Re: Lurkers!/Judy O

[Guest guest]

Judy, I cannot find Accupril in the British National Formulary (I am in the

UK) I am on Lisinipril and Amlodopine for my BP which is 150/100 at the

moment. It hasn't been too bad lately until I started the Cyclosporin. I am

hoping it will settle down. They are keeping a close eye on it. Good to hear

from you. Hope you're having a good day.

Love

Anne

>From: JOstry93@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Re: Lurkers!

>Date: Fri, 18 May 2001 21:04:28 EDT

>

>In a message dated 05/18/2001 12:33:46 PM Central Daylight Time,

>colmananne@... writes:

>

><< I have added cylcosporine to the methotrexate in the hope of

> reducing the prednisolone, but it is making my BP go up (I have high BP

>to

> start with) so we'll see how it goes. Hope you are ok. >>

>

>Anne, has the dr tried Accupril? I was on three different meds for my BP,

>finally got it down to one 10 mg pill at bedtime, my BP is usually around

>100/60 and you can't get much better than that! This med does not

>interfere

>with my Metho. Good luck, let us know you you are doing. Love, Judy O

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[Guest guest]

In a message dated 05/19/2001 1:09:50 PM Central Daylight Time,

colmananne@... writes:

<< I cannot find Accupril in the British National Formulary >>

Anne, I'm sorry, I (foolishly) assumed that if it's available here, it'

available everywhere! And, of course, I didn't keep the medical info that

comes with it! I've been on it so long, I just take it and forget it. There

must be something comparable in the UK (another assumption, sorry!) I guess

so long as what they have you on works, that's all that's important, right?

As for me, I feel great TODAY, lately chemo day is easy, it's the day after

that kills me, dr doesn't know why. He decreased the metho by 2.5 mg, hopes

it helps -- Not as much as I DO! I guess I'll know tomorrow (Wednesday),

that's when I am usually too exhausted to move (and I am so tired of feeling

that way!) Keep your fingers crossed.

Meanwhile, I hope things straighten out for you! Sometimes I think we are

all just guniea pigs, and they try this and that to see if it works or makes

us worse. Good luck and hang in there, let me know how the new med is doing.

Love, Judy O

[Guest guest]

Hi Judy

I have been really lucky with my drugs so far (touch wood) I am not too bad

on them and any bad effects don't seem to last long. I must have the

constituion of an ox as my mam used to say. I am sorry you have such lousy

days with them. I hope the reduction in the MTX helps a bit. Let me know how

you get on and I'll do the same.

Take care

Anne

>From: JOstry93@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Re: Lurkers!/Judy O

>Date: Tue, 29 May 2001 15:52:18 EDT

>

>In a message dated 05/19/2001 1:09:50 PM Central Daylight Time,

>colmananne@... writes:

>

><< I cannot find Accupril in the British National Formulary >>

>

>Anne, I'm sorry, I (foolishly) assumed that if it's available here, it'

>available everywhere! And, of course, I didn't keep the medical info that

>comes with it! I've been on it so long, I just take it and forget it.

>There

>must be something comparable in the UK (another assumption, sorry!) I

>guess

>so long as what they have you on works, that's all that's important, right?

>

>As for me, I feel great TODAY, lately chemo day is easy, it's the day after

>that kills me, dr doesn't know why. He decreased the metho by 2.5 mg,

>hopes

>it helps -- Not as much as I DO! I guess I'll know tomorrow (Wednesday),

>that's when I am usually too exhausted to move (and I am so tired of

>feeling

>that way!) Keep your fingers crossed.

>

>Meanwhile, I hope things straighten out for you! Sometimes I think we are

>all just guniea pigs, and they try this and that to see if it works or

>makes

>us worse. Good luck and hang in there, let me know how the new med is

>doing.

> Love, Judy O

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[Guest guest]

In a message dated 05/29/2001 5:17:21 PM Central Daylight Time,

colmananne@... writes:

<< I hope the reduction in the MTX helps a bit. Let me know how

you get on and I'll do the same. >>

Anne, how to explain. I am actually absolutely fine on chemo day (split the

dose to half in the AM and the other half PM) that is working great. My

problem is still the day after - that truck just keeps racing up and down my

street and I can't get out of its way! I am totally non-functional the day

after! Too weak to do anything. Of course, I MAKE myself get up and showered

and dressed (and if I'm really being stupid, I try to do my hair) by which

time I fall over on the bed I just made and pass out for a couple of hours.

When I wake us, it's still the same - totally wiped! However, Thursday's are

getting better - still tired, but I can function (so long as I don't push it

too far) So definite improvement, now only writing off one day a week

(Wednesday) and that beats the heck out of three! So definitely better.

Where did you get your constitution? Can I get one? I can generally

overcome pretty much anything thru sheer stubbornness ( R said to call

it " determination " ) but honestly, it's stubbornness! But I can'tpush my way

thru Wednesdays. Who knows? That may improve too, at least I am sure hoping

it does! How much Metho do you take? I was fine on 10 mg, it's only since

it's 20 mg that I'm having probs, and going to the 17.5 mg didn't do much, so

I guess I just have to live with it! It's only one day, could be worse,

right? Take care, Love, Judy