Re: Judy O/MTX

[Guest guest]

Judy

I am on 20mg of Methotrexate and 100mg of Cyclosporin. Having said that I

don't really have a problem with nausia, I have just spent all day feeling

really awful! I took my mtx this morning and haven't had much to eat so I

think that's made it worse. Are you taking folic acid? How long have you

been on the mtx? I hope it settles down for you soon. There's not much we

can do on these awful days but wait until it passes. The illness is bad

enough without these dreadful side effects!

Take care

Anne

>From: JOstry93@...

>Reply-To: Rpolychondritis

>To: Rpolychondritis

>Subject: Re: Lurkers!/Judy O

>Date: Fri, 1 Jun 2001 14:19:08 EDT

>

>In a message dated 05/29/2001 5:17:21 PM Central Daylight Time,

>colmananne@... writes:

>

><< I hope the reduction in the MTX helps a bit. Let me know how

> you get on and I'll do the same. >>

>Anne, how to explain. I am actually absolutely fine on chemo day (split

>the

>dose to half in the AM and the other half PM) that is working great. My

>problem is still the day after - that truck just keeps racing up and down

>my

>street and I can't get out of its way! I am totally non-functional the day

>after! Too weak to do anything. Of course, I MAKE myself get up and

>showered

>and dressed (and if I'm really being stupid, I try to do my hair) by which

>time I fall over on the bed I just made and pass out for a couple of hours.

>When I wake us, it's still the same - totally wiped! However, Thursday's

>are

>getting better - still tired, but I can function (so long as I don't push

>it

>too far) So definite improvement, now only writing off one day a week

>(Wednesday) and that beats the heck out of three! So definitely better.

>

>Where did you get your constitution? Can I get one? I can generally

>overcome pretty much anything thru sheer stubbornness ( R said to call

>it " determination " ) but honestly, it's stubbornness! But I can'tpush my

>way

>thru Wednesdays. Who knows? That may improve too, at least I am sure

>hoping

>it does! How much Metho do you take? I was fine on 10 mg, it's only since

>it's 20 mg that I'm having probs, and going to the 17.5 mg didn't do much,

>so

>I guess I just have to live with it! It's only one day, could be worse,

>right? Take care, Love, Judy

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