Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 I totally agree....I laughed when a PA told me they don't call it " Practicing Medicine " for nothing. We are not all the same. Different meds and over the counter seem to work for some and not others. Our disease would be much better if there was a regument. Well, there isn't. I'm now waiting for a call back from doctor on blood tests and urinalysis that was done on Wednesday....Love Ya ALL.....Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 C. I agree with you 100%, I think most of us wait to long before we see our doctors. I never consider my health questions as being a pain to my doctors. It is why I have hired them. Their job is to help me. If they can't, or won't, then it is time to find a doctor that will. Unless the proper testing is done, the average RP patient is not going to know if the sore throat is just that, a sore throat or the beginning of inflammation involvement from RP. Nor will the doctor. They need to see us when we are sick. It is highly frustrating to drag yourself into a doctors office to hear, " well, I don't know what is wrong with you " . When the answer should be, we need to send you to a specialist, testing and have this looked further into. But the doctors can not make that referral if they don't get a chance to see the problem while it is happening. One thing I would like to bring out to everyone with RP is that the DX criteria for RP is a HISTORY of having inflammation in certain key areas, such as the ears, nose, eyes and throat (among other locations). If your are still having problems with " flares " and re-occurring inflammation then your doctors do not have your health under control and they need to work more on getting it there. RP is controllable. But we have to help the doctors to get there. And the very first step is getting to the doctors when you are having a problem. In the world of medicine and science if they don't see a problem, then there most likely is not a problems. One of the questions we should all ask each of our doctors is when do you want me to call? R. I'm just worried that some are waiting too long and figure it will just go away or is just a sore throat etc. I want to urge members to seek medical attention and who cares if they think we are a pain.....!!! Better safe than sorry and besides, we Pay them to work for us... Thanks again for making my point more clear. hugs C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 06/11/2001 1:11:08 PM Eastern Daylight Time, SkyfireRanch@... writes: > Hi- Pete's doc, although has given me parameters re: giving boost dose of pred...told me when in doubt as to whether or not to call .........CALL>>>>>> ..he said he would rather have me call with a false alarm than not to call when it's important..he has never made me feel like a phone call was a pain in the neck...we are very lucky to have him...But also I figure if a doc isn't willing to take a call he's not worth having!!!! Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 --- grandm4@... wrote: > I totally agree....I laughed when a PA told me they > don't call it " Practicing > Medicine " for nothing. We are not all the same. > Different meds and over the > counter seem to work for some and not others. Our > disease would be much > better if there was a regument. Well, there isn't. > I'm now waiting for a call > back from doctor on blood tests and urinalysis that > was done on > Wednesday....Love Ya ALL.....Sue good luck on getting those results--hope they are all good,,,,Sharon ===== __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 In a message dated 6/11/01 8:20:34 PM Pacific Daylight Time, Baaboo19@... writes: << But also I figure if a doc isn't willing to take a call he's not worth having!!!! Janet >> Janet you are sooo lucky to have such a wonderful doctor for Pete. Tell Pete hello for me. Hope he is feeling better soon. Let us know what the dr says... hugs Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.