Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 Winifred, I could not find a reference to the " Circle of Hope " membership in those emails. However, that is the new website term for donations to the National SDS/MSA Support Group. The SDS/MSA group just opened it's revised website yesterday and is much more user friendly now. I am not sure where they got the terminology " Circle of Hope " as a title but it is being used by another disease oriented group. On this list, it probably means the SDS/MSA National support group's website and fundraising work. Not what you find in search engines. Take care, Bill Werre ======================================= bill and win wrote: > Will you explain about the " circle of hope " membership etc. winifred card Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2002 Report Share Posted June 28, 2002 Will you explain about the " circle of hope " membership etc. winifred card Re: MSA Conference - What to do in Denver? > , > > We have found that taking the first step to meeting other patients is the > hardest. Three years ago, my wife and I met and Terri Moller at a small > park (playground) which was convenient for both of us. has MSA as did > my wife (who died after fighting it for 12 years). Last weekend we met at > the Moller's home and had 14 people there, all involved in a brain disorder > or care for a patient. I'm glad you are going to get a chance to meet other > people, it helped us. I met Dr. on and a few others at Boston and he > is a very knowledgeable doctor as well as a very nice man. > > Sorry that you did not get to DC, I live 20 miles west of there, but did not > get to that conference myself. I have been to Denver (last time was 1995 > however) so some things to do there - Red Rock Canyon is a few miles west off > I-70 - free and pretty; driving up into the mountains west of the city and > following the ridge north is an old mining town and Buffalo Bill's grave is > very close to Golden. There is the Coors Brewery in Golden. At that time > the El Rancho Restaurant (at the Evergreen exit of I-70) west of Denver about > 20 minutes was great - anybody know if it is still good? The drive from > Denver to Colorado Springs (Air Force Academy and Pike's Peak) is nice and > you may want to detour one way to take that in. For more info try either > mapquest.com or yahoo.com for things to do there. Rocky Mountain Nat'l Park > is a long days drive (up and back) north at Este's Park, but a pretty drive. > Motels outside of Denver especially east are much cheaper, just as they are > in the DC area. > > Take care, Bill Werre > > -------------------------------- > > pulalupu wrote: > > > Well, did the subject line get your attention? > > > > While admittedly not necessarily looking foward to attending the > > conference, I am looking foward to meeting as many of you as I can in > > Denver. It's not that I don't like to learn... I've been " in > > school " more years of my life than not. And I usually like to > > broaden my horizons and take challenges head on... It's just... > > well... this stuff is not fun, and what I read of it doing to some > > of your spouses... But, guess my wife could just as easily be on > > here writing. > > > > Back to the seminar... I was going to go to the NDRF conference in > > DC, but between airfare and hotel, it the price became prohibitive. > > Plus, with the bite this disease has caused on income and > > actual " productive " time I have, I opted to go to the MSA conference > > in Denver. > > > > Denver is within driving distance (with my wife's help - of course). > > > > Plus, Dr. on is speaking there as well. > > > > As Dr. Low is my Mayo neurologist, I'm already familiar with him and > > some of his views. > > > > The only other one speaking in DC that I really wanted to see there > > was Dr. Grubb. But, I can read his book (or have it read to me?), > > and then go on from there. > > > > Anyway, Denver really sounds great! Speakers look great - and I > > can't believe there is no charge! > > > > We plan on spending some of that money on some fun times for our > > family in the Denver area. Anyone have suggestions? I have 3 young > > girls - 11, 7, and 6. While I'd love to do everything with them - my > > tolerance/energy level often proves low - plus, they'll need some > > stuff to do while I'm in the conference. > > > > Thanks in advance - and thanks again - to all - if for nothing else - > > than just for being there! > > > > - the Okie on the Grand (Northeastern OK) Pond > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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