MSA Support: Did you know?

[Guest guest]

Did you know that Multiple System Atrophy (MSA) is recognized by many

different charitable organizations?

1. SDS/MSA Support Group (USA)

Austin, Texas

http://www.shy-drager.com

Their next Patient Conference will be held in Denver CO July 26 - 28th,

2002. Register by July 14th by calling 1-866-SDS-4999. Registration is

FREE. More details are at

http://www.shy-drager.com/calendar_of_events.htm

A future conference is also being planned for mid-September, 2002 in Chicago

IL

Details will be announced soon.

A list of local support groups can be found at:

http://www.shy-drager.com/area%20support%20groups.htm

2. National Dysautonomia Research Foundation (USA)

Red Wing, MN

http://www.ndrf.org

They consider MSA to be a dysautonomia (disorder of the autonomic nervous

system)

Their next Patient Conference will be held in Washington DC July 18-20, 2002

Details are at: http://www.ndrf.org/Seminars.htm

A list of local support groups can be found at:

http://www.ndrf.org/groups.asp

3. National Ataxia Foundation (USA & Canada)

Minneapolis, MN

http://www.ataxia.org/

They consider MSA to be a non-hereditary form of ataxia. Ataxia is a

symptom of many neurological disorders and refers to loss of balance and

coordination.

Their next Patient Conference will be held in Atlanta GA March 6 - 9, 2003

Details are at: http://www.ataxia.org/amm2003/index.html

A list of local support groups can be found at:

http://www.ataxia.org/groups.html

4. Parkinson's Foundations & Societies (Worldwide)

MSA is considered to be a Parkinson-Plus disorder

For support groups in the USA see:

http://www.parkinson.org/support.htm

http://www.apdaparkinson.com/supportloc.htm

For support groups in Canada see:

http://www.parkinson.ca/support/sgroups.html

For support groups in Australia see:

http://www.parkinsons.org.au/document/about_parkinsons_states.html

If you need help locating a Parkinson Support Group in another country

please email me: pbower@...

5. Matheson Trust for Multiple System Atrophy(UK)

http://glaxocentre.merseyside.org/msa2.html

6. Ataxia Organizations (Europe)

http://www.euro-ataxia.org/members.htm