Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 I'm new to the group. My Mom has just been diagnosed with Shy and so I'm on a huge learning curve. She is experiencing what she describes as " double vision " and now is unable to knit, do crossword puzzles and other things she used to enjoy. Is this common to MSA? I had read somewhere about " prism " glasses - does anyone know anything about them or other solutions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Yes, my wife Deborah just got a new script and with it was the prism. It was necessary for she too had the double vision problem. The Nero-opthmologist said after he did his examination and looked over her Mir’s and scat scans that her eye's were great but it was her brain stem that was the problem and that the prism for the one eye would help for about 6 months and than he would have to redo her Rx again. He said that what she needs is a stem cell transplant. I wish you luck with your mom and hope all works out for you both. “tenacity’s man” > >Reply-To: shydrager >To: shydrager >Subject: Vision Problems >Date: Mon, 08 Jul 2002 18:53:21 -0000 > >I'm new to the group. My Mom has just been diagnosed with Shy and so >I'm on a huge learning curve. She is experiencing what she describes >as " double vision " and now is unable to knit, do crossword puzzles >and other things she used to enjoy. Is this common to MSA? I had >read somewhere about " prism " glasses - does anyone know anything >about them or other solutions? > > >If you do not wish to belong to shydrager, you may >unsubscribe by sending a blank email to > >shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Thanks so much for your kind reply. You mentioned that your wife was seeing a Nero-opthomologist. I've not heard that term before. Is that someone who specializes in MSA related issues. I know Mom is just seeing a regular Opthomologist - should I be looking for a MSA specialist in my area? I'm afraid I have so many questions about this disease. > Yes, my wife Deborah just got a new script and with it was the prism. It was > necessary for she too had the double vision problem. The Nero- opthmologist > said after he did his examination and looked over her Mir's and scat scans > that her eye's were great but it was her brain stem that was the problem and > that the prism for the one eye would help for about 6 months and than he > would have to redo her Rx again. He said that what she needs is a stem cell > transplant. I wish you luck with your mom and hope all works out for you > both. > > " tenacity's man " > > > > >From: " bestcone " > >Reply-To: shydrager@y... > >To: shydrager@y... > >Subject: Vision Problems > >Date: Mon, 08 Jul 2002 18:53:21 -0000 > > > >I'm new to the group. My Mom has just been diagnosed with Shy and so > >I'm on a huge learning curve. She is experiencing what she describes > >as " double vision " and now is unable to knit, do crossword puzzles > >and other things she used to enjoy. Is this common to MSA? I had > >read somewhere about " prism " glasses - does anyone know anything > >about them or other solutions? > > > > > >If you do not wish to belong to shydrager, you may > >unsubscribe by sending a blank email to > > > >shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 You came to the right place for answers as well as being among a very caring group of people. I just saw a neuro-ophthalmologist 2 weeks ago. I have been seeing 1.5 of everything and focusing differently in each eye. The doctor ordered prism glasses for me and said that this type of visual disturbance is caused by the deterioration of the brain stem. He also said brain stem damage is often seen with stroke. See if you can get her an apt. with a neurological ophthalmologist to have her checked. It's wonderful to get your vision back. Hugs, Deborah aka Tenacity ----------------------------------------------------------------------- I'm new to the group. My Mom has just been diagnosed with Shy and so I'm on a huge learning curve. She is experiencing what she describes as " double vision " and now is unable to knit, do crossword puzzles and other things she used to enjoy. Is this common to MSA? I had read somewhere about " prism " glasses - does anyone know anything about them or other solutions? If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 My husband has MSA and also has double vision. The opthomologist put prisms in his glasses which helped only a short while and only minimally. He is still unable to see well enough to read, use the computer, etc. It is part of the disease from what we understand. I would definately look into seeing a neuro opthomologist. Jan > I'm new to the group. My Mom has just been diagnosed with Shy and so > I'm on a huge learning curve. She is experiencing what she describes > as " double vision " and now is unable to knit, do crossword puzzles > and other things she used to enjoy. Is this common to MSA? I had > read somewhere about " prism " glasses - does anyone know anything > about them or other solutions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 My husband has double vision, the prism were tried and did not work. Finally, we went to just reading glasses and that seems to be a little better. He can now read a little bit, he went for years without reading. The brain can't work the eyes on bifocals. Al also has SDS. Ann from Soddy,TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 Hi all, Charlotte's experience was much like Ann's experience with Al. One eye deteriorated faster than the other and new single vision glasses helped - one pair for reading and one for watching TV or riding in the car. Take care, Bill Werre ================================================= > > > Date: 2002/07/09 Tue PM 05:07:08 CDT > To: shydrager > Subject: Re: Vision Problems > > My husband has double vision, the prism were tried and did not work. > Finally, we went to just reading glasses and that seems to be a little > better. He can now read a little bit, he went for years without reading. > The brain can't work the eyes on bifocals. Al also has SDS. > Ann from Soddy,TN > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 I AM CURIOUS JUST HOW MANY DO HAVE THIS PROBLEM? I SAW A NEURAL OPHTHALMOLOGIST IN OKC EARLIER THIS YEAR. HE SAID THE SAME OF ME. HE SAID THAT HE TRIED A PRISM, AND IT MADE NO DIFFERENCE. HOWEVER, AS SUCH, HE RECOMMENDED BIFOCALS. I THINK HE MAY HAVE SUGGESTED THE POSSIBILITY OF 2 PAIRS OF GLASSES - NOT SURE. ANYWAY, HE SAID HE HAS SEEN OTHERS, WITH SIMILAR SYMPTOMS - THAT HE COULD NOT DIAGNOSE. JUST CURIOUS IF THIS IS COMMON IN MSA-SDS? I HAVE MANY PROBLEMS WITH VISION. IN FACT, I HAVE PROBLEMS WHERE I SEE LETTERS BOUNCING OFF THE PAGES AT DIFFERENT " DEPTHS " . MAKES READING VERY DIFFICULT - BUT AS THIS IS A LARGE PART OF MY LIVELIHOOD, I CONTINUE TO ADJUST AS MUCH AS POSSIBLE. (BUT THIS MAY ALSO BE RESPONSIBLE FOR SOME OF THE SPASMING MY EYES ARE DOING LATELY?) THANKS, PAUL > Hi all, > > Charlotte's experience was much like Ann's experience with Al. One eye deteriorated faster than the other and new single vision glasses helped - one pair for reading and one for watching TV or riding in the car. > > Take care, Bill Werre > > ================================================= > > > > From: Ann M > > Date: 2002/07/09 Tue PM 05:07:08 CDT > > To: shydrager@y... > > Subject: Re: Vision Problems > > > > My husband has double vision, the prism were tried and did not work. > > Finally, we went to just reading glasses and that seems to be a little > > better. He can now read a little bit, he went for years without reading. > > The brain can't work the eyes on bifocals. Al also has SDS. > > Ann from Soddy,TN > > > > If you do not wish to belong to shydrager, you may > > unsubscribe by sending a blank email to > > > > shydrager-unsubscribe@y... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 For all of you with eye problems: Ken had the double vision and the slowing of the eye muscles for a long time and gave up reading at all until I started bringing home the big-print books from the library. He seemed to be able to handle those especially shortly after taking a dose of sinemet. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 THANKS BARBARA. I'LL KEEP THAT IN MIND. SO FAR, NOTHING SEEMS TO REALLY BE HELPING. I DO TEND TO MAKE MY PRINT CAPS AND BOLD WHEN SENDING EMAILS, BUT EVEN THAT JUST MAKES IT TOLERABLE. FORTUNATELY, READING IS PRETTY MUCH A REQUIREMENT FOR MY JOB, AND I'M NOT ABOUT TO GIVE IT UP - SO I'LL CONTINUE TO ADJUST. PAUL > For all of you with eye problems: > Ken had the double vision and the slowing of the eye muscles for a > long time and gave up reading at all until I started bringing home the > big-print books from the library. He seemed to be able to handle those > especially shortly after taking a dose of sinemet. > Barbara Quote Link to comment Share on other sites More sharing options...
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