Re: [Rpolychondritisclaudia c

[Guest guest]

hi claudia

thanks, thats good news, maybe this will go away.

someone else suggested it might be the folic acid.

care to comment. dawn

--- RCColloran@... wrote:

> In a message dated 6/4/01 5:07:23 PM Pacific

> Daylight Time,

> dmorgan26347@... writes:

>

> << I itch,

> like crazy, keep my self a wake scraching, i do

> not

> have a rash, just the itching. does anyone else

> do

> this????????????????????????? haven't heard that

> any

> one does. just curious. dawn >>

> Dawn, when I was on metho the same thing happened to

> me.. It only lasted a

> few weeks though and then went away. Almost forgot

> about it til you

> mentioned it.

>

> Glad to hear that you are doing so well on it.. that

> is great news.

>

> hugs

> C

>

__________________________________________________

[Guest guest]

Dawn, I never had any problems with the folic acid. Well, I started the metho

and folic acid at the same time so it could be... never even thought of it.

Like I said, mine just went away. But I know the itching can drive you

crazy. Let me know what you find out.

hugs

[Guest guest]

In a message dated 6/5/01 12:26:00 PM Pacific Daylight Time,

dmorgan26347@... writes:

<< how are you feeling, are you doing any

better. dawn >>

Dawn, I think I am... I think the Biaxin is helping. So far so good. Knock

on wood! LOL

My feet were bad yesterday, don't know why. If I could just get them to

behave I think I'd have it made. LOL The RP has been behaving. I've lowered

my pred to 13mg and am not on anything else. Seems to be working so far.

Hope it continues.

I'm happy for just one good day at a time and they seem to be coming in

groups of days and not just one here and there. So, I have nothing to

complain about today. LOL Ask me tomorrow!!!! LOL

Hope you are doing better. Thinking of you and hoping you get things under

control.

Have a great day.

hugs

[Guest guest]

claudia

will do. how are you feeling, are you doing any

better. dawn

--- RCColloran@... wrote:

> Dawn, I never had any problems with the folic acid.

> Well, I started the metho

> and folic acid at the same time so it could be...

> never even thought of it.

> Like I said, mine just went away. But I know the

> itching can drive you

> crazy. Let me know what you find out.

>

> hugs

>

>

__________________________________________________

[Guest guest]

In a message dated 6/5/01 7:39:08 PM Pacific Daylight Time,

dmorgan26347@... writes:

<< Sometimes I get sick of being sick. >>

Dawn, I know what you mean... For over 10 years I've said the same thing.

Hopefully we can find a cure for all that ails us. LOL

Keep your fingers crossed and toes, i'm hoping to make it down lower on the

pred. Know It will take time, but oh how I' d love to be off of it. Guess

we all would. I'm just thankful for one good day at a time.

We might go to the beach tomorrow. Hope so. Love the ocean. I'll be

thinking of you all if I get there.

Dawn, you take care and let me know how you are doing...

hugs

[Guest guest]

claudia

Wow i am so happy for you, down to 13 mg of pred and

nothing else. Makes me envious but happy for you too.

Sometimes I get sick of being sick. I know thats

crazy but i do. Gets really depressing. You hang in

there and maybe the feet will straighten up too.

Have you ever gone to a chiropractor for your back and

feet. Just a thought. After my carwreck they

really straighten me out. dawn

--- RCColloran@... wrote:

> In a message dated 6/5/01 12:26:00 PM Pacific

> Daylight Time,

> dmorgan26347@... writes:

>

> << how are you feeling, are you doing any

> better. dawn >>

>

> Dawn, I think I am... I think the Biaxin is helping.

> So far so good. Knock

> on wood! LOL

>

> My feet were bad yesterday, don't know why. If I

> could just get them to

> behave I think I'd have it made. LOL The RP has

> been behaving. I've lowered

> my pred to 13mg and am not on anything else. Seems

> to be working so far.

> Hope it continues.

> I'm happy for just one good day at a time and they

> seem to be coming in

> groups of days and not just one here and there. So,

> I have nothing to

> complain about today. LOL Ask me tomorrow!!!! LOL

> Hope you are doing better. Thinking of you and

> hoping you get things under

> control.

> Have a great day.

>

> hugs

>

>

__________________________________________________