Re: Belinda and weakness

July 7, 2002

Belinda,

I did not realize that I was so easily forgotten... LOL! I know, I'm a

pain (pun intended).

You asked about muscle weakness and I think that mine is more perceived

muscle weakness than actual weakness. Because of the (pain) I have in my

arms, hands, legs and feet, I don't think that I try to lift heavy things or

hold onto stuff like I used to. I bet if I could get the pain to roll over

that I would find my body to be quite strong. It could be the steroids too

that are keeping me muscle bound instead of fat bound.

I've gained 40 lbs. since January on the steroids but when I look in the

mirror, I look more like a football player than an over weight lady. Put

clothes on me then I just look plain fat. Oh well, just goes to show that

you can't judge a book by its cover.

I think and I are playing musical beds without letting the other

know we are playing. He fell asleep at 7:30 last night and woke at 11 PM

when I turned the tv off to go to sleep. I woke at 3:30 this morning (as

usual) and he was still up. I went back to bed and woke at 6:30 this

morning only to find him snoozing away. I'm betting by the time I can't sit

up anymore and start feeling bad, around 9:30 or 10:00, I'll go back to bed

and he will get up.... Hummm. Wonder if he is trying to tell me something.

Hugs,

Deborah aka Tenacity

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Marg,

I had an EMG done by my present neurologist. It was not normal but he

didn't think I had ALS but rather CBGD. I do not have strength in my

arms, hands, legs, or feet. Do the rest of you? I am just curious. I

know I have muscle pain and the rest of you don't but then again I

don't have MSA. I am just curious about the strength part and also

the EMG. Thanks for bringing this up Marg. I am curious also.

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