The Support Report

[Guest guest]

Dear : Thank you so much for sending me the two

reports that I missed. They are very timely for me as I

have had scleritis recently. I actually met Dr.

up here at OHSU in Portland when I was in to see Dr.

Rosenbaum for inflammatory problems related to RP. At

the time, I wasn't having a problem, but it flared up

later in my eyes. I have the scleritis under control

now, but developed glaucome in my left eye from the

prednisolone drops. Now I am working on that problem!

The articles were very timely and I sent a copy of them

to my rheumatologist up at OHSU just to make sure he

knows what I know. I had just seen him and he hadn't

read the articles written by Dr. . I have just

started on Dapsone at 25mg the first week, and building

up 25 mg/week until I reach 100 mg and then we will see

if I need to increase. I hope I am one of the ones

helped by Dapsone as I prefer that to methotrexate, but

I am open to taking just about anything now. My self

denial phase on this problem is GONE.

You have done such an excellent job on these reports,

, and I am so grateful for them. Thank you!!

[Guest guest]

Hi, Lucy here. You mentioned Dapsone. That is all I take for RP. I am on

50 MG a day and feel as if I am in remission. I got off of Prednisone in

September of 2000. (After it caused me to have Diabetes!) Once I got off

of the prednisone, my sugar went down and I got on the pill Glucaphage, one

a day; I have been on at least 25 MG of Dapsone from the day I was

diagnosed with RP. I have had no problems with it at all.

Love and Prayers, Lucy in NC

The Support Report

> Dear : Thank you so much for sending me the two

> reports that I missed. They are very timely for me as I

> have had scleritis recently. I actually met Dr.

> up here at OHSU in Portland when I was in to see Dr.

> Rosenbaum for inflammatory problems related to RP. At

> the time, I wasn't having a problem, but it flared up

> later in my eyes. I have the scleritis under control

> now, but developed glaucome in my left eye from the

> prednisolone drops. Now I am working on that problem!

> The articles were very timely and I sent a copy of them

> to my rheumatologist up at OHSU just to make sure he

> knows what I know. I had just seen him and he hadn't

> read the articles written by Dr. . I have just

> started on Dapsone at 25mg the first week, and building

> up 25 mg/week until I reach 100 mg and then we will see

> if I need to increase. I hope I am one of the ones

> helped by Dapsone as I prefer that to methotrexate, but

> I am open to taking just about anything now. My self

> denial phase on this problem is GONE.

>

> You have done such an excellent job on these reports,

> , and I am so grateful for them. Thank you!!

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>