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I got my results back and there's good news and weird news. Diabetes

is fine...5.5 and they reevaluate if over 7%. Urine sample (kidney

pain) is also fine. As usual have high antinuclear ana. Above 1:320

is significant..mine is 1:60. Other tests showed SLE, mixed

connective tissue disease, chronic active hepatitis, the others all

point to what we already know. He wants to do a hepatitis blood

screen so I guess that's next. Does anybody know what GOT (AST) is?

Normal is 9-44 mine is 72. Today is another day...have a good

one...Sue

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In a message dated 6/12/01 6:22:26 AM Pacific Daylight Time, grandm4@...

writes:

<< Does anybody know what GOT (AST) is? >>

Sue, GOT stands for Glutamic-oxaloacetic Transaminase. It is a test

usually for liver function. Rich's came back extremly high an they did an

MRI. His liver was fine... The test was elevated because of the cholesteral

medication he was on. Medications, even tylenol can raise a liver function

test.

Glad that most of the tests came back normal and sooo glad that you have a

good dr to follow up on the other things. I'll keep you in my thoughts.

hugs

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Dear , boy you sure made my day...I needed something postive as far as

the tests. My doctor has been sort of experimenting. They called today and

wanted me in tomorrow morning for more blood work. I said " no " took the last

Levaquin today and to me that seems to be the culprit. So I'll wait till the

first of next week after that has worked itself out of my system. I agree all

the meds seem to mess up the body. Believe it or not I felt better on

Pred...scary thought. Love as usual, Sue

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In a message dated 6/12/01 2:47:46 PM Pacific Daylight Time, grandm4@...

writes:

<< said " no " took the last

Levaquin today and to me that seems to be the culprit. So I'll wait till

the

first of next week after that has worked itself out of my system. >>

Sue, I think that's a good idea.... Better to get a reading that is right

the first time..then to worry and try to treat something that wasn't wrong to

begin with. I don't think that made much sense , did it?? Hope you know

what I mean...

I know when Rich's levels came back so high we worried ourself sick...The dr.

immediately scheduled an MRI...Scared us to death... Only to find out later

it was his medication...Geez....

Be sure to let me know how things turn out.

hugs

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In a message dated 6/12/01 2:47:46 PM Pacific Daylight Time, grandm4@...

writes:

<< Believe it or not I felt better on

Pred...scary thought. Love as usual, Sue >>

Sue, I am decreasing my pred now which is a major goal of mine and there are

some days now I wonder why. LOL I hurt all over, not a flare, just hurt. I

understant that this is normal for coming off pred.

At the same time i think the pred hides other things that might be wrong with

us. So we don't know until we are off..

I think I had better go cook some dinner, I'm not making too much sense in my

posts..LOL Been a long day.

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Dear , maybe after all these years with RP and the other stuff I'm

finally wiseing up in my old age. When we do get something wrong I think we

have a tendency to over react because we don't want to flare. Maybe sometimes

we just need common sense, which can be one of my short comings. Heck I

paniced when my ANA was so high. Now I don't even think about it. So I'll go

back next week have the blood test done then and so be it. Thanks Sue

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Dear , yea taking Pred is like being between a rock and a hard place.

How much are you on now? I hurt a bit more being off of it but I can't decide

what I'm going to do about it. Doctor wants to prescribe pain meds but I'm

not sure if I want to go their either.

You make more sense than a lot of people I know....including myself....Sue

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--- RCColloran@... wrote:

> In a message dated 6/12/01 2:47:46 PM Pacific

> Daylight Time, grandm4@...

> writes:

>

> << said " no " took the last

> Levaquin today and to me that seems to be the

> culprit. So I'll wait till

> the

> first of next week after that has worked itself out

> of my system. >>

>

> Sue, I think that's a good idea.... Better to get a

> reading that is right

> the first time..then to worry and try to treat

> something that wasn't wrong to

> begin with. I don't think that made much sense ,

> did it?? Hope you know

> what I mean...

>

> I know when Rich's levels came back so high we

> worried ourself sick...The dr.

> immediately scheduled an MRI...Scared us to death...

> Only to find out later

> it was his medication...Geez....

>

> Be sure to let me know how things turn out.

>

> hugs

>

>

I've been going through the same thing with abnormal

liver function tests. At first one of them was 2 1/2

times normal. My PCP freaked! He changed my

cholesterol medicine and they are slowly coming back

down. Not normal yet, but they are much better. Next

blood test is Tuesday, so we'll see how that one goes.

Hang in there, Sharon

=====

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In a message dated 6/13/01 6:01:10 PM Pacific Daylight Time, grandm4@...

writes:

<< Dear , yea taking Pred is like being between a rock and a hard

place.

How much are you on now? I hurt a bit more being off of it but I can't

decide

what I'm going to do about it. Doctor wants to prescribe pain meds but I'm

not sure if I want to go their either.

>>

Sue, I'm down to 13mg a day and hoping to get lower. My docs keep wanting

to prescribe pain meds too and I also refuse. I do take Ultram when needed,

but I feel no ill effects from it and it takes the edge off, only problem is

it does hurt my stomach if I take too much or too many days in a row..

Don't know how much sense I make... This old brain is having a flare I think.

LOL

Hope you had a good day...I didn't. LOL Just kidding. Sorta....LOL

hugs

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In a message dated 6/13/01 10:34:52 PM Pacific Daylight Time, grandm4@...

writes:

<< When we do get something wrong I think we

have a tendency to over react because we don't want to flare. >>

Sue I think you are right. I also think that deep down we don't want to hear

that we have something else on top of RP... Who needs any more of this c---

and more meds. I just want to get well...!!! (I think I'm doing it, at

least for the moment and I am truly cherishing the moment.) LOL I'm not out

running marathons, but I'm a far cry better than a month ago..

Don't you just hate worrying and over reacting... I do it all the time and

don't know how to stop. I can seem calm on the outside but boy my insides

are a mess. LOL

Hope your next tests are much better. How high was you ANA. Mine came back

positive, 140 and speckled. Whatever that means...LOL

On my results it says " Speckled Pattern significance: Higher titers are

suggestive of Lupus, mixed Connective Tissue Disease, scleroderma, Sjogren's.

Low titers may be seen in RA, polymyositis, dermatomyositis, autoimmune

liver idsease, ulceative colitis.

This report came from University.

Let us know what your next test shows... You will be in my thoughts

hugs

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Dear , I do have Ultram but havn't taken it. Maybe I will. I'm a firm

believer in Zantac taken 1/2 hour before Pred or any meds that upset the

stomach. It sure works for me. Take care....Sue

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Dear , My ANA is 160. pretty much says the same as yours except for

the chronic active hapatitis, we're checking on that one. Also mentions

Sjogrens, Raynaud's or Sclerosis. You have a great day...Sue

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In a message dated 6/14/01 6:40:28 AM Pacific Daylight Time,

eyeoreluv@... writes:

<<

Dear , I do have Ultram but havn't taken it. Maybe I will. I'm a

firm

believer in Zantac taken 1/2 hour before Pred or any meds that upset the

stomach. It sure works for me. Take care....Sue

>>

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In a message dated 6/14/01 6:40:28 AM Pacific Daylight Time,

eyeoreluv@... writes:

<<

Dear , I do have Ultram but havn't taken it. Maybe I will. I'm a

firm

believer in Zantac taken 1/2 hour before Pred or any meds that upset the

stomach. It sure works for me. Take care....Sue

>>

Sue, I have been told by 2 of my dr. (and I don't know how true this is, I

just believed them) that Zantac, Pepcid, Axid, etc those in that class,

should be taken a min of 2 hours before any other meds. That the what ever

they do to the stomach acid, it wont let the other meds into your system

properly. I will do some more checking and see... One dr was a

gastrointerologist and the other was a PCP. If it has been working for

you...hey I'd stick with it. I know I have to wait after I take Previcid

too.

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Sue,

Ultram is what I use for pain. It works so well for me. I have taken it for

several years now but only when I need to. Usually I can't take a pain med

long. This one is pretty good. Works fast! Like I say I don't take it unless

I have to. Hope it works for you!

Lots of Love

Glenda

Re: Test Results

Dear , I do have Ultram but havn't taken it. Maybe I will. I'm a firm

believer in Zantac taken 1/2 hour before Pred or any meds that upset the

stomach. It sure works for me. Take care....Sue

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Sue,

takes it too and will tell you more about it. If I had time I would

tell you where you could go look up the info. on it. Maybe someone else can

direct you. There are some controversies about this med but I have had good

luck with it! No pain is all care about when I get to hurting!LOL

Take care and have a good day!

Lots of Love

Glenda

Re: Test Results

Thanks Glenda, I'm always so leary about meds, especially pain ones. I will

try it though. I do have the prescription so why not??? Sue

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Thank you , I will check on that...even if its two hours that's fine

as long as the stomach isn't upset the rest of the day. I used to hate taking

Pred because it messed up my system so bad but with the Zantac it didn't

bother me. I sure appreciate your input....Thank you again...Sue

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--- Glenda eyeoreluv@...> wrote:

> Sue,

> Ultram is what I use for pain. It works so well for

> me. I have taken it for several years now but only

> when I need to. Usually I can't take a pain med

> long. This one is pretty good. Works fast! Like I

> say I don't take it unless I have to. Hope it works

> for you!

> Lots of Love

> Glenda

>

I use Ultram also. The worst side effect I experience

is constipation. I use it only when I have to. It

does help with pain. Sharon

=====

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