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Hallo Everyone !!!

Guess who is back ???? LOL Yup, Mrs. Nosey

herself. Well first I would like to know how you

all been doing??? I see we have a few new

members here. let me tell you

" Herzlich Willkommen " to the greatest group.

My name is Heidi also known as Mrs. Nosey.

So of course I would love for you all to tell me

your name and where you are from. We have a

address list with everyone's e mail and home

address with Phone # . I sure would like to add

you to the list. Also please add your Birthday.

You do not have to give us the year. I in return

will send you a copy of the list . There is one

catch to this OK you may NOT give out any information from this list to anyone

out site

this group. We are also having our first get to

gather this September. You are also invited

to come and join us here in Tulsa Oklahoma.

I will post all this information right after I send

this post. LOL Now to some good news here.

Don's Computer is back and running. So we are

going to try and print out the address list. So

please everyone let me know if you would like

to have one. Yup, I lost my list so please let me

know again. Mr. Ornery is doing great. Even true

we are under a lot of stress right now. I think I

will fix that Pina Colado today. LOL We have to

go back .YUK !!!!! We hope it is the first week in

July. Waiting on a court date. This time we have

to drive down there. We have a LOT of work to do

then. O well that's life in the big city. LOL Ok I better

hush for now and catch up on this house here.

The dust bunny's moved in here. Will holler at you all

later. Sending you all a gentle Hug for now.

Heidi

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welcome back heidi,

wanted to thank you for your phone call and inviting

me to join the group. everyone is so kind and

helpful. have received the member list. thanks

again.

sandy n

--- Heidi Main heidi@...> wrote:

> Hallo Everyone !!!

>

> Guess who is back ???? LOL Yup, Mrs. Nosey

> herself. Well first I would like to know how you

> all been doing??? I see we have a few new

> members here. let me tell you

> " Herzlich Willkommen " to the greatest group.

> My name is Heidi also known as Mrs. Nosey.

> So of course I would love for you all to tell me

> your name and where you are from. We have a

> address list with everyone's e mail and home

> address with Phone # . I sure would like to add

> you to the list. Also please add your Birthday.

> You do not have to give us the year. I in return

> will send you a copy of the list . There is one

> catch to this OK you may NOT give out any

> information from this list to anyone out site

> this group. We are also having our first get to

> gather this September. You are also invited

> to come and join us here in Tulsa Oklahoma.

> I will post all this information right after I send

> this post. LOL Now to some good news here.

> Don's Computer is back and running. So we are

> going to try and print out the address list. So

> please everyone let me know if you would like

> to have one. Yup, I lost my list so please let me

> know again. Mr. Ornery is doing great. Even true

> we are under a lot of stress right now. I think I

> will fix that Pina Colado today. LOL We have to

> go back .YUK !!!!! We hope it is the first week in

> July. Waiting on a court date. This time we have

> to drive down there. We have a LOT of work to do

> then. O well that's life in the big city. LOL Ok I

> better

> hush for now and catch up on this house here.

> The dust bunny's moved in here. Will holler at you

> all

> later. Sending you all a gentle Hug for now.

> Heidi

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Welcome back Heidi...Boy did I miss you.... Hope you will take a day off and

get some rest today. Those dust bunnies can't be that bad......no one was

home....Were they having a party??LOL

Welcome home.

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Rita, so glad to hear that you are finally feeling better. Hope it lasts a

long time. With the right meds, this darn disease can get under

control...Will keep you in my thoughts and hope these meds work forever....

hugs

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--- Heidi Main heidi@...> wrote:

> Hallo Everyone !!!

>

> Guess who is back ???? LOL Yup, Mrs. Nosey

> herself. Well first I would like to know how you

> all been doing??? I see we have a few new

> members here. let me tell you

> " Herzlich Willkommen " to the greatest group.

> My name is Heidi also known as Mrs. Nosey.

> So of course I would love for you all to tell me

> your name and where you are from. We have a

> address list with everyone's e mail and home

> address with Phone # . I sure would like to add

> you to the list. Also please add your Birthday.

> You do not have to give us the year. I in return

> will send you a copy of the list . There is one

> catch to this OK you may NOT give out any

> information from this list to anyone out site

> this group. We are also having our first get to

> gather this September. You are also invited

> to come and join us here in Tulsa Oklahoma.

> I will post all this information right after I send

> this post. LOL Now to some good news here.

> Don's Computer is back and running. So we are

> going to try and print out the address list. So

> please everyone let me know if you would like

> to have one. Yup, I lost my list so please let me

> know again. Mr. Ornery is doing great. Even true

> we are under a lot of stress right now. I think I

> will fix that Pina Colado today. LOL We have to

> go back .YUK !!!!! We hope it is the first week in

> July. Waiting on a court date. This time we have

> to drive down there. We have a LOT of work to do

> then. O well that's life in the big city. LOL Ok I

> better

> hush for now and catch up on this house here.

> The dust bunny's moved in here. Will holler at you

> all

> later. Sending you all a gentle Hug for now.

> Heidi

Heidi,

This is Rita in Montgomery AL. Glad to have you back.

First of all let me tell you that I was diagnosed with

RP just last week. I am on Pred 5 mg and Colchicine

o.6 mg twice a day. Feeling pretty good right now.

First good full week I have had in some time. If

these meds don't work for me he is sending me to Mayo.

Please send me a list of all members and their numbers

and e-mail addresses. I look forward to hearing from

you soon. Hope things are better for you. I have

missed talking to you.

Rita

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

Have a great day!

Rita

__________________________________________________

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Heidi , It's good to have you back , if only for a

short time . Enjoy while you can . Sherry

--- Heidi Main heidi@...> wrote:

> Hallo Everyone !!!

>

> Guess who is back ???? LOL Yup, Mrs. Nosey

> herself. Well first I would like to know how you

> all been doing??? I see we have a few new

> members here. let me tell you

> " Herzlich Willkommen " to the greatest group.

> My name is Heidi also known as Mrs. Nosey.

> So of course I would love for you all to tell me

> your name and where you are from. We have a

> address list with everyone's e mail and home

> address with Phone # . I sure would like to add

> you to the list. Also please add your Birthday.

> You do not have to give us the year. I in return

> will send you a copy of the list . There is one

> catch to this OK you may NOT give out any

> information from this list to anyone out site

> this group. We are also having our first get to

> gather this September. You are also invited

> to come and join us here in Tulsa Oklahoma.

> I will post all this information right after I send

> this post. LOL Now to some good news here.

> Don's Computer is back and running. So we are

> going to try and print out the address list. So

> please everyone let me know if you would like

> to have one. Yup, I lost my list so please let me

> know again. Mr. Ornery is doing great. Even true

> we are under a lot of stress right now. I think I

> will fix that Pina Colado today. LOL We have to

> go back .YUK !!!!! We hope it is the first week in

> July. Waiting on a court date. This time we have

> to drive down there. We have a LOT of work to do

> then. O well that's life in the big city. LOL Ok I

> better

> hush for now and catch up on this house here.

> The dust bunny's moved in here. Will holler at you

> all

> later. Sending you all a gentle Hug for now.

> Heidi

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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--- RCColloran@... wrote:

> Rita, so glad to hear that you are finally feeling

> better. Hope it lasts a

> long time. With the right meds, this darn disease

> can get under

> control...Will keep you in my thoughts and hope

> these meds work forever....

>

> hugs

>

, you know I just keep getting everyone

confused in this group. Where are you from. You have

been so good about responding to me and my questions.

I would really like to get to know you better.

Rita

>

=====

Have a great day!

Rita

__________________________________________________

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In a message dated 6/13/01 4:11:05 PM Pacific Daylight Time,

rsmit103@... writes:

<< Where are you from. >>

Rita, I live in Manteca, California.. Just a little cow town in between

Sacramento and San Francisco. I am 49, married have 3 daughters 26, 23 and

20 years old. One grandaughter who just turned 4 yrs old and a step grandson

who is 8. I have been dx with RP since 1999 but had my first real flare in

1998.

For some reason the Rp is keeping quiet right now, which is fine with me. LOL

I have tried metho for a year and then Imuran. My body just wouldn't adjust.

Right now I am only on prednisone 13mg a day. Down form 80mg. I'm keeping

my fingers crossed that I can come totally off for now.. Know I will

probably need it for a flare. I am only decreasing 1mg a month. So it is a

slow process. I just started on Biaxin, an antibiotic, and am hoping to see

some results with this.. I also have fibro and CFIDS. and a bunch of other

stuff that just gets in the way. LOL

I'm so glad you found the group and hope to get to know you better.

Hope you had a great day.

hugs

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