antibiotics

[Guest guest]

Thanks Connie, I agree with everything you said. I just wish I could track down what antibiotics they had me on. Have one more clue which I'll follow up Monday a.m. Back then I didn't have brains enough to keep all info....Alert to newbies...Keep everything as for all records, keep records, get copies of ALL doctor appointments and diagnosis....Sue Marth

[Guest guest]

Hi Sue,

Thanks for sharing your experiences on the antibiotics......whatever

it was. Interestingly, Dr. M. Brown, the originator of the

protocol as used in rheumatic diseases, in addition to the

tetracyclines, gave his paitents IV delivery of Clindamycin....I

wonder if that's what was in your IV? Dr. Brown found that the one-

two punch worked better at getting the organisms under control.

The IV's are still used by many of the AP friendly doctors.....Dr.

Franco wanted me to have the IV's in addition to the Minocin but

since I can only go see him once a year, my regular internist takes

care of the other details. My internist was opposed to the IV's

(there is a risk of a hard to control diahreaah called Clostridium

difficile when using IV Clindamycin and many antibiotics.) Even

though I told my internist that this is usually not a problem with

the AP, she was not in favor of the IV Clindy. So, instead, Dr.

Franco put me on Zithromax and later, Biaxin. I've posted about

these in past discussions on the list.

This treatment is also used sometimes in fibromyalgia....it's

detailed in the Road Back Newsletter if you are interested.

Generally, pcp's are more willing to try the antibiotic route and

have found a lot of success with it, especially if they are willing

to read some of the studies and implement the protocol as described

in the various literature.... www.rheumatic.org and www.roadback.org

have well researched information.

Good luck to you.

~Connie H

> Back in 1992 or 1993 I went to ENT for major ear flare. He wanted

me

> in hospital for IV antibiotics. Well I convinced him that I could

do

> that from home. Which I did. It was a 10 day treatment three times

a

> day or maybe four I can't remember. I have been trying to track

down

> what kind of antibiotics they were. There was a company who

delivered

> everything right to the house. A home health nurse put in the

shunt.

> The long and short of it was I was fine for almost 7 years...I will

> try to find out what drugs they were. If I could remember the name

of

> the company who supplied them...Have appointment with pcp on Monday

> so will talk to him about it....He did send me a case study

> Dermatologic Manifestations of RP. I have been complaining of

mucous

> and come to find out it's all related. Will fill you in more when I

> know what alot of the " big words " mean...Crohn's seems to be

> mentioned alot. So that's my news for today....Sue Marth

[Guest guest]

Hi Sue....I remember those days when I obediently followed my doctors

orders, no questions asked :-) My mom and I used to chuckle at an

aunt of mine who requested copies of all of her labs, reports,

etc...now, guess who has an accurate record of all of her medical

history? .....better late than never, though.

Good luck tracking down the antibiotic that they gave you.

~Connie H

> Thanks Connie, I agree with everything you said. I just wish I

could track

> down what antibiotics they had me on. Have one more clue which I'll

follow up

> Monday a.m. Back then I didn't have brains enough to keep all

info....Alert

> to newbies...Keep everything as for all records, keep records, get

copies of

> ALL doctor appointments and diagnosis....Sue Marth

[Guest guest]

In a message dated 8/6/01 2:56:54 PM Pacific Daylight Time,

langgang@... writes:

<< portant stuff. I know test results and meds but anything

else?????/ I know this makes me sound stupid. i have hard time asking

drs. for stuff I have to feel real sure what I am asking for. Does that

make any sense???????

>>

JULIE, don't feel bad, I use to be the same way.LOL Yes it does make

sense... That's the great thing about this group......someone always

understands...

It is important to have your records... I have found this out the hard way...

Now I get everything... If you are ever sent to another dr, you will have

every thing... In fact I found some major errors in my records...You can weed

out the junk you don't think the dr will need and just send the important

stuff, but keep the complete records for yourself... I ususally take my

records in before my appt so the dr has time to look over them (if they do)

LOL

I keep a set with me while traveling, so if I should have a flare while I'm

gone, the hospital or dr where ever I am will have my records too.

Hope this makes sense. LOL

hugs

[Guest guest]

Hi,

You mean get a copy of every drs. appointment you have?????? doesn't

that drive them crazy. How can you get the copies,you must have to

wait a while before it all gets recorded. You must get a huge pile.

others have mentioned this too. don't get me wrong I will do what

ever I can for myself. just don't understand the importance of it.

How do you weed out what's important stuff. I know test results and

meds but anything else?????/ I know this makes me sound stupid.

i have hard time asking drs. for stuff I have to feel real sure what I

am asking for. Does that make any sense???????

thanks

grandm4@... wrote:

Thanks

Connie, I agree with everything you said. I just wish I could track

down what antibiotics they

had me on. Have one more clue which I'll follow up

Monday a.m. Back then I

didn't have brains enough to keep all info....Alert

to newbies...Keep everything

as for all records, keep records, get copies of

ALL doctor appointments

and diagnosis....Sue Marth

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS,

THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY.

PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED.

WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER

EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK

YOU

[Guest guest]

Dear , I used to feel the same way but they are yours. Why you should have them is that if something should happen to you and need to go to hospital they will understand by looking at your records. Well we hope they will. If something would happen to me my husband knows where they are and to bring them. I have to go back to my pcp in three weeks, was there yesterday, so will call a week ahead and tell them to have them ready for me. Plus, they do make mistakes and I can correct them. Remember they go from a doctor who can't write and a transcriptionist who can't type....Anytime I have tests done I insist I get the results faxed to me. You can sometimes find more in our group and the net than what they know...Get strong and take charge....Good luck to you....Sue Marth

[Guest guest]

It was given to me while I was still in the hospital. I don't drink it much

though. If you are really craving the OJ you can try the sugar free tang

(not the same I know) but hey not bad either!!!

I love OJ but there is so much sugar that I try to avoid drinking empty

calories. My weakness is V-8 juice.

Candi

antibiotics

I think that I have strep throat and I am going to the doctor

tomorrow, I was wondering about taking antibiotics because they

always hurt my stomach when it was normal...anybody know anything

about this? Are there certain things that I shouldn't take...Also I

was curious about citris foods because I was told to avoid them

totally, but have read that some people drink orange juice and

pineapple juice...were these things part of your prescribed diet(for

those that drink them) and if so at what point did you drink them...I

love and miss orange juice...thanks for an input!

Hannah

open RNY

9/29/03

288/235/???

[Guest guest]

Well, I saw my OS today. He feels very strongly that I need to stay

on antibiotics for another week to prevent infection, which could

lead to bone and/or tooth loss. I feel very strongly that I should

NOT take antibiotics because I feel it's more important to feel

healthy and be able to eat nutritious foods that will keep my

healing up. Basically, I don't have permission to quit, but he

knows I am quitting and he knows it, and we're still on even

terms.

The good news is I get to take my bands off 4 hours morning and

evening. I got a tool with a hook on one end and a fork on the

other to help me place them. It came in the bag with the rubber

bands. I remember everyone else talking about buying hemostats and

stuff - do you not all get hooks, or do they not work?

Wierd moment of the week - I have regained feeling on HALF of the

roof of my mouth. It makes the right half of my mouth feel open and

loose, and the left half tight. Wierd.

Kris

[Guest guest]

Kris,

I don't know how long you've been on the anti-bios for.

Bone infection is not something to risk, it can lead to more than

tooth loss...And because of the risk of infections...from lack of

great hygiene in the mouth...and the co-relation between that and

heart disease.

Maybe you could wean yourself off them or break them up. ( i

actually used to just put it on the wound - not sure if it was a

great idea but at the time it made sense to me

I am not a big supporter of antiboitics for regular things, but

having a friend who's a geriatrician and telling me a story about a

facial bone infection and a lady that ended up in a coma due to a

severe absess infection....

If you are set on going natural then maybe including some sulphur

products like msm might be helpful?

Now I was breastfeeding and was only given ten days of anti's the

first surg. and no steriods.. However if you have to get something

checked if you suspect an infection in a couple months it would be

an x-ray...and I'd rather pollute my body with antibios than

radiation....

just a few cents.

Shiloh

[Guest guest]

> Well, I saw my OS today. He feels very strongly that I need to

stay

> on antibiotics for another week to prevent infection, which could

> lead to bone and/or tooth loss. I feel very strongly that I should

> NOT take antibiotics because I feel it's more important to feel

> healthy and be able to eat nutritious foods that will keep my

> healing up. Basically, I don't have permission to quit, but he

> knows I am quitting and he knows it, and we're still on even

> terms.

You're going off antibiotics against medical advice? That's a very

bad idea.

--Neil

[Guest guest]

I second Chief Neil's suggestion

> > Well, I saw my OS today. He feels very strongly that I need to

> stay

> > on antibiotics for another week to prevent infection, which could

> > lead to bone and/or tooth loss. I feel very strongly that I

should

> > NOT take antibiotics because I feel it's more important to feel

> > healthy and be able to eat nutritious foods that will keep my

> > healing up. Basically, I don't have permission to quit, but he

> > knows I am quitting and he knows it, and we're still on even

> > terms.

>

> You're going off antibiotics against medical advice? That's a very

> bad idea.

>

> --Neil

[Guest guest]

Let me just say I HAD an infection that developed 4 days after my

surgery because I was sent home without any antibiotics. The

infection develops extremely fast and is extremely nasty (imagine

PUSS draining into your mouth), disgusting and required very strong,

dangerous antibiotics to cure. Not to mention an extremely un-fun

squeezing and draining session with the oral surgeons. Going off

antibiotics early is what causes drug-resistant diseases and

infections that cannot be cured. Your body can develop an infection

that can survive despite treatment with antibiotics. The

antibiotics are given to prevent infection from developing because

once it happens it is alot harder to treat and is extremely

dangerous. Your face is made of soft bones which can be damaged

very quickly. I would play it on the safe side and finish them up.

If they are giving you gastrointestinal probs. there may be some

other options available to help with that. Good luck,

> Well, I saw my OS today. He feels very strongly that I need to

stay

> on antibiotics for another week to prevent infection, which could

> lead to bone and/or tooth loss. I feel very strongly that I

should

> NOT take antibiotics because I feel it's more important to feel

> healthy and be able to eat nutritious foods that will keep my

> healing up. Basically, I don't have permission to quit, but he

> knows I am quitting and he knows it, and we're still on even

> terms.

>

> The good news is I get to take my bands off 4 hours morning and

> evening. I got a tool with a hook on one end and a fork on the

> other to help me place them. It came in the bag with the rubber

> bands. I remember everyone else talking about buying hemostats

and

> stuff - do you not all get hooks, or do they not work?

>

> Wierd moment of the week - I have regained feeling on HALF of the

> roof of my mouth. It makes the right half of my mouth feel open

and

> loose, and the left half tight. Wierd.

>

> Kris