosis, I > have learned you really have to educate yourself and advocate for > yourself - hey most of us on here wouldn't have gotten our jaws done > if we hadn't pushed I never even knew it was an option. > > However much like yourself I do have mild strobe light epilepsy and > funny enough eyebrow waxing sezuires - I am serious not the pain but > something about there..Was misdiagnosed with hypo as its close to > narcolepsy. I have alot of little annoying things however went > through all the neuro work ups, 72 hour wearable eeg's.... > > I ended up with an internal specialist who 'orchestrated' my other > specialists...as I am a complicated woman > > Actually I wanted to become a doctor however because of the > narcolepsy I didn't think it was responsible and I couldn't pull 72 > hour shifts without passing out...But I prefer narcolepsy over the > guilt and grief when I lived 7 years thinking I had hypoglycemia, no > coke no sugar, and everytime I got tired I blamed myself. > > SHiloh > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Hi Greta, actually I think about 5% of people when exposed to 'strobing lights' will have an attack. there was a kids cartoon in japan that had flashing lights a few years back and sent quite a few to hospital No the jaw issues and my narcolepsy are not related to the mild epilepsy. I thought usually epilepsy was 'unknown' sometimes diet (the ketogenic diet I've heard good things about as the fat coats the myelin ...) or a head injury. I've had a few concussions. One really bad when I was 3. Everyone techincally has epilepsy those stray thoughts are 'misfires' an epileptic those become a 'storm' you are not able to control. What are your sezuires like? My doctor offered me meds for it once but I don't need downers. SHiloh you can email me off board if you are more comfortable. till_shiloh (AT) yahoo (DOT) > > > By the way, are you in the medical field? Just curious! :-) > > =lol no I just play one on TV> Actually I am a narcolept so my > > doctors and I went through 10 years searching for a diagnosis, I > > have learned you really have to educate yourself and advocate for > > yourself - hey most of us on here wouldn't have gotten our jaws done > > if we hadn't pushed I never even knew it was an option. > > > > However much like yourself I do have mild strobe light epilepsy and > > funny enough eyebrow waxing sezuires - I am serious not the pain but > > something about there..Was misdiagnosed with hypo as its close to > > narcolepsy. I have alot of little annoying things however went > > through all the neuro work ups, 72 hour wearable eeg's.... > > > > I ended up with an internal specialist who 'orchestrated' my other > > specialists...as I am a complicated woman > > > > Actually I wanted to become a doctor however because of the > > narcolepsy I didn't think it was responsible and I couldn't pull 72 > > hour shifts without passing out...But I prefer narcolepsy over the > > guilt and grief when I lived 7 years thinking I had hypoglycemia, no > > coke no sugar, and everytime I got tired I blamed myself. > > > > SHiloh > > > > Quote Link to comment Share on other sites More sharing options...
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