thought I would add my 2 cents worth

June 22, 2002

First of all, thank you Carol and Rob for the transcript of your interview. It

made me proud of you both. Even though we have never met face to face, I feel

apart of you through this group and it added to my pride. Next, Fisher,

thanks for explaining sleep disorder and the meds so well. If ever needed, I

have printed this out to take to my physician. Vera and Belinda I do appreciate

you both and your sweetness and humor. I am a single mother of a 13 year old

son. I have three grown children also. This illness is harder for him than for

me I tink. We joke about the falls and stumbles I have around the house. We joke

about the lack of being able to put the right words in sentences at times. There

have been times when i say the wrong thing and we just crack up laughing.

Laughter helps so much. But I know that he has no one to talk about what is

happening to his 48 year old Mom, who 2 years ago was very active in sports and

things to what I am now. I am seriously thinking of having him go to a counselor

, hoping that will help. He's not too keen on the idea. I did ask him if a chat

session was formed for kids if he would participate and he said sure but no

through e-mail, just a chat session type. I agree with Pam the kids will

probally know more chat places than we do and just how to go about using them.

Jim, my son, spends his time either on the phone or on MSN Messenger withhis

friends. So chatting with other kids is what he does best. Just thought I would

add my 2 cents worth. Sorry it was so windy. Meg

__________________________________________________________________

Your favorite stores, helpful shopping tools and great gift ideas. Experience

the convenience of buying online with Shop@Netscape!

http://shopnow.netscape.com/

Get your own FREE, personal Netscape Mail account today at

http://webmail.netscape.com/

June 22, 2002

Hi Meg,

I guess there are more kids out there than I thought. Our 17 yr old

is our youngest and only one living home. It is different for him

because he deals with MSA on a daily basis. The others come to visit

with their Dad and then they leave. I know how hard it is for

children living in the home with this disease. I hope by the

beginning of the school year we can have a chat time for the young

people. They are all so used to " chatting " whereas it took me a

while to get the hang of all the conversations going at the same

time. Take care and know that we are all here for you. Won't it be

nice if the kids can be there for one another as well.

Hugs, Jan (in the State of Fire, Arizona)

> First of all, thank you Carol and Rob for the transcript of your

interview. It made me proud of you both. Even though we have never

met face to face, I feel apart of you through this group and it added

to my pride. Next, Fisher, thanks for explaining sleep disorder

and the meds so well. If ever needed, I have printed this out to take

to my physician. Vera and Belinda I do appreciate you both and your

sweetness and humor. I am a single mother of a 13 year old son. I

have three grown children also. This illness is harder for him than

for me I tink. We joke about the falls and stumbles I have around the

house. We joke about the lack of being able to put the right words in

sentences at times. There have been times when i say the wrong thing

and we just crack up laughing. Laughter helps so much. But I know

that he has no one to talk about what is happening to his 48 year old

Mom, who 2 years ago was very active in sports and things to what I

am now. I am seriously thinking of having him go to a counselor ,

hoping that will help. He's not too keen on the idea. I did ask him

if a chat session was formed for kids if he would participate and he

said sure but no through e-mail, just a chat session type. I agree

with Pam the kids will probally know more chat places than we do and

just how to go about using them. Jim, my son, spends his time either

on the phone or on MSN Messenger withhis friends. So chatting with

other kids is what he does best. Just thought I would add my 2 cents

worth. Sorry it was so windy. Meg

>

> __________________________________________________________________

> Your favorite stores, helpful shopping tools and great gift ideas.

Experience the convenience of buying online with Shop@Netscape!

http://shopnow.netscape.com/

>

> Get your own FREE, personal Netscape Mail account today at

http://webmail.netscape.com/

June 24, 2002

Meg,

You are a wonderful blessing to this group. Everyone here will be

here for you whenever we can be. There is always going to be someone

here who knows something about something. I wish for you many

blessing the rest of your life. I am so glad that your son will be

part of the chat for kids!

God bless,

Belinda