Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Hello again Audrey, and Hi to Royce if he is reading over your shoulder..... You mentioned that your husband stops breathing at night. That also happens to my husband so he uses a C-Pap unit to prevent that. Has your husband had a sleep study? If not, it might be a good idea. Oxygen alone does not help my husband, he uses O2 with the C-Pap which in turn keeps him breathing. As for chat times, well, I am in Arizona and have trouble remembering the times (PST) but here goes on my guess for East time. I think Wednesday is from 3 - 5 EST and Wednesday is 7:30 - 9:30 EST. If I have these wrong I am sorry. It is best to watch the posts as a reminder is sent out each week the day before. Someone will probably jump in if I have these wrong. Please stay right here with us and don't try to go this one alone. You sound like a very strong person but this is a real challenge for anyone. Patient's and caregivers both need a lot of support dealing with this disease. Hugs, Jan > > > Hi everyone. My husband was just diagnosised with shy-drager > > > syndrone 2 weeks ago and I am still trying to figure out just > what > > he > > > and I am in for. My internet searches have told me some about > MSA > > > and the syptoms. Our doctor has not given me any information on > > what > > > to expect on the end stages of MSA. Can anyone here enlighten > me? > > > Any information will be greatly appreciated I promise you. I > look > > > forward to corresponding with everyone in the group. > > > > > > Audrey Quote Link to comment Share on other sites More sharing options...
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