Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Hi , I am sorry, the OX is Oxygen... 2%..Deborah was at times gasping for breath. Like taking that long run and stopping and getting a large breath. this is what she was doing along with choaking.. Plus she was much more tired all the time.. but with the Oxygen at night, she choaks less and sleeps longer and doesnt gasp for air durning the day any more plus she has a little more energy. I hope this helps. Best regards, " tenacity " s man " > >To: rsetzersr@... >Subject: Fwd: walking and breathing >Date: Sat, 22 Jun 2002 09:15:47 -0400 > > >, did you answer his letter? > >Deb > > >Reply-To: shydrager >To: shydrager >Subject: walking and breathing >Date: Wed, 19 Jun 2002 08:59:22 -0400 > >: > >Again, it is always reassuring to here of similar behavior patterns in >trying to understand the impact of MSA on care givers lives and the >challenges we face together. > >Please say some more about > > " I had the Doctor give is a RX for Ox and boy, did it help. If for some >reason she forgets to use it the night before, I can tell the differance >that day.. I try to have her use it when we go to bed every night. Not >during the day unless she takes a nap. " > >What is " Ox? " Also, please describe the before and after Ox behaviors. > >I have made a little headway on freezing of the feet to the floor. I ask >her now " what do we do when we are taking tiny steps? " The question seems >to be working as a verbal cue to her to stop and restart into longer steps. > >Message: 11 > Date: Tue, 18 Jun 2002 16:10:16 -0400 > >Subject: walking and breathing > > >, >Deborah does the same thing.. and yes, you must try to stay with her pace. >quite often, I forget and the next thing I know. Wow, she is left behind >and >it scares me.. She too has breathing problems.. I had the Doctor give is a >RX for Ox and boy, did it help. If for some reason she forgets to use it >the >night before, I can tell the differance that day.. I try to have her use it >when we go to bed every night. Not during the day unless she takes a nap.. >You might try this because it sure helped Deborah... > > > " tenacity's Man " > > > > > > >To: rsetzersr@... > >Subject: Fwd: Breath Holding > >Date: Tue, 18 Jun 2002 08:27:19 -0400 > > > > > > > Sennewald Charlottesville, Virginia > > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Jerry also uses O2 everynight. We connect the tubing to the C-Pap unit and it has helped a lot. We did a check on Oxygen levels one night and without the oxygen added, his level was dropping down into the low 80's which of course would make you real tired. He is much more alert since adding O2. Jan > Hi , > > I am sorry, the OX is Oxygen... 2%..Deborah was at times gasping for breath. > Like taking that long run and stopping and getting a large breath. this is > what she was doing along with choaking.. Plus she was much more tired all > the time.. but with the Oxygen at night, she choaks less and sleeps longer > and doesnt gasp for air durning the day any more plus she has a little more > energy. > > I hope this helps. > > Best regards, > > " tenacity " s man " > > > >From: " Deborah Setzer " > >To: rsetzersr@m... > >Subject: Fwd: walking and breathing > >Date: Sat, 22 Jun 2002 09:15:47 -0400 > > > > > >, did you answer his letter? > > > >Deb > > > >From: Sennewald > >Reply-To: shydrager@y... > >To: shydrager@y... > >Subject: walking and breathing > >Date: Wed, 19 Jun 2002 08:59:22 -0400 > > > >: > > > >Again, it is always reassuring to here of similar behavior patterns in > >trying to understand the impact of MSA on care givers lives and the > >challenges we face together. > > > >Please say some more about > > > > " I had the Doctor give is a RX for Ox and boy, did it help. If for some > >reason she forgets to use it the night before, I can tell the differance > >that day.. I try to have her use it when we go to bed every night. Not > >during the day unless she takes a nap. " > > > >What is " Ox? " Also, please describe the before and after Ox behaviors. > > > >I have made a little headway on freezing of the feet to the floor. I ask > >her now " what do we do when we are taking tiny steps? " The question seems > >to be working as a verbal cue to her to stop and restart into longer steps. > > > >Message: 11 > > Date: Tue, 18 Jun 2002 16:10:16 -0400 > > From: " Setzer " > >Subject: walking and breathing > > > > > >, > >Deborah does the same thing.. and yes, you must try to stay with her pace. > >quite often, I forget and the next thing I know. Wow, she is left behind > >and > >it scares me.. She too has breathing problems.. I had the Doctor give is a > >RX for Ox and boy, did it help. If for some reason she forgets to use it > >the > >night before, I can tell the differance that day.. I try to have her use it > >when we go to bed every night. Not during the day unless she takes a nap.. > >You might try this because it sure helped Deborah... > > > > > > " tenacity's Man " > > > > > > > > >From: " Deborah Setzer " > > >To: rsetzersr@m... > > >Subject: Fwd: Breath Holding > > >Date: Tue, 18 Jun 2002 08:27:19 -0400 > > > > > > > > > > > > Sennewald Charlottesville, Virginia 434-244- 0018 > > > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Greetings , Has Deborah been tested for sleep disorders? Please consider requesting a sleep study if that has not been done. It is especially important to have a sleep specialist involved. Most labs can handle standard sleep problems, but MSA patients do not present standard sleep problems. With MSA obstructive sleep apnea is not unusual. Even central sleep apnea seems (I can not point to any studies, just based on input from this group) to occur more frequently than in the rest of the population. It is VERY rare in the normal population, but sleep studies in this group seem to show central sleep apnea is not all that unusual. And it correlates well with her sleep and waking breathing problems. If she has not had a sleep study, the Oxygen may only mask underlying problem, which will only get worse if untreated. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
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