Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Totally agree...Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 We live in the upstate of SC, was wondering if anyone in the group was from this area and would know of a neurologist that might be knowledgeable about MSA. We know of a Dr. Bergman in ton, but it is a good 3 hour drive from Clinton and would like to find one closer. Would appreciate any response. Winifred (I am new in the group and find good advise everyday) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 I am on the waiting list to see Dr. Bergman in ton, SC. We live in Charlotte NC and have seen 3 neuro's here, none of which are movement disorder specialists, so they were unable to help. I also saw a MDS neuro in Winston-Salem but was told that my MSA was out of his field of knowledge. We are hoping that Dr. Bergman will be knowledgeable enough to help. Clinton, S.C. appears to be only 80 miles south of where we live. We are in the Lake Wylie area of N.C. Our bank and post office is in S.C....that is how close we are to the border. Sorry I couldn't be of much help. Deborah aka Tenacity Reply-To: shydrager To: shydrager Subject: doctors Date: Wed, 19 Jun 2002 09:52:52 -0700 We live in the upstate of SC, was wondering if anyone in the group was from this area and would know of a neurologist that might be knowledgeable about MSA. We know of a Dr. Bergman in ton, but it is a good 3 hour drive from Clinton and would like to find one closer. Would appreciate any response. Winifred (I am new in the group and find good advise everyday) _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Greetings Winifred, You wondered about doctors closer to Clinton, SC. I would recommend talking with your GP about finding a movement disorder specialist in the Charlotte, NC area. as I understand it, Clinton is closer to Charlotte than other cities in the area. Then interview the movement specialists via mail or phone, to see if that doctor has experience with MSA (or Shy-Dragger). Another avenue might be to talk with your insurance company (if you have a private company), for the names and numbers of neurologists that deal with movement disorders. Just a couple of ideas. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 , Don't mean to burst your bubble of optimism but what you recommended would be a great idea if there actually was a movement disorder specialist here in Charlotte. Unfortunatly, with all the neurologists that we have in this wonderful city, none are MDS's. They have one in Raleigh and one in Winston-Salem (I saw the one in Winston-Salem who said that even he could not help and he is a MDS) and that is it for the entire state of N.C. Charlotte, N.C. had Dr. Bergman, who is a MDS neuro but he moved to ton, S.C. about a year ago. I have seen 3 neuro's here in Charlotte and being a MSA patient made me an " interesting " subject that they had never before seen in their practice, only read about folks like us in textbooks. Each one of them told me honestly that this disease was well beyond their expertise and referred me elsewhere. We are a 5 hour drive from ton, S.C. and I don't travel well but Dr. Bergman is the doc that I have been referred to from the others here in Charlotte that knew him when he was still in practice here. I too, wish that someone closer was available who has experience with the various PD + syndromes. Hugs, Deborah Reply-To: shydrager To: shydrager > Subject: RE: doctors Date: Thu, 20 Jun 2002 08:32:54 -0400 Greetings Winifred, You wondered about doctors closer to Clinton, SC. I would recommend talking with your GP about finding a movement disorder specialist in the Charlotte, NC area. as I understand it, Clinton is closer to Charlotte than other cities in the area. Then interview the movement specialists via mail or phone, to see if that doctor has experience with MSA (or Shy-Dragger). Another avenue might be to talk with your insurance company (if you have a private company), for the names and numbers of neurologists that deal with movement disorders. Just a couple of ideas. Regards, =jbf= B. Fisher _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Greetings Deborah, You haven't burst my bubble. I live in the Research Triangle Area of NC. With three universities and several first class hospitals in the area, including UNC and Duke hospitals, we have a higher than normal level of specialization in this area. It is definitely worth the attempt. But I clearly do not know any of the doctors in your area. As it is, I am under the care of a neurologist, with whom I built a good rapport. Though he does not specialize in movement disorders, at this point symptom management is all I require. And it works. So, I hope you are able to find a specialist, who can help you. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Thanks, , for your suggestions. I am a new subscriber to the support group (about 2 weeks) and in that short time I have different slant on the disease, completely. I was beginning to believe that my husband and I were an island unto ourselves, not knowing of anyone with MSA or even vaguely familiar with the word. "Birds of a feather, must stick together". Winifred RE: doctors Greetings Winifred, You wondered about doctors closer to Clinton, SC. I would recommend talking with your GP about finding a movement disorder specialist in the Charlotte, NC area. as I understand it, Clinton is closer to Charlotte than other cities in the area. Then interview the movement specialists via mail or phone, to see if that doctor has experience with MSA (or Shy-Dragger). Another avenue might be to talk with your insurance company (if you have a private company), for the names and numbers of neurologists that deal with movement disorders. Just a couple of ideas. Regards, =jbf= B. FisherIf you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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