Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Hi Chuck, Welcome to the group! Sorry to hear that you have RP but glad you found us. You might go to the group and look there are several links etc. that you can check out. Keep posting and you will get more information than you want I am sure. There are several here who are very well informed on the subject of RP. Please tell us a little about you. We are like one big family here. We all care and that is why this is the greatest group of people you will ever meet! Lots of Love Glenda diagnosed 4-30-2001 Hi everyone I was diangosed last month so as many of you may know i have many questions. i am very concerned for the future. does anyone at any time use the chat room???? i would like to talk to people in there. anyone who has info on RP please foward it to me right now i am an information junkie, and need to learn all i can about this disease. thank you...Chuck Heath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 i am 40 years old,just recently diagnosed with RP. initially i was very very scared but the DR. put alot of my fears to rest with a well talked out consultation. i am today at 2:30 going for a bone density scan because he prescribed (PREDISNONE) TO COMBAT THE FLARE-UPS I will be in the chat rooms as much as i can so i guess i will see you all there and we can share some information and thaughts. thanks for the quick replys from everyone i really really appreciate them.....chuck heath Quote Link to comment Share on other sites More sharing options...
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