Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 Carol & Rob: Great job on AboutHealth! Now all we need to do is get you an agent who has connections to Dan Rather, Barbara Walters, Oprah, and Regis and we'll be on our way!! Rob, you'll skyrocket from dime-a-dozen CFO status to rock star celebrity status as the MSA poster boy! Carol, aren't you afraid you may creating a monster?!? Sorry I missed the Boston meeting. As I told Don Summers, Terri and I had a longstanding commitment to compete in the 45th Annual Eva Peron Invitational Tango Competition in Buenos Aires. As it turned out, we came in second place. Damn MSA! Maybe next year. Looney as everybody else in Our Nation's Capital.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 Hi, The transcript of the interview with Dr. Freeman, Rob and I is now on the About Health web site. There are a few things that didn't get transcribed correctly (some of the medical terms and medication names in particular) but on the whole it's pretty readable. Here's the link: http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10 I have the tape but need written permission to get it copied, which I will work on next week. I'd like to get a few copies which we can send around to the support group leaders so anyone who is interested can see it. Carol & Rob Lexington, MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 , It's so nice to hear from you! Sorry that you didn't take a blue ribbon in the Tango Competition. Is there a special category for wheelchair dancers? Rob and I are looking for an agent and hope to make enough $$ to finance the research to find a cure for MSA. Watch out Tom Cruise, here comes Rob! It's way too late to worry about creating a monster -- he's HE-RE.... Feeling toasty in the city of beans, Carol & Rob Lexington, MA Re: Transcript of About Health Interview re MSA > Carol & Rob: > > Great job on AboutHealth! Now all we need to do is get you an agent who has > connections to Dan Rather, Barbara Walters, Oprah, and Regis and we'll be on > our way!! Rob, you'll skyrocket from dime-a-dozen CFO status to rock star > celebrity > status as the MSA poster boy! Carol, aren't you afraid you may creating a > monster?!? > > Sorry I missed the Boston meeting. As I told Don Summers, Terri and I had a > longstanding commitment to compete in the 45th Annual Eva Peron Invitational > Tango Competition in Buenos Aires. As it turned out, we came in second > place. Damn MSA! > > Maybe next year. > > Looney as everybody else in Our Nation's Capital.... > > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Carol, Thank you for providing this link to your interview. I will save it and pass it on to others who have questions about this disease. Deborah aka Tenacity Hi, The transcript of the interview with Dr. Freeman, Rob and I is now on the About Health web site. There are a few things that didn't get transcribed correctly (some of the medical terms and medication names in particular) but on the whole it's pretty readable. Here's the link: http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10 I have the tape but need written permission to get it copied, which I will work on next week. I'd like to get a few copies which we can send around to the support group leaders so anyone who is interested can see it. Carol & Rob Lexington, MA _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Carol, You and Rob did a great job! I was also pleased that you were able to throw in the neapolitan ice cream analogy! Hugs, Pam ----- Original Message ----- The transcript of the interview with Dr. Freeman, Rob and I is now on the About Health web site. http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 I've read the transcript too and unfortunately Anne is also very fond of icecream too. Don't think it will decrease the symptoms when she doesn't eat icecream anumore. Thank you for sharing this with us, it makes much easier to explain what is wrong with Anne to outsiders. Timo > Carol, You and Rob did a great job! I was also pleased that you were able > to throw in the neapolitan ice cream analogy! > > Hugs, > Pam > > > > The transcript of the interview with Dr. Freeman, Rob and I is now on the > About Health web site. > > http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Carol and Rob: I would echo Pam's comments. I was read the transcript yesterday before the DC Group meeting today. Other than providing personal views of you all and Dr. Freeman, I would say the transcript is sufficient to meet my needs as compared to having the tape. You might keep that in mind if doing the tape becomes burdensome. Thanks again for your fine work. Message: 5 Date: Sat, 22 Jun 2002 21:34:22 -0300 Subject: Re: Transcript of About Health Interview re MSA Carol, You and Rob did a great job! I was also pleased that you were able to throw in the neapolitan ice cream analogy! Hugs, Pam ----- Original Message ----- The transcript of the interview with Dr. Freeman, Rob and I is now on the About Health web site. http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10 Sennewald Charlottesville, Virginia Quote Link to comment Share on other sites More sharing options...
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