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Transcript of About Health Interview re MSA

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Carol & Rob:

Great job on AboutHealth! Now all we need to do is get you an agent who has

connections to Dan Rather, Barbara Walters, Oprah, and Regis and we'll be on

our way!! Rob, you'll skyrocket from dime-a-dozen CFO status to rock star

celebrity

status as the MSA poster boy! Carol, aren't you afraid you may creating a

monster?!?

Sorry I missed the Boston meeting. As I told Don Summers, Terri and I had a

longstanding commitment to compete in the 45th Annual Eva Peron Invitational

Tango Competition in Buenos Aires. As it turned out, we came in second

place. Damn MSA!

Maybe next year.

Looney as everybody else in Our Nation's Capital....

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Hi,

The transcript of the interview with Dr. Freeman, Rob and I is now on the About Health web site. There are a few things that didn't get transcribed correctly (some of the medical terms and medication names in particular) but on the whole it's pretty readable. Here's the link: http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10

I have the tape but need written permission to get it copied, which I will work on next week. I'd like to get a few copies which we can send around to the support group leaders so anyone who is interested can see it.

Carol & Rob

Lexington, MA

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,

It's so nice to hear from you! Sorry that you didn't take a blue ribbon in

the Tango Competition. Is there a special category for wheelchair dancers?

Rob and I are looking for an agent and hope to make enough $$ to finance the

research to find a cure for MSA. Watch out Tom Cruise, here comes Rob!

It's way too late to worry about creating a monster -- he's HE-RE....

Feeling toasty in the city of beans,

Carol & Rob

Lexington, MA

Re: Transcript of About Health Interview re MSA

> Carol & Rob:

>

> Great job on AboutHealth! Now all we need to do is get you an agent who

has

> connections to Dan Rather, Barbara Walters, Oprah, and Regis and we'll be

on

> our way!! Rob, you'll skyrocket from dime-a-dozen CFO status to rock star

> celebrity

> status as the MSA poster boy! Carol, aren't you afraid you may creating a

> monster?!?

>

> Sorry I missed the Boston meeting. As I told Don Summers, Terri and I had

a

> longstanding commitment to compete in the 45th Annual Eva Peron

Invitational

> Tango Competition in Buenos Aires. As it turned out, we came in second

> place. Damn MSA!

>

> Maybe next year.

>

> Looney as everybody else in Our Nation's Capital....

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

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Carol,

Thank you for providing this link to your interview. I will save it and

pass it on to others who have questions about this disease.

Deborah aka Tenacity

Hi,

The transcript of the interview with Dr. Freeman, Rob and I is now on the

About Health web site. There are a few things that didn't get transcribed

correctly (some of the medical terms and medication names in particular) but

on the whole it's pretty readable. Here's the link:

http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10

I have the tape but need written permission to get it copied, which I will

work on next week. I'd like to get a few copies which we can send around to

the support group leaders so anyone who is interested can see it.

Carol & Rob

Lexington, MA

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I've read the transcript too and unfortunately Anne is also very fond of

icecream too. Don't think it will decrease the symptoms when she doesn't eat

icecream anumore.

Thank you for sharing this with us, it makes much easier to explain what is

wrong with Anne to outsiders.

Timo

> Carol, You and Rob did a great job! I was also pleased that you were able

> to throw in the neapolitan ice cream analogy!

>

> Hugs,

> Pam

>

>

>

> The transcript of the interview with Dr. Freeman, Rob and I is now on the

> About Health web site.

>

> http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10

>

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Carol and Rob:

I would echo Pam's comments. I was read the transcript yesterday before

the DC Group meeting today. Other than providing personal views of you all

and Dr. Freeman, I would say the transcript is sufficient to meet my needs

as compared to having the tape. You might keep that in mind if doing the

tape becomes burdensome.

Thanks again for your fine work.

Message: 5

Date: Sat, 22 Jun 2002 21:34:22 -0300

Subject: Re: Transcript of About Health Interview re MSA

Carol, You and Rob did a great job! I was also pleased that you were able

to throw in the neapolitan ice cream analogy!

Hugs,

Pam

----- Original Message -----

The transcript of the interview with Dr. Freeman, Rob and I is now on the

About Health web site.

http://www.abouthealth.com/ahtv_related_material.cfm?Transcript_ID=10

Sennewald Charlottesville, Virginia

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