In Defence of Bill.P

[Guest guest]

Folks,

I don't think it is right to tell people to butt out

either. However, what I would say is that it is no-one

on the list's right to invalidate what others are

feeling or experiencing, be they a patient, caregiver

or someone important in a patient's life. I can recall

on occassion people being told things like " pain is

not a part of MSA " or words to that effect as if that

is an absolute truth. Obviously various cramping and

muscle spasms will cause significant pain for some

people. The healthy interchanges which followed

cleared up that particular point. I would think that

is an integral part of what the forum is for.

My general view having been a member of the list on

and off for a couple of years, is that everyone on the

list means well towards each other. Communication is

one of life's greatest challenges, even when face to

face and I attempt to think about how the other person

will feel about what I say or write before I do so. We

all come from diverse backgrounds, even where we live

in the same countries. We have varying levels of

education and our life experiences are all different.

So let's not be so quick to form harsh judgements

about what is said. I do agree that if people want a

bit of verbal fisticuffs they should do it off-list.

Best wishes to all.

Regards Sowter (Melbourne, Australia)

--- Pam Bower pbower@...> wrote: > I'm

afraid that the words " butt out " are neither

> constructive nor positive.

> This is greatly offensive to the many non-caregiving

> relatives and friends

> and former caregivers who still share in this forum

> regularly. People who

> come here ask us questions and we answer them as

> best we can, no one needs

> to take our advice but we all offer it up with love.

>

> I hope those who have a problem with things said to

> them will write to the

> individuals involved and not continue to pollute the

> list with these sorts

> of negative remarks.

>

> Love,

> Pam

>

>

>

>

>

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