Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Marg, I had an EMG done by my present neurologist. It was not normal but he didn't think I had ALS but rather CBGD. I do not have strength in my arms, hands, legs, or feet. Do the rest of you? I am just curious. I know I have muscle pain and the rest of you don't but then again I don't have MSA. I am just curious about the strength part and also the EMG. Thanks for bringing this up Marg. I am curious also. > > Hi everyone > > I wonder how many people in the group have had EMG tests ?...I suspect most have at sometime or other.Do people with MSA have normal EMGs? I had mentioned to my Doc that I felt I was loosing some strength and so we did a EMG yesterday with a neurologist and i was nice and normal! Lifted my spirits somewhat as he was suspecting ALS rather than SDS .(I still have no firm diagnosis) > > Love to all, Marg Manson. > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 HI Belinda I had the EMG done at the request of my Respirologist(and favorite Doc) because I feel less strong and we felt I had some muscle wasting,but it`s hard to tell with the muscle wasting because I`ve lost so much weight.He also felt my difficulty breathing lying down may be due to weakened respiratory muscles but my EMG was normal,at least as far as my arm and leg muscles, which were the muscles tested.It is a great relief to rule out ALS.My diagnosis is still possibleSDS but like you I have a great deal of pain,chest pain that is absolutely vicious, and muscle cramps and spasms mainly in my neck,back and thorax. So far I hav`nt found any med to help.....going to start Flexoril....see if that helps. May I ask what med you take for pain? Well, thats enough complaints from me, On a brighter note I leave for the UK soon to see a SDS Specialist and visit with my Brothers and their families. My Mom and youngest daughter will come too.My husband Don will stay home but will go back with me if I have to return for testing. Just want to add how much I appreciate your postings.....You are such a gentle caring woman and I find your steadfast faith in God so inspiring. Much love, Marg Manson belnorest wrote: Marg,I had an EMG done by my present neurologist. It was not normal but he didn't think I had ALS but rather CBGD. I do not have strength in my arms, hands, legs, or feet. Do the rest of you? I am just curious. I know I have muscle pain and the rest of you don't but then again I don't have MSA. I am just curious about the strength part and also the EMG. Thanks for bringing this up Marg. I am curious also. > > Hi everyone> > I wonder how many people in the group have had EMG tests ?...I suspect most have at sometime or other.Do people with MSA have normal EMGs? I had mentioned to my Doc that I felt I was loosing some strength and so we did a EMG yesterday with a neurologist and i was nice and normal! Lifted my spirits somewhat as he was suspecting ALS rather than SDS .(I still have no firm diagnosis)> > Love to all, Marg Manson.> > > > ---------------------------------> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Marg, Thank you for your kind words. You are one of God's special blessing and I am so glad we met even though I wish it was for different reasons. I had thought you lived in Canada. Do you live in England? I am so confused. LOL There are so many countries to keep up with but isn't that wonderful the internet brought us all together so we could help each other. I am sorry I haven't answered you before this but summer even when you are sick is crazy around here. I am also trying to share the internet with everyone in this house (8 people) while school is out. This is hard on someone who is addicted to the internet as I am! I have been taking neurotin for the muscle pain but it doesn't help me much. I also got a massager for christmas but it has stopped working. I have asked my husband to find one that does the whole body. I think when I get time I am going to do some research on it. I think they help some, as well as a heating pad. I guess some is better than nothing. I am so glad that you are going to the UK to see a specialist and your family! I hope that seeing the specialist will be a wonderful experience for you and he will be able to help you immensely. Have a wonderful time with your family! God bless you always, Belinda > > > > Hi everyone > > > > I wonder how many people in the group have had EMG tests ?...I > suspect most have at sometime or other.Do people with MSA have normal > EMGs? I had mentioned to my Doc that I felt I was loosing some > strength and so we did a EMG yesterday with a neurologist and i was > nice and normal! Lifted my spirits somewhat as he was suspecting ALS > rather than SDS .(I still have no firm diagnosis) > > > > Love to all, Marg Manson. > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
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