Pam - Young adults w/MSA parents/grandparents

[Guest guest]

Pam, has anyone tried a chat time for the children/grandchildren of

MSA (and related disorders) patients? I know my son asked a question

once while I was on during a chat time but I think he might be more

comfortable if it were other young people chatting. Kids today are

very used to IM and communicate that way frequently. What do you

think? What do others think about the idea?

Jan

[Guest guest]

My grandson Trey visited with the grand children of Thelma Bishop for a

while until shortly after Mr. Bishop passed away. It was good for them.

Trey has his own IM screen name.

Barb

--

"I've learned....That it's those small daily happenings that make life

so

spectacular." Anon.

[Guest guest]

My son also has his own IM screen name and I think that is how he

speaks to most of his friends. I think it would be great for all of

them.

Jan

> My grandson Trey visited with the grand children of Thelma Bishop

for a

> while until shortly after Mr. Bishop passed away. It was good for

them.

> Trey has his own IM screen name.

>

> Barb [image]

>

> --

> " I've learned....That it's those small daily happenings that make

life

> so

> spectacular. " Anon.

[Guest guest]

I think it's a great idea!

On Fri, 21 Jun 2002 20:31:40 -0000 " janburg88 " bosendorfer88@...>

writes:

> Pam, has anyone tried a chat time for the children/grandchildren of

> MSA (and related disorders) patients? I know my son asked a

> question

> once while I was on during a chat time but I think he might be more

>

> comfortable if it were other young people chatting. Kids today are

>

> very used to IM and communicate that way frequently. What do you

> think? What do others think about the idea?

> Jan

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

http://hometown.aol.com/apdaypd/young/pdkids.htm

Here you find a list for kids with parents with PD. I thought also a chat

was included.

Although I look very young, they won't let me in [)

Timo

> Pam, has anyone tried a chat time for the children/grandchildren of

> MSA (and related disorders) patients? I know my son asked a question

> once while I was on during a chat time but I think he might be more

> comfortable if it were other young people chatting. Kids today are

> very used to IM and communicate that way frequently. What do you

> think? What do others think about the idea?

> Jan

[Guest guest]

Dear Jan,

I think that would be a great idea. My daughter is 14yrs and she might find

this helpful. I would like to see how many MSA families would be interested.

Jeanie

>

>Reply-To: shydrager

>To: shydrager >

>Subject: Re: Pam - Young adults w/MSA parents/grandparents

>Date: Sat, 22 Jun 2002 16:19:03 +0200

>

>http://hometown.aol.com/apdaypd/young/pdkids.htm

>

>Here you find a list for kids with parents with PD. I thought also a chat

>was included.

>Although I look very young, they won't let me in [)

>

>Timo

>

>

>

>

>

> > Pam, has anyone tried a chat time for the children/grandchildren of

> > MSA (and related disorders) patients? I know my son asked a question

> > once while I was on during a chat time but I think he might be more

> > comfortable if it were other young people chatting. Kids today are

> > very used to IM and communicate that way frequently. What do you

> > think? What do others think about the idea?

> > Jan

>

>

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Thanks Timo, That was the one I was going to suggest as well. I mentioned

it on the list before but don't know if anyone's kids or grandkids here have

tried it. If it's not what people want then I can suggest another mailing

list and chat room be set up. I can create it but I'd want one of the

kids/young adults to run it.

Hugs,

Pam

Re: Pam - Young adults w/MSA parents/grandparents

> http://hometown.aol.com/apdaypd/young/pdkids.htm

>

> Here you find a list for kids with parents with PD. I thought also a chat

> was included.

> Although I look very young, they won't let me in [)

>

> Timo

>

>

>

>

>

> > Pam, has anyone tried a chat time for the children/grandchildren of

> > MSA (and related disorders) patients? I know my son asked a question

> > once while I was on during a chat time but I think he might be more

> > comfortable if it were other young people chatting. Kids today are

> > very used to IM and communicate that way frequently. What do you

> > think? What do others think about the idea?

> > Jan

>

>

>

>

> If you do not wish to belong to shydrager, you may

> unsubscribe by sending a blank email to

>

> shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Hi all,

You know we already have a chat room set up and most kids know how to use

chats. The room is only used about 4 hours twice a week, so why not just try

picking some times and posting them to all the interested kids? That requires

no work except for downloading some software (and kids KNOW how to do that).

Take care, Bill Werre

-------------------------------------------------------

The on's wrote:

> Dear Jan,

>

> I think that would be a great idea. My daughter is 14yrs and she might find

> this helpful. I would like to see how many MSA families would be interested.

>

> Jeanie

[Guest guest]

I didn't know it was that easy. We should think about that. What

are your thoughts Pam. Do others have a suggestion. I am going to

email my son (away for 8 wks, but went with laptop) and see if he

thinks that a certain time would be better.

Thanks Bill,

Jan

>

> > Dear Jan,

> >

> > I think that would be a great idea. My daughter is 14yrs and she

might find

> > this helpful. I would like to see how many MSA families would be

interested.

> >

> > Jeanie

[Guest guest]

We are on CST. My daughter is pretty flexible at the moment. Don't know how

much she would contribute. It depends on the age of the kids. She still

doesn't understand what the future holds since her dad is still working full

time. It may be upsetting to her. Do we have a list of children and their

ages?

Jeanie

>

>Reply-To: shydrager

>To: shydrager

>Subject: Re: Pam - Young adults w/MSA parents/grandparents

>Date: Sat, 22 Jun 2002 16:23:18 -0000

>

>I didn't know it was that easy. We should think about that. What

>are your thoughts Pam. Do others have a suggestion. I am going to

>email my son (away for 8 wks, but went with laptop) and see if he

>thinks that a certain time would be better.

>Thanks Bill,

>Jan

>

>

> >

> > > Dear Jan,

> > >

> > > I think that would be a great idea. My daughter is 14yrs and she

>might find

> > > this helpful. I would like to see how many MSA families would be

>interested.

> > >

> > > Jeanie

>

>

>If you do not wish to belong to shydrager, you may

>unsubscribe by sending a blank email to

>

>shydrager-unsubscribe

>

>

>

>

>

[Guest guest]

Timo,

You crack me up! I think this would be great for teenagers! They have

so many questions that they might feel more comfortable talking to

other teenagers about their concerns.

Belinda

> http://hometown.aol.com/apdaypd/young/pdkids.htm

>

> Here you find a list for kids with parents with PD. I thought also

a chat

> was included.

> Although I look very young, they won't let me in [)

>

> Timo

>

>

> From: " janburg88 "

>

>

> > Pam, has anyone tried a chat time for the children/grandchildren

of

> > MSA (and related disorders) patients? I know my son asked a

question

> > once while I was on during a chat time but I think he might be

more

> > comfortable if it were other young people chatting. Kids today

are

> > very used to IM and communicate that way frequently. What do you

> > think? What do others think about the idea?

> > Jan

[Guest guest]

janburg88 wrote:

I didn't know it was that easy. We should think about that. What are your thoughts Pam. Do others have a suggestion. I am going to email my son (away for 8 wks, but went with laptop) and see if he thinks that a certain time would be better. Thanks Bill,Jan > > > Dear Jan,> >> > I think that would be a great idea. My daughter is 14yrs and she might find> > this helpful. I would like to see how many MSA families would be interested.> >> > JeanieInclude me in that chat for kids. I have a 14yr and 15yr old daughter who haven't quite grasped how to talk with grandma yet about whats going on. They are on the computer most of the time that's why I missed the chat room yesterday.

Thanks Pat

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[Guest guest]

Pat,

Knowing my teens, my guess would be about 5 PM weeknights (definitely

not weekend evenings ) that is the time they usually check their email.

So Monday, Tuesday, Thursday are all open - maybe 5 PM to 8 PM EDT

allowing west coast residents to come in later.

I would guess that kids, especially young teens will have the standard

question, "How is it going to affect me personally?" which is the question

I think most kids ask.

We could also set up a chat for anyone interested that could be strictly

Q and A with a panel of experienced caregivers. Say one hour once a month

OR the first hour of the normal chats and specifically invite teens to

participate.

The chats usually start out with Q & A anyway ) and then get goofy

as everyone runs out of questions. Like comments about the old Billy

goat, and Pam going to Hell )

Take care, Bill

============================================================

pat bruner wrote:

janburg88 wrote:

I

didn't know it was that easy. We should think about that. What

are your thoughts Pam. Do others have a suggestion. I am going to

email my son (away for 8 wks, but went with laptop) and see if he

thinks that a certain time would be better.

Thanks Bill,

Jan

[Guest guest]

MAYBE WE CAN ASK THE KIDS THEMSELVES WHAT TIMES ARE BEST FOR THEM?

LOLHAHAHA

NANCY M.

[Guest guest]

I need to make this clear so that the most appropriate people for this task

can feel free to come forward... I am NOT going to be the one to organize

the Kids Chat. I will certainly help if I can, if you'd ever like me to be

on their chat for a half hour sometime to answer any questions they might

have for instance. The chat room we have is available now for anyone to

use if they wish. Parents and kids need to get together on this and decide

on times, appropriate age ranges and a structure. A parent or parents have

to come forward and lead this or it's not going to happen.

A member of this list who is a certified bereavement counsellor has

volunteered to help in some way. I guess parents and kids need to decide

what they want from these chats... just to meet other kids or do you also

want them to learn some facts about MSA or get a bit of counselling. Maybe

you want some guest speakers/chatters at their chats, maybe not. It's up to

you guys.

Hugs,

Pam

Re: Pam - Young adults w/MSA parents/grandparents

MAYBE WE CAN ASK THE KIDS THEMSELVES WHAT TIMES ARE BEST FOR THEM?

LOLHAHAHA

NANCY M.

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[Guest guest]

Hi all,

I feel exactly the same way as Pam on this. I threw out suggestions, but the

kids need to decide among themselves when they are ready and what they want.

When we first started these chats, Pam and I sat and talked to each other for a

hour sometimes before we got more. I too will serve as an experienced caregiver

panel member, and we have several people who have been through the grieving

process as well as caregivers. I too will not actually chose a time. Just stay

away from 20:00 to 01:00 GMT Sunday evening and 7:30 PM to 9:30 PM EDT (USA)

Wed evening (9:30 - 11:30 AM EST Aussie time). Any time on Saturday or Monday

is open.

The direct pre-adult children of a MSA patient WILL have changes to their life

as a result. Hopefully it will make them better for the experience.

Take care, Bill Werre

-------------------------------------------------------------

Pam Bower wrote:

> I need to make this clear so that the most appropriate people for this task

> can feel free to come forward... I am NOT going to be the one to organize

> the Kids Chat. I will certainly help if I can, if you'd ever like me to be

> on their chat for a half hour sometime to answer any questions they might

> have for instance. The chat room we have is available now for anyone to

> use if they wish. Parents and kids need to get together on this and decide

> on times, appropriate age ranges and a structure. A parent or parents have

> to come forward and lead this or it's not going to happen.

>

> A member of this list who is a certified bereavement counsellor has

> volunteered to help in some way. I guess parents and kids need to decide

> what they want from these chats... just to meet other kids or do you also

> want them to learn some facts about MSA or get a bit of counselling. Maybe

> you want some guest speakers/chatters at their chats, maybe not. It's up to

> you guys.

>

> Hugs,

> Pam