Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Hi all: Pete has been having a terrible time with his eyes...seems to be directly related to the weather ie: when the baromter drops he gets " more deaf " and eye sight diminishes. Could someone please give me the full name , address and phone # of the opthamologist in Boston? I have taken Pete to the Chief of Opthamology of Columbia in NYC but of course he admitted he had never heard of RP(at least he was honest)..Anyway we have upped the pred for now hoping it helps. But I would like to take Pete to Boston to see that doc but would like to speak with him first. The doc at Columbia said it's hard to tell anything when Pete's eyes are okay. thanks ..you are all always in my prayers. Love Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 In a message dated 05/18/2001 7:31:31 PM Eastern Daylight Time, susuw@... writes: > Hi -- Boy ain't that the truth...the reason they think it is not the pred is because his eye started getting worse as he was decreasing the pred and improves with increases...still wonder...I have looked up all his other meds and they seem okay...my opinion(and you know what that means) is that its the RP especially since all his flares are on that same right side of his head, the headaches, the vasculitis, the eye and even when he gets a neck pain its only on the right side...weird huh? Pete panics because he can't hear and is terrified of becoming blind. He is such a sweetheart of a guy and I know him and have been with him for 46 years(married last 38).....well sorry to ramble don't know what I'd do without all the help and caring from this group. Wish I could give back more. you are all in my prayers everyday Love Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Sorry to hear Pete is having so many problems. The Dr. in Boston is Dr. . He is at the Massachusettes Eye... something. I don't remember. I think his number is on the web site. I will check. Roy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 Hi Janet, Sorry can't answer your question on the eye specialist except I think his name is Dr. , but did want to remind you that the Pred. can cause eye problems too. Just wanted to remind you of that. Prayers being said for Pete. Hope he gets help soon for this. W >>>>>>>>>>>>>>>>>>>>>>> Hi all: Pete has been having a terrible time with his eyes...seems to be directly related to the weather ie: when the baromter drops he gets " more deaf " and eye sight diminishes. Could someone please give me the full name , address and phone # of the opthamologist in Boston? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 JANET, SO SORRY TO HEAR THAT PETE IS HAVING EYE PROBLEMS. HOPE YOU CAN FIND THE HELP YOU NEED FOR HIM. KNOW THAT I AM SENDING GOOD THOUGHTS TO BOTH OF YOU. HUGS CLAUDIA C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 In a message dated 5/18/01 5:33:16 PM Pacific Daylight Time, Baaboo19@... writes: << Wish I could give back more. you are all in my prayers everyday Love Janet >> JANET, YOU GIVE SOOO MUCH OF YOURSELF TO THIS GROUP. WE COULDN'T ASK FOR MORE. I KNOW YOU ARE JUST AS SWEET AT PETE......GOSH...LOOK HOW LONG YOU HAVE BEEN TOGETHER. WHAT AN INSPIRATION. I JUST FEEL SO BLESSED TO HAVE GOTTEN TO KNOW ALL OF YOU. DON'T KNOW WHAT I'D DO WITHOUT YOU. GIVE PETE A HUG FOR ME AND KNOW THAT YOU ARE BOTH IN MY PRAYERS. HUGS CLAUDIA Quote Link to comment Share on other sites More sharing options...
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