Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Last year when I was at the Mayo Clinic in Rochester, I saw a neuro opthomologist about my eyes. I have extreme sensitivity to light. He told me that my pupils don't react as they should(an autonomic function.) They stay dialated most of the time. It is like the dialation they do for eye exams. Needless to say because of this, I not only can't see in the light but my eyes don't focus well on things. I do wear dark glasses almost all the time. I have always been an avid reader and now I can't read at all any more. My son, Jim reads things to me. He read me Harry Potter last winter. The doctor told me the sun without the dark glasses could eventually ruin my retinas. However, if I continue to wear the glasses and a wide hat my eys will stay this way but I will not go totally blind. That is what I was worried about. Another thing I wanted to comment on was the runny nose. Does anyone have a stuffed nose all the time. Especially in the morning or heavy mucus in the back of the throat. Sometimes it is hard to swallow the mucus. It takes me several hours to completely clear this out. I have never had allergies before. At first I thought that these symptoms were allergies but maybe not. My father has late stage parkinson's and his nose runs constantly. It is at the point where he doesn't have enough muscle to blow his nose any more. Meg __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/ Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Hi Meg, Anne got the same problem with her eyes. She also wears dark glasses. She is doubting she will going to wear the sjogrenglasses. Those glasses are also covered on the sides. Her eyeproblem was one of the reasons why she was Dx-ed with PAF instead of MSA. Reading she is still able too. Focusing is causing troubles, exspecially when we are out for new glasses. LOL Timo > Last year when I was at the Mayo Clinic in Rochester, I saw a neuro opthomologist about my eyes. I have extreme sensitivity to light. He told me that my pupils don't react as they should(an autonomic function.) They stay dialated most of the time. It is like the dialation they do for eye exams. Needless to say because of this, I not only can't see in the light but my eyes don't focus well on things. I do wear dark glasses almost all the time. I have always been an avid reader and now I can't read at all any more. My son, Jim reads things to me. He read me Harry Potter last winter. The doctor told me the sun without the dark glasses could eventually ruin my retinas. However, if I continue to wear the glasses and a wide hat my eys will stay this way but I will not go totally blind. That is what I was worried about. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Greetings! You mentioned problems with reading. Boy do I understand. Consider using Books on Tape or CD. It is a good alternative. And yes, I also have the heavy mucus in the morning. Keep hydrated. 64 fluid ounces per day. It still occurs for me, but tends to not be as thick. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Bob has trouble "tracking." In other words, moving his eyes from left to right, up to down, so can't read much at all. His eyes (and thus, his head) seem to stay focused on one thing and it is so hard for him to turn his head in the direction he's going because it is so difficult to turn his eyes. We haven't had a complete eye exam for a little while now, but at the last one his vision was actually good - it's just the neurological thing. One exercise is to give him a flashlight and have him follow the light that I shine with the flashlight in my hand. He can do this - we really need to spend more time on this type of exercise. Elaine Grimmesey Quote Link to comment Share on other sites More sharing options...
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