Re: [RpolychondritisJanet, need more info on Pete

[Guest guest]

Hi Janet:

Cath here. Please give me more details of what happens with Pete and

his eyes and maybe I can help. I'll try to look for your post or e-mail

me directly because sometimes there are so many e-mails to try to get

through it gets really tough.

I really do want to try to help if I can.

Take care,

Cath

Baaboo19@... wrote:

> Hi all: Pete has been having a terrible time with his eyes...seems to

> be

> directly related to the weather ie: when the baromter drops he gets

> " more

> deaf " and eye sight diminishes. Could someone please give me the full

> name ,

> address and phone # of the opthamologist in Boston? I have taken Pete

> to the

> Chief of Opthamology of Columbia in NYC but of course he admitted he

> had

> never heard of RP(at least he was honest)..Anyway we have upped the

> pred for

> now hoping it helps. But I would like to take Pete to Boston to see

> that doc

> but would like to speak with him first. The doc at Columbia said it's

> hard to

> tell anything when Pete's eyes are okay. thanks ..you are all always

> in my

> prayers. Love Janet

>

>

>