Re: Update on medical conditionbarbara

[Guest guest]

Bara\bara

i too am curious how long have you been on pred. i

have been on it since last august of 2000. my hips

hurt all the time now. dawn

--- Sandy Catalusci biglou5685@...> wrote:

> Barbara,

> You certainly have been through a lot. Are you back

> on the Metho and Enbrel

> now?

> How long have you been on Pred.

> I did not realize damage could occur so quickly.

> Please take good care of yourself.

> Hugs,

> Sandy

>

> > On Feb 16th I had a total right hip replacement

> because of arterial

> > lateral sclerosis from prolonged use of steroids.

> I came through the

> > surgery fine - however I had to be taken off my

> indictable drugs for 3

> > weeks because of possible infection from the

> injections. Because I was

> > off the methotrexate and Enbrel - I had a major

> relapse. I have had to

> > take the prednisone up to 60 mgs 3 times and am

> working my way down

> > again. In the meantime my blood pressure has

> gotten very high and had

> > to add blood pressure meds too.

> >

> > I have also developed cataracts on both eyes. I

> am scheduled for

> > removal on the right eye in July. This also

> happened very quickly and

> > my eye doc said that this is not uncommon for

> someone on steroids.

> >

> > My left hip is also giving me lots of pain and I

> will have a total left

> > hip replacement in the fall. My doc wants to make

> sure that the right

> > hip is well healed before doing the other hip. My

> right one feels so

> > good. It is pain free and I can get into the car

> without it hurting.

> >

> > I continue to work 4 morning a week at my job as

> an appointment

> > coordinator. I take Mondays off because of the

> meth. I take my

> > injections on Sunday evenings and have a terrible

> headache on Mondays.

> > I am on partial disability from my work and that

> pays 60% of my wages

> > for hours that I do not work. I am able to

> continue my health insurance

> > at work - which is a God send as I can get my RX

> for $20 each and the

> > Enbrel is $1600 - so I am glad for the RX card.

> The insurance paid

> > very well on my hip surgery too.

> >

> > My rheumy told me that I can get arterial lateral

> sclerosis in my knees

> > and shoulders - so just more information for those

> with this disease. I

> > am convinced that if the disease doesn't get us

> first - that all the

> > complications from the medicines will!!!!

> >

> > Take care of yourselves the best you can - and

> hope you are pain

> > free!!!!

> >

> > Barbara from South Dakota

> >

> > DISCLAIMER!!

> > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY

> INFORMATION THAT IS

> RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE

> CONSULT WITH YOUR DOCTOR

> BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT

> A SUBSTITUTE FOR YOUR

> PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER

> EVERYONE IS DIFFERENT AND

> TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

> >

> >

[Guest guest]

In a message dated 5/21/01 7:17:58 PM Pacific Daylight Time,

dmorgan26347@... writes:

<< Bara\bara

i too am curious how long have you been on pred. i

have been on it since last august of 2000. my hips

hurt all the time now. dawn

>>

Dawn & Barbara, I have been on Pred since May of 1998 continuously. On my

last bone density test it showed some spots on my hips. I have always had

hip problems, but have been getting worse lately. Is this just the start ?

Barbara what were your sypmtoms.? I ditto all the others..... You are my

hero too... What a great inspriation.

hugs

C

[Guest guest]

In a message dated 05/21/2001 9:18:17 PM Central Daylight Time,

dmorgan26347@... writes:

<< my hips

hurt all the time now. dawn >>

My hips, my knees, my shoulders, my elbows (which makes me CRAZY), my apine,

my feet, my Achilles tendons.

IDEMAND A NEW BODY!!! Love, Judy