Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Please check out Ron Ritch's site on neurodegenerative disorders. He's put alot of work into gathering information. http://pspinformation.com Regards, Pam Re: Digest Number 1486 > This is my first message to the group. My wife passed away in December from > PSP after a long period ending in a nursing home. My research suggested > quite early that trying to increase the amount of glutathione the liver > produced would be one of the paths we should proceed in trying to slow the > progression of the disease. I still think it is one of the best paths with > PSP and it may be the same with MSA. > > This can be done best by adding N-Acetyl-cysteine or cysteine to the diet. > These are amino acids used by the liver to create glutathione. NAC is also a > sustance that helps dry up the mucus in the throat. My website at > http://pspinformation.com has some of the information I've uncovered. > Especially interesting is a study from the University of Florida on the use > of NAC with neurogical diseases. > > I think glutamine, creatine and lecithin have uses too. NAC needs the B > vitamins, vitamin C and selenium to be effective. Magnesium also may be > useful. > > What someone who is taking NAC or cysteine doesn't need is tylenol. Tylenol > and NAC work against each other. Tylenol poisoning from an overdose stops > the liver from creating glutathione and if an antidote isn't given soon > enough the patient's liver fails and the patient dies. > > But is tylenol dangerous in small doses? I don't think anyone knows for sure > but since tylenol works against the production of glutathione and if not > enough glutathione is being produced and there is an alternative to tylenol > that could be used in its place - why take the chance? > > With PSP the main thing we can do is to try to slow the progression of the > disease. Most drugs normally used to treat Alzheimer's or Parkinson's appear > to do more harm than good. They all treat symptoms and none slow or cure the > disease. In many cases they introduce new symptoms or side-effects of their > own. In most cases the best course of treatment is loving care, good > nutrition, the best quality of life possible. patience and a very watchful > eye on the prescription and over-the-counter medications given. > > PSPInformation.com also covers other conditions besides PSP. I think good > arguments could be made that diseases such as PSP, MSA, etc; are variations > of some greater disease that so far is unnamed. If a name was used to cover > the " family " of diseases instead of the present individual branches, we > would be a much bigger group and be able to get more funding for research. > But now we are splintered into small groups and really have little clout. > > You are welcome to visit our website and to contribute information. If you > have any ideas how we can be of use to you please let me know. > > > > Ron Ritch > Charlotte NC > Quote Link to comment Share on other sites More sharing options...
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