Dwangy/ Support Report

[Guest guest]

Dwangy, I'm really happy that you liked The Support Report. But more thrilled to

hear that you are over the denial portion of our medical problems. I believe

that is the hardest portion to get resolved. At least for me it is.

I have had the opportunity to " speak " with Dr. . He is really a great and

caring doctor. Please let me know how your appointment with him goes.

I was reading the other day that although we all have different manifestation of

this disease, eye involvement is one of the highest common factors with RP. At

least 89% of all RP patients will have some form of eye involvement during the

course of their illness.

(RP from dermatology to connective tissue.2/01 at www.emedicine.com )

I very glad that I could help. Thanks for the kind words.

R.

Subject: The Support Report

> Dear : Thank you so much for sending me the two

> reports that I missed. They are very timely for me as I

> have had scleritis recently. I actually met Dr.

> up here at OHSU in Portland when I was in to see Dr.

> Rosenbaum for inflammatory problems related to RP. At

> the time, I wasn't having a problem, but it flared up

> later in my eyes. I have the scleritis under control

> now, but developed glaucome in my left eye from the

> prednisolone drops. Now I am working on that problem!

> The articles were very timely and I sent a copy of them

> to my rheumatologist up at OHSU just to make sure he

> knows what I know. I had just seen him and he hadn't

> read the articles written by Dr. . I have just

> started on Dapsone at 25mg the first week, and building

> up 25 mg/week until I reach 100 mg and then we will see

> if I need to increase. I hope I am one of the ones

> helped by Dapsone as I prefer that to methotrexate, but

> I am open to taking just about anything now. My self

> denial phase on this problem is GONE.

>

> You have done such an excellent job on these reports,

> , and I am so grateful for them. Thank you!!