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Marilyn

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Hi Marilyn,

As for the pond plants, of course you have to have water lilies. Also Lotus. I

love to drip water on a leaf of a lotus. It sits there like a diamond.

Beautiful flower too.

I love Parrot's Feather for the surface covering, but fish tend to love it too.

If your pond is small, try mini horsetail, it's tall and jointed, looks great in

a pond.

Water Iris' are nice too. Nice flower.

Geez, I could go on and on girl, but I'd better stop or you won't be able to see

your pond for all the plants. LOL

I am doing something special for myself this weekend. Going to the flower show,

so you know I'll be a happy camper.

Have fun pond plant shopping and enjoy yourself too.

W

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Take time to

do something special for yourselves this weekend. a good book,

music, flowers, etc. I plan to try and help work on the pond this

weekend. Have to go find some nice pond plants. Any suggestions?

Got the rock this AM. Love, Marilyn

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Marilyn,

You've got to get a lotus too. They are a little pricey, but a must!!

Please take pics of your pond when it's all set up and send it to me.

Have you got any fish yet? I bought mine at the pet store. Buy the feeder fish.

They are cheap and do good in ponds. As long as your pond is at least 18 inches

deep, they will be fine even in the winter. My pond freezes up, but the fish

are fine come spring.

Good luck and if I can help in anyway, just let me know.

W

>>>>>>>>>>>>>>>>>>>

Did go and get out

some water lilies this AM, they are quite spendy. $17.00 a piece.

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In a message dated 6/9/01 6:14:10 PM Pacific Daylight Time,

susuw@... writes:

<< You've got to get a lotus too. >>

will any of these plants live where I live... It is HOT here in the

summer...OVer 100 degrees.? Even in the shade. LOL

C

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Dear Marilyn, Please don't be tired or fighting this stuff....I know I get so

frustrated sometimes....As my emails can tell. Right now the body is swollen

up like a whale, medications I think. Keep being bull headed...that's who you

are. Keeps me going, being an absolute _itch sometimes. It just gets old

after awhile. I wait for the good days and doctors appointments but the main

thing is to push as hard as you can when you feel up to it. Keep a laugh in

your heart....Love Ya....Sue

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Hi Marilyn:

When I was first diagnosed with RP they also Dx me with vasculitis with

livedo reticularis ?sp

I started taking Minocin ( antibiotic) and since then I have had a

significant decrease in the livedo reticularis and vasculitis along with

the fibro pain. Wonder if you might inquire about that if you are not

on it. Just a thought.

Take care,

Cath

godave@... wrote:

> Dear Cath,

>

> That was a really great article you sent to the group about various

> eye problems. Interesting to me especially, since I've had trouble

> with mine lately. Today I am having a flare up of vasculitis on my

> feet, and the four days prior to this I was having tearing and itchy

> eyes. My eyes are fine now, but that could be because I raised the

> pred for the vasculitis. Walking is a little hard today. Most of

> the spots are on the bottom of my feet and around the ankle.

>

> Weather here is not the greatest. Cloudy and cool. Seems like one

> day I wear my sweats and the next day I'm in short sleeved shirts.

> Thinking seriously of putting the flannel sheets back on my bed if

> our summer is going to be like this.

>

> Have a good week and thanks again for the post. Marilyn

>

>

>

>

>

>

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>

> > Dear Cath,

> >

> > That was a really great article you sent to the group about

various

> > eye problems. Interesting to me especially, since I've had

trouble

> > with mine lately. Today I am having a flare up of vasculitis on

my

> > feet, and the four days prior to this I was having tearing and

itchy

> > eyes. My eyes are fine now, but that could be because I raised

the

> > pred for the vasculitis. Walking is a little hard today. Most of

> > the spots are on the bottom of my feet and around the ankle.

> >

> > Weather here is not the greatest. Cloudy and cool. Seems like

one

> > day I wear my sweats and the next day I'm in short sleeved shirts.

> > Thinking seriously of putting the flannel sheets back on my bed if

> > our summer is going to be like this.

> >

> > Have a good week and thanks again for the post. Marilyn

> >

> >

> >

> >

> >

> >

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Marilyn

Before you go on any drug, you should go on line and

look up the drug and its side effects. then weigh the

pros and cons and decide is it worth it. THat what i

do. I know some of the side effects are scarey but

most people do not have the biggest part of them. Its

just people with weird stuff like we RPERS " that

should really try to check. I know for a fact that

my body does not process drugs like most people. I

can get sick on a tylenol if i am not careful. Not

sure why but i have always been that way. I don't

get sick often but when i do its the weird stuff that

happens to me. dawn

--- Marilyn Kucera godave@...> wrote:

> Hi Dawn,

>

> Gee, I don't feel so bad now. Last time the doctor

> checked my

> cholesterol it was 225, and he said " you need to go

> on one of the new

> cholesterol lowering meds. " I said " let's wait and

> see if I can get it

> down on my own " . Well, I am sure it probably hasn't

> gone down, but I

> think I'll pass now on the meds. I already have

> enough stomach and

> intestinal problems. My doctor probably gets a kick

> back from the drug

> companies for everybody he puts on that stuff.

> There's lots of people

> on it too. I see all the advertisements on TV and

> they say these meds

> can prevent heart attacks. Can it really?? My

> triglicerides are in the

> normal range. Even with all the lemon bars I ate

> this spring.

> Hope you all are having a good day. Mine is OK. I

> had a rest.

> Yesterday I laid down for a short rest and slept for

> 2 and 1/2 hours.

> Love, Marilyn

>

>

__________________________________________________

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I know for a fact that

> my body does not process drugs like most people. I

> can get sick on a tylenol if i am not careful. Not

> sure why but i have always been that way. I don't

> get sick often but when i do its the weird stuff that

> happens to me. dawn

>

> Dawn, the same thing happens to me. I react almost just the

opposite as I'm suppose to. My dr. says it from the fibro. Won't

let me process meds the same way other people do.

>

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I thought I was just weird. Years ago I had problems with panic attacks. Dr.s

would prescribe anit-anxiety drugs, etc. I told them it seemed my body

reacted just the opposite of what the drug was suppose to do. Luckily they

went away. Sue

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In a message dated 6/15/01 6:44:11 AM Pacific Daylight Time, grandm4@...

writes:

<< Years ago I had problems with panic attacks. D >>

Sue so did I...One thing I always connected , but the dr said no, was that I

had a really High cortisol level. This was before I was dx with RP. Never

did get an answer why my level was so high. My daughters was the same.

Cortisol sets the " fight or flight " into effect. Just a theory.

Guess the next poll should be Who has had problems with anixety . LOL

hugs

Clauda

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In a message dated 6/15/01 7:25:17 AM Pacific Daylight Time,

dmorgan26347@... writes:

<< You know the one thing

we all have in common is RP, wonder if the drug thing

is connnected./?????? d awn >>

Dawn, good question, I'll add it to the poll.

hugs

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Thats really interesting. I don't have fibro, but I

wonder about everyone else in the group, if they have

a hard time processing drugs, You know the one thing

we all have in common is RP, wonder if the drug thing

is connnected./?????? d awn

--- Colloran RCColloran@...> wrote:

>

> I know for a fact that

> > my body does not process drugs like most people.

> I

> > can get sick on a tylenol if i am not careful.

> Not

> > sure why but i have always been that way. I

> don't

> > get sick often but when i do its the weird stuff

> that

> > happens to me. dawn

> >

> > Dawn, the same thing happens to me. I react

> almost just the

> opposite as I'm suppose to. My dr. says it from the

> fibro. Won't

> let me process meds the same way other people do.

>

> >

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Hi Folks,

Lucy here, I am diagnosed with Fibromyalgia. I think I have heard a lot of

people in the group that have it. We tend to have most anything that passes

us, don't we?

Love and Prayers, Lucy

Re: Marilyn

>

> Thats really interesting. I don't have fibro, but I

> wonder about everyone else in the group, if they have

> a hard time processing drugs, You know the one thing

> we all have in common is RP, wonder if the drug thing

> is connnected./?????? d awn

>

> --- Colloran RCColloran@...> wrote:

> >

> > I know for a fact that

> > > my body does not process drugs like most people.

> > I

> > > can get sick on a tylenol if i am not careful.

> > Not

> > > sure why but i have always been that way. I

> > don't

> > > get sick often but when i do its the weird stuff

> > that

> > > happens to me. dawn

> > >

> > > Dawn, the same thing happens to me. I react

> > almost just the

> > opposite as I'm suppose to. My dr. says it from the

> > fibro. Won't

> > let me process meds the same way other people do.

> >

> > >

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In a message dated 6/15/01 4:00:16 PM Pacific Daylight Time,

L10@... writes:

<< Lucy here, I am diagnosed with Fibromyalgia. >>

Lucy, I'm so sorry to hear this. My fibro causes me more pain than the RP.

If you need anything please let me know.

How are you feeling? Hopefully as good as last time I talked to you. Know

you and your family are in my thoughts.

Hugs (gentle of course)

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