Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 In a message dated 06/09/2001 9:02:20 PM Eastern Daylight Time, scotts@... writes: > Has Pete ever tried Chloroquine? Not the greatest for the eyes, but > monitored it may be OK. Hi - No Pete has never been given anything for his eyes..He has gone to some opthamologists with really good reputations and they have never prescribed anything!! is away until Wednesday and the office said I should hear from him by the end of the week. Would like to take Pete to see him as soon as possible. I mean how can you be practically blind 3 out of 7 days a week and there is nothing wrong?? Thanks for the post...will keep you all posted. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Has Pete ever tried Chloroquine? Not the greatest for the eyes, but monitored it may be OK. is monitoring my eyes. Chloroquine is a quinine analogue; may bring some relief to other symptoms.... Try drinking diet tonic water, see if a slight quick feeling of improvement in mouth... Re: Re: eyes -RP In a message dated 06/09/2001 7:57:28 AM Eastern Daylight Time, bklyn1429@... writes: > Hospital/Harkness Pavilion in NYC named Dr. Weiss and after a very > thorough exam ( even ultrasound of the eyes!) he found that my inflamations > Hi- Pete went to Harkness Eye Pavillion too...he saw a Dr.Trokel who was very nice and very thorough but admitted he knew nothing about RP..I brought some info about the eyes and RP which he took the time to read...so now we are trying to set up an appointment with C. in Boston who is knowledgeable in RP and the eyes. Pete's eyes are getting worse and the only thing that seems to help is the pred which makes the eyes worse at the same time...very frustrating. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Sorry to confuse. The chloroquine is not for the eyes particularly. It is for the RP. It can hurt the eyes if not monitored. I was just wondering whether Pete, with all his troubles, has ever been on Chloroquine. It is the only thing that helps me, but it doesnt seem to be used very much. Re: Re: eyes -RP Pete In a message dated 06/09/2001 9:02:20 PM Eastern Daylight Time, scotts@... writes: > Has Pete ever tried Chloroquine? Not the greatest for the eyes, but > monitored it may be OK. Hi - No Pete has never been given anything for his eyes..He has gone to some opthamologists with really good reputations and they have never prescribed anything!! is away until Wednesday and the office said I should hear from him by the end of the week. Would like to take Pete to see him as soon as possible. I mean how can you be practically blind 3 out of 7 days a week and there is nothing wrong?? Thanks for the post...will keep you all posted. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 In a message dated 6/9/2001 8:02:13 PM Central Daylight Time, scotts@... writes: > Has Pete ever tried Chloroquine? Not the greatest for the eyes, but > monitored it may be OK. is monitoring my eyes. Chloroquine is a > quinine analogue; may bring some relief to other symptoms.... Try drinking > diet tonic water, see if a slight quick feeling of improvement in mouth... > > , I didn't know that they still had Chloroquine on the market, they replaced this w/hydrochloroquine. I took this back in 1992 or 1993. It was taken off the market here in the US because it was so toxic. I'm surprised u are taking it. One thing I know about chloroquine u must have ur eyes check often. U must be carefully w/this one. love Rene Quote Link to comment Share on other sites More sharing options...
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