Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Hi All, I am re posting an old post from Heidi. I know she would send it if she were able to. This is to all the newbies and will give you some info. We can also pretend that Heidi is still posting. lOL C I would like to first give a " Herzlich Willkommen " to all our new members here. Please let us know a little about your self. You found the greatest group there is. You will learn so much more here then even your Drs. know maybe. Let me tell you about our group here. We have a get together coming up in Sept. That is our very first time ever. The meeting will be here in Tulsa, Okla. over labor day week end. I would like to envied you to it. I will post the Hotel information after this post again. Please think about it . We also have a mailing list with everyone's Home address and Phone # and E mail address on it. I sure would love to add you to that one too. All I need from you is your Full name with home address and Phone #, Plus your email addr. Also if you like your birthday you do not have to give us the year. I would then send you a copy of the list. Believe me it is nice to have. There is only one catch to this . You may NOT give out the information on the list to anyone out site this group. Now some more good news about that group . We are also building a Foundation and for a 15 $ year contribution you can become a member. You will receive a news letter with very good information . Your 15 $ will help our goal to educated the Drs. and the world about RP. And for research what we all want so badly. We also have a Angel list to help the ones that can not afford the 15 $ at this time. You will hear more about the foundation from our Membership chair person . So wont you please think about all this. Quote Link to comment Share on other sites More sharing options...
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