Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Hello Gillian: Oh, how I know what you mean. Bill will admit to feeling woozy, having problems eating, right hand tremors, etc. BUT he won't admit to the " toilet problem. " It took a syncope while he was standing at the toilet to get him to sit down when his bp is low. Neurologist told him the bp goes down when he empties his bladder. Hence his passing out that time. Sometimes, he forgets. I bought some antibacterial wipes, and asked him to clean up afterwards. Sometimes he remembers, sometimes he doesn't. I also think with this disease, they lose some olfatory ability. 1) I bought a small bath mat that I keep over the tub. Wash it every two days. 2) Periodically, throw out boxer shorts. 3) Let friends know that the best gift are pajamas. Therefore, I lay out a new pair every so often. 4) Bought a plastic " urinal " which he keeps near the bed. I told him this was to avoid tripping over in the dark. Above all, I worried when he wouldn't drink water because he didn't want to have to be going to the bathroom. When I read the research about water raising the bp, then he was convinced. Bladder control seems very important for the male psyche. Okay, guys. I know I am going out on a limb on this one. But, I do believe women handle loss of bladder control a lot better. Notice the TV commercials for incontinence products, they are for women. Aida __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Aida, It's nice to hear from you. It seems like it's been a while. Rob is coping with the transition to Depends on occasion. He's had a few " accidents " , mostly in the car when I can't get to a rest area quickly enough. That was enough to realize that wearing Depends isn't as bad as having wet pants. He also has problems at night, but they're a little different from the others I've seen mentioned. He simply doesn't wake up when he needs to go. At least not always. The result is a wet bed, so we've started to use Depends at night all the time. I agree that women adapt to these things better. Not to be graphic, but we're kind of used to having to wear pads and stuff to catch things. Thanks for sharing all this. It makes it easier to know others are struggling too. Carol & Rob Lexington, MA Toilet Problems > Hello Gillian: > > > Oh, how I know what you mean. Bill will admit to > feeling woozy, having problems eating, right hand > tremors, etc. BUT he won't admit to the " toilet > problem. " It took a syncope while he was standing at > the toilet to get him to sit down when his bp is low. > Neurologist told him the bp goes down when he empties > his bladder. Hence his passing out that time. > Sometimes, he forgets. I bought some antibacterial > wipes, and asked him to clean up afterwards. Sometimes > he remembers, sometimes he doesn't. I also think with > this disease, they lose some olfatory ability. > > 1) I bought a small bath mat that I keep over the tub. > Wash it every two days. > 2) Periodically, throw out boxer shorts. > 3) Let friends know that the best gift are pajamas. > Therefore, I lay out a new pair every so often. > 4) Bought a plastic " urinal " which he keeps near the > bed. I told him this was to avoid tripping over in > the dark. > > Above all, I worried when he wouldn't drink water > because he didn't want to have to be going to the > bathroom. When I read the research about water raising > the bp, then he was convinced. > > Bladder control seems very important for the male > psyche. Okay, guys. I know I am going out on a limb on > this one. But, I do believe women handle loss of > bladder control a lot better. Notice the TV > commercials for incontinence products, they are for > women. > > Aida > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 - Hi Carol and others writing on this subject. and I joined the group in 2001 after was Dx. in 1999 with Shydrager..MSA. Pretty much just been reading the past year..Have taken on couple big projects when this all started with the thought of being where we want to be when and how this would progress. This response is regarding the bladder problem. started learning how to catherize about the same time of the third Dx. I am also a RN so have been able to encourage as well as do some pt. teaching along the way...to us both I should add..:>) We pretty much have decide what ever does come down the pike with this it is not a woman thing or a man thing...but MSA thing. So the bladder and bowel problems are so much easier to handle for both of us. We also, look and easily find the humor in as much as we can..Even wet beds!!! how about that. Anyway, at the present time has added to the catheter, protective underware with the max protection. We also found a new product couple months ago called Depend Boost liners. Those are great as you can put one inside the protective underware and gives extra protection...hense...why they are called boost.. They are great to add to the underware at night.We have only been able to find Boost at Walmart. The underware is CVS brand and fits nicely. He still does use the cath. As the bladder as we know does not empty much on it's own, so when he caths then has longer dry period...for lack of a better way to say it. We were at the urologist yesterday and have decided to try the condom Catheter. Dr. feels this would work well if we get the right kind. He knows we are on this support group and suggested we ask you all for suggestions as that would be the best way to get the best product or where to find the best one. So can any of you help us out there? Would like to get one this week to try. We will let you know how well we do with this after we select one. Know there is a lot of trial and error with so many things..so with your help you could save us much error...how about that for confidence in this group.. It has been awhile since I posted on here. So doing this as a reply as I was not sure how to start a new email..yup need help there too. Plus would like to know how to send a picture to the group. Judy and Mark Whittaker were also friends we met via here and become good friends with. Judy has since moved back to Ohio, and we miss her and the dogs. We have three Bicons...We call them the Beach Babies...CiCi, Sands and Shell...because we live near the beach. Anyway, have some pictures of our last get together with Judy and poodles and our Bichons before she left and would try to send to the list if I can figure that out. The main question from this email...is Condom Catheters...so please let us hear from anyone regarding those. Thanks... and Hanson...Hilton Head Island, S.C. - In shydrager@y..., " Carol Langer " wrote: > Aida, > > It's nice to hear from you. It seems like it's been a while. > > Rob is coping with the transition to Depends on occasion. He's had a few > " accidents " , mostly in the car when I can't get to a rest area quickly > enough. That was enough to realize that wearing Depends isn't as bad as > having wet pants. > > He also has problems at night, but they're a little different from the > others I've seen mentioned. He simply doesn't wake up when he needs to go. > At least not always. The result is a wet bed, so we've started to use > Depends at night all the time. > > I agree that women adapt to these things better. Not to be graphic, but > we're kind of used to having to wear pads and stuff to catch things. > > Thanks for sharing all this. It makes it easier to know others are > struggling too. > > Carol & Rob > Lexington, MA > Toilet Problems > > > > Hello Gillian: > > > > > > Oh, how I know what you mean. Bill will admit to > > feeling woozy, having problems eating, right hand > > tremors, etc. BUT he won't admit to the " toilet > > problem. " It took a syncope while he was standing at > > the toilet to get him to sit down when his bp is low. > > Neurologist told him the bp goes down when he empties > > his bladder. Hence his passing out that time. > > Sometimes, he forgets. I bought some antibacterial > > wipes, and asked him to clean up afterwards. Sometimes > > he remembers, sometimes he doesn't. I also think with > > this disease, they lose some olfatory ability. > > > > 1) I bought a small bath mat that I keep over the tub. > > Wash it every two days. > > 2) Periodically, throw out boxer shorts. > > 3) Let friends know that the best gift are pajamas. > > Therefore, I lay out a new pair every so often. > > 4) Bought a plastic " urinal " which he keeps near the > > bed. I told him this was to avoid tripping over in > > the dark. > > > > Above all, I worried when he wouldn't drink water > > because he didn't want to have to be going to the > > bathroom. When I read the research about water raising > > the bp, then he was convinced. > > > > Bladder control seems very important for the male > > psyche. Okay, guys. I know I am going out on a limb on > > this one. But, I do believe women handle loss of > > bladder control a lot better. Notice the TV > > commercials for incontinence products, they are for > > women. > > > > Aida > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 & , Sorry, I can't help on the condom catheter question but I did want to add one thing. Rob has been seen by a urologist and has had his bladder scanned to see if he was emptying completely. So far the scans have indicated that he is, so the urologist does not see the need for him to cath at this time. Incomplete emptying is very common in MSA and is a source of infection, so I didn't want anyone to think that we were overlooking that as a possibility and just going to Depends. Carol & Rob Lexington, MA Toilet Problems > > > > > > > Hello Gillian: > > > > > > > > > Oh, how I know what you mean. Bill will admit to > > > feeling woozy, having problems eating, right hand > > > tremors, etc. BUT he won't admit to the " toilet > > > problem. " It took a syncope while he was standing at > > > the toilet to get him to sit down when his bp is low. > > > Neurologist told him the bp goes down when he empties > > > his bladder. Hence his passing out that time. > > > Sometimes, he forgets. I bought some antibacterial > > > wipes, and asked him to clean up afterwards. Sometimes > > > he remembers, sometimes he doesn't. I also think with > > > this disease, they lose some olfatory ability. > > > > > > 1) I bought a small bath mat that I keep over the tub. > > > Wash it every two days. > > > 2) Periodically, throw out boxer shorts. > > > 3) Let friends know that the best gift are pajamas. > > > Therefore, I lay out a new pair every so often. > > > 4) Bought a plastic " urinal " which he keeps near the > > > bed. I told him this was to avoid tripping over in > > > the dark. > > > > > > Above all, I worried when he wouldn't drink water > > > because he didn't want to have to be going to the > > > bathroom. When I read the research about water raising > > > the bp, then he was convinced. > > > > > > Bladder control seems very important for the male > > > psyche. Okay, guys. I know I am going out on a limb on > > > this one. But, I do believe women handle loss of > > > bladder control a lot better. Notice the TV > > > commercials for incontinence products, they are for > > > women. > > > > > > Aida > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
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