Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 In a message dated 05/15/2001 11:09:34 AM Central Daylight Time, biglou5685@... writes: << is doing okay, goes for her MRI at the end of the month. >> Hooray for !!! Now, how are YOU doing? Has your flare stopped yet? Just to let you know, you and have been placed on the prayer at my aunt's church in CT! Pretty powerful group, I'm still kicking so they must be doing something right! Maybe God listens more to groups, who knows? Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2001 Report Share Posted May 18, 2001 In a message dated 05/15/2001 2:25:04 PM Central Daylight Time, biglou5685@... writes: << I'm on 18 different meds and getting very little results. >> Sandy, I was on more than that BEFORE I was dx with RP! I guess it is all relative, isn't it? When I'm at my mom's, she has the big tray on the counter just for my meds! It does gett depressing, I used to get mad and flush them all down the toilet, but Jim pointed out that all that does is waste money as I still have to take them anyway, like it or not. Believe me, iit is definitely NOT! Hang in there, that's all we can do. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2001 Report Share Posted May 19, 2001 Judy, Thanks for placing Val on your Aunt's prayer group. I've been worried about her lately. She becomes easily confused and can't remember things.She said this has been going on since she went off the steroids 2 weeks ago. Hugs, Sandy > Just to let you know, you and have been placed on the prayer at my > aunt's church in CT! Pretty powerful group, I'm still kicking so they must > be doing something right! Maybe God listens more to groups, who knows? > Love, Judy > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 HI Sandy, So they are just not going to do anything? how does the sjorgens effect the c-pap? Does it make your mouth dry? They have meds for that too. I have been on some of them before. Just curious? Let me know when you can? Love you Lu In a message dated 05/22/2001 12:54:40 AM Central Daylight Time, RTI2264@... writes: > > Right now nothing is being done. My ENT has nixed the C-Pap > > because my sjogrens is bad. > > Love Ya, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 In a message dated 05/19/2001 8:51:29 PM Central Daylight Time, biglou5685@... writes: << She becomes easily confused and can't remember things.She said this has been going on since she went off the steroids 2 weeks ago. >> Sandy, that is my usual state and I don't get upset about it any more, but a) is MUCH younger than I am; @ she has not had three stokes and 3 " seizures. This is not normal, get her to the dr right away! Maybe they need to leave her on the Pred (Yuck!) but it may be necessary. We're all praying for her (and you), please let me know what the dr has to say. Love, Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Judy, Val is doing better now. She went for her MRI this morning to see if the radiation had any effect on the tumor. Please keep her in your prayers. Right now she is very scared. Don't know when she will get the results. Love Ya, Sandy > In a message dated 05/19/2001 8:51:29 PM Central Daylight Time, > biglou5685@... writes: > > << She becomes easily confused and can't > remember things.She said this has been going on since she went off the > steroids 2 weeks ago. >> > > Sandy, that is my usual state and I don't get upset about it any more, but > a) is MUCH younger than I am; @ she has not had three stokes and 3 " > seizures. This is not normal, get her to the dr right away! Maybe they need > to leave her on the Pred (Yuck!) but it may be necessary. We're all praying > for her (and you), please let me know what the dr has to say. Love, Judy > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Sandy, Prayers being said. Please....keep us updated and let us know when she will meet with the doctors about this. If you need me, I'm here, OK? W >>>>>>>>>>>>>>>>>>>>>>> She went for her MRI this morning to see if the radiation had any effect on the tumor. Please keep her in your prayers. Right now she is very scared. Don't know when she will get the results. Love Ya, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 , The Clinic called , they want to see her at 10:00 tomorrow morning. Thank you for your prayers. I'm praying for good news, does not want to go through Chemo. I will let you know as soon as I find out what the Docs have to say. Sandy > Sandy, > Prayers being said. Please....keep us updated and let us know when she will meet with the doctors about this. > If you need me, I'm here, OK? > W > >>>>>>>>>>>>>>>>>>>>>>> > She went for her MRI this morning to see if the > radiation had any effect on the tumor. Please keep her in your prayers. > Right now she is very scared. Don't know when she will get the results. > > Love Ya, > Sandy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Lu, Sorry it's taken me so long to get back to you. Right now they are not treating my sleep disorder. My pulmonologist wants to repeat the sleep study. The C-Pap dries out the throat according to my ENT. My throat was really bad the last time he scoped me. It cracks and bleeds when it is really dry. Had to have humidifiers added to the house. Love Ya, Sandy > HI Sandy, > So they are just not going to do anything? how does the sjorgens effect the > c-pap? Does it make your mouth dry? They have meds for that too. I have been > on some of them before. Just curious? Let me know when you can? > Love you > Lu > In a message dated 05/22/2001 12:54:40 AM Central Daylight Time, > RTI2264@... writes: > > > > > Right now nothing is being done. My ENT has nixed the C-Pap > > > because my sjogrens is bad. > > > Love Ya, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Sandy, You and Val are always in my prayers but I will say some extra specials ones! Hope you are doing better too! Lots of Love Glenda Re: Sandy Judy, Val is doing better now. She went for her MRI this morning to see if the radiation had any effect on the tumor. Please keep her in your prayers. Right now she is very scared. Don't know when she will get the results. Love Ya, Sandy > In a message dated 05/19/2001 8:51:29 PM Central Daylight Time, > biglou5685@... writes: > > << She becomes easily confused and can't > remember things.She said this has been going on since she went off the > steroids 2 weeks ago. >> > > Sandy, that is my usual state and I don't get upset about it any more, but > a) is MUCH younger than I am; @ she has not had three stokes and 3 " > seizures. This is not normal, get her to the dr right away! Maybe they need > to leave her on the Pred (Yuck!) but it may be necessary. We're all praying > for her (and you), please let me know what the dr has to say. Love, Judy > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Prayers are being said Sandy. Just try and stay calm, OK? I'll look for an email from you as soon as I get home. W >>>>>>>>>>>>>>>>>>> , The Clinic called , they want to see her at 10:00 tomorrow morning. Thank you for your prayers. I'm praying for good news, does not want to go through Chemo. I will let you know as soon as I find out what the Docs have to say. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Sandy, I will think positive thoughts for Valarie and she will be in my prayers. Let us know how she's doing. Love, Marilyn > , > The Clinic called , they want to see her at 10:00 tomorrow > morning. Thank you for your prayers. > I'm praying for good news, does not want to go through Chemo. I will > let you know as soon as I find out what the Docs have to say. > > Sandy > > > > > Sandy, > > Prayers being said. Please....keep us updated and let us know when she > will meet with the doctors about this. > > If you need me, I'm here, OK? > > W > > >>>>>>>>>>>>>>>>>>>>>>> > > She went for her MRI this morning to see if the > > radiation had any effect on the tumor. Please keep her in your prayers. > > Right now she is very scared. Don't know when she will get the results. > > > > Love Ya, > > Sandy > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Hi, what is a C-Pap? I have had this dry throat for months, dry cough and sore throat off an on. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2001 Report Share Posted May 30, 2001 Anybody heard from Sandy today????????????? Quote Link to comment Share on other sites More sharing options...
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