Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 I'm afraid that the words " butt out " are neither constructive nor positive. This is greatly offensive to the many non-caregiving relatives and friends and former caregivers who still share in this forum regularly. People who come here ask us questions and we answer them as best we can, no one needs to take our advice but we all offer it up with love. I hope those who have a problem with things said to them will write to the individuals involved and not continue to pollute the list with these sorts of negative remarks. Love, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 I would like to offer some positive comments: I would simply observe this list is a welcome, interactive resource to anyone - patient, care giver, relative or friend of either. " Anyone " includes those whose lives are impacted by MSA and similar neuro degenerative processes, and those who can make a contribution to the list based on their personal impact of this miserable disease. I am speaking as a care giver, on behalf of my wife, Terry [whose is the patient], and on behalf of my family members all of whom have benefited enormously from the help offered on this list. I am grateful to all who contribute. I am especially grateful to the former care givers who have lost their beloved patients and who still chose to help the rest of us. This list makes it possible to cope much more effectively with MSA. If it ain't broke, don't fix it. PS I support Pam's comments also. Message: 5 Date: Thu, 4 Jul 2002 08:59:04 -0300 Subject: Negative Comments I'm afraid that the words " butt out " are neither constructive nor positive. This is greatly offensive to the many non-caregiving relatives and friends and former caregivers who still share in this forum regularly. People who come here ask us questions and we answer them as best we can, no one needs to take our advice but we all offer it up with love. I hope those who have a problem with things said to them will write to the individuals involved and not continue to pollute the list with these sorts of negative remarks. Love, Pam Sennewald Charlottesville, Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Hi Pam, Without perpetuating this discussion unnecessarily or adding to the level of concern over this topic, I just want to say that I read Bill's post and although he may prefer to speak for himself, I didn't react to the overall tone of the posting as being intentionally negative. To the contrary, I felt the general intent of the posting was to encourage each of us to be slower to react and more tolerant of the views expressed on the list -- even when we disagree with those views. In other words, I think the " butt-out " phrase was simply an unfortunate choice of words that were not in character with the balance of the message. I know there are concerns on the part of some on this list that we need to challenge questionnable or potentially harmful advice if it appears in postings, but in general I think each of us comes to the list with the responsiblity to question any advice posted here and to consult with our physicians before changing the course of care or trying new meds or supplements. Otherwise, I think the list serves a variety of purposes for each of us, one of which may be a place to vent our frustrations and know that there are others who will understand or at least not judge us too harshly. Anyway, just add my vote to those already cast for this list to continue to be a resource to those needing information; a shoulder to cry on for those suffering from the disease or from the pain of having a loved one endure the disease; a source of up-to-date information about progress in research for a treatment/cure; a place where you can share with people who know first-hand what you are experiencing; and a sounding board for those needing to vent to be able to vent. Regards, Jerry Cash Negative Comments If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Jerry, I admit I read the note quickly and the butt out comment jumped out as it was written in capitals which in email etiquette is usually read as shouting. I am still very confused as to exactly what incident of criticism was being referred to... I took it that there was some specific incident being hinted at and instead of it being addressed directly to the people involved it was directed as a general letter to the list. That's my problem with the note. I have no quarrel with Bill P. I already know he regrets the remark as a poor choice of words. Take care, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Pam, I understand your points, and I agree that in general when we come to have strong feelings about a topic and when it becomes more of a personal disagreement with another poster than an issue the rest of the list understands or gives a hoot about, those issues ought to be taken off line and discussed in private emails between the parties involved. ly, I find it useful to just delete postings by parties I tend to disagree with rather than reading them and becoming frustrated. Thank you for your continued excellent work and stewardship of this list. Regards, Jerry RE: Negative Comments If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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