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Liz

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Hi,

Thanks for keeping us posted on your adventures. It's so neat to read

your messages. Bet you are glad the family has Poms instead of 4

German Shepards. Can just picture you walking down the street with

these 4 little dogs on leashes getting all tangled up. Must be a

challange. I used to try and walk my cat on a leash and he would lay

down flat on the ground, turn a sumersault and be out of the leash

before I could grab him. I finally decided to heck with that.

Take care. Love, Marilyn

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In a message dated 06/01/2001 7:13:53 PM Central Daylight Time,

susuw@... writes:

<< Thank you for such a photogenic description of your safari. I feel

like we went along with you! : >>

Liz, have you ever thought of writing? Your descriptions are so vivid, it's

as if we are all there with you! Not everyone can do that, you know. I'm

just grateful to be able to share them! Do you keep a journal? Might be a

book in there! Love,Judy O

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Hi Liz,

Hope tomorrow will be a better day for you. I'll be thinking about

you and hope your voice is ok. A day in bed sounds like a winner. One

time I asked my doctor for a script for 1 mg pred. and he said " oh,

you can easily go from 5 mgs a day to nothing " . What a kook, huh? I

probably won't have to worry anymore about the 1 mg pills. Think I'l

stuck on my present dose for some time. Are you taking anything else

for the RP? Take care. Love, Marilyn

Hello all - I get purpura all the time on my arms, I

> thought it was from the pred, but a dermatologist told

> me it was more likely from the condition. I went to

> the site to vote, but it said my membership was

> " pending " and that I haven't yet been approved???

> So I didn't vote either.

>

> I have been down to 5mg pred for a couple of weeks,

> and thought well lets go all the way. Unfortunately I

> have no 1mg tablets, so I knock off the five

> yesterday, and thought wow, first pred free day for 14

> months!! Today my back was so painful, my thumbs also,

> and various other parts of my anatomy. So I thought,

> well I will take a Celebrex, maybe that will help.

> Then my voice went totally croaky, so now I have

> popped 5mg pred, am going to bed, and hoping it will

> be OK tomorrow. Reem told me off, and said I should

> know better, she is right, I should!!! Hope everyone

> is as well, love Liz

>

> __________________________________________________

>

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Liz, I did that same thing once.... and only once...!! Boy we really must

learn to use those 1mg preds. My one dr said I didn't need them until I was

down to 10mg, but the other told me after 15mg. I started using them at 20mg

and am now down to 13mg, well....tomorrow I will try 12mg. So far so good.

Hope your day in bed made you feel better. Know I'm thinking about you.

hugs

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