Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Sorry if I never answered this question before. As far as I know recruiting should take place at least until sometime next year and possibly longer. The study is expected to start in 2003 provided that the NIH funding application is approved. Regards, Pam Re: MSA RESEARCH STUDY > -Dear Pam: I can understand why dr. shults wants study participants > with " probable " dxs. However, since I'm really struggling to get some > clarification within the next couple months (and it may happen) i'd > like to know how the study will be recruiting participants. Even if > no therapeutic interventions come out of this study, I know that > natural history studies are invaluable and utterly critical. Thanks, > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2002 Report Share Posted October 3, 2002 Yes, October 1st was the deadline for submitting the proposal requesting funding for this study to the NIH. It will now be several months before we know whether the funding will come through. There are now 11 study centers proposed as follows: Boston University, Boston, MA University of Rochester, Rochester, NY University of Pennsylvania, Philadelphia, PA University of land, Baltimore, MD University of Virginia, Charlottesville, VA Baylor College of Medicine, Houston, TX University Hospitals of Cleveland, Cleveland, OH University of Michigan, Ann Arbor, MI Mayo Clinic, Rochester, MN Parkinson's Institute, Sunnyvale, CA University of California San Diego, San Diego, CA Regards, Pam RE: Research Study > Regarding the message below from Cliff Shults: > > Many of us may have already received a call from him, but we applied for > the study and Dr. Shults called last week to let us know that the Grant > Proposal is at the NIH right now, and they hope to begin the study in the > summer of 2003. They have also added another testing site at Baylor > Medical in Houston, TX, which is great news for us, and hopefully will > encourage some more folks in our region to apply for the study. > > Maciejewski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2002 Report Share Posted October 3, 2002 WOW I SEE UH IN CLEVELAND TOO! MY HOMETOWN. THANKS TO WHOEVER ARRANGED THAT ADDITION. NANCY M. Pam Bower wrote: > > Yes, October 1st was the deadline for submitting the proposal requesting > funding for this study to the NIH. It will now be several months before we > know whether the funding will come through. There are now 11 study centers > proposed as follows: > > Boston University, Boston, MA > University of Rochester, Rochester, NY > University of Pennsylvania, Philadelphia, PA > University of land, Baltimore, MD > University of Virginia, Charlottesville, VA > Baylor College of Medicine, Houston, TX > University Hospitals of Cleveland, Cleveland, OH > University of Michigan, Ann Arbor, MI > Mayo Clinic, Rochester, MN > Parkinson's Institute, Sunnyvale, CA > University of California San Diego, San Diego, CA > > Regards, > Pam > > RE: Research Study > > > Regarding the message below from Cliff Shults: > > > > Many of us may have already received a call from him, but we applied for > > the study and Dr. Shults called last week to let us know that the Grant > > Proposal is at the NIH right now, and they hope to begin the study in the > > summer of 2003. They have also added another testing site at Baylor > > Medical in Houston, TX, which is great news for us, and hopefully will > > encourage some more folks in our region to apply for the study. > > > > Maciejewski > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
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