if you could ask the specialists?

[Guest guest]

In a message dated 6/12/01 1:35:21 PM Pacific Daylight Time,

SkyfireRanch@... writes:

<< I really don't think the brain came back yet. LOL.

>>

, don't worry, they say mine is slipping off it's shelf, but I'm

convinced it's totally slipped out of my body. LOL

[Guest guest]

Hi, this is the message I was trying to send.

I really don't think the brain came back yet. LOL.

If you had the opportunity to ask the specialist's question regarding RP what

would you ask?

Please let me know.

R.

[Guest guest]

In a message dated 6/12/01 1:35:21 PM Pacific Daylight Time,

SkyfireRanch@... writes:

<<

If you had the opportunity to ask the specialist's question regarding RP

what would you ask?

>>

, I'm not ignoring your question, I'm still thinking........ something

my brain doesn't do well lately. LOl

[Guest guest]

Hi ,

Lucy here, I hope this question that I am about to ask is not really as

crazy as I feel. In reference to the Nose, when we say " saddle bridge " do

we mean that space between our eyes that is sort of like a dip? The reason

I ask is because it is described as being just that, however, the pictures

that Dr. Trent....(sp?) shows in the middle of the nose and where the nose

just sinks in across the top of the nose.

Now that I am totally confused, I will close for now and wait to hear from

you. Thank you for all of your information.

Love and Prayers, Lucy

if you could ask the specialists?

> Hi, this is the message I was trying to send.

> I really don't think the brain came back yet. LOL.

>

> If you had the opportunity to ask the specialist's question regarding RP

what would you ask?

>

>

> Please let me know.

> R.

>

>

>

[Guest guest]

In a message dated 6/13/01 12:19:29 AM Pacific Daylight Time,

L10@... writes:

<< when we say " saddle bridge " do

we mean that space between our eyes that is sort of like a dip? The reason

I ask is because it is described as being just that, however, the pictures

that Dr. Trent....(sp?) shows in the middle of the nose and where the nose

just sinks in across the top of the nose. >>

Lucy, you are not crazy, I have wondered the same thing, The bridge of my

nose has a BIG dip.... Is this saddle nose? I also saw the pictures on Dr

T's site and it was a bit confusing. The site that sent a few days

ago, www.emedicine.com, had pictures that were closer to my nose.

Does any one know which is correct, or are they both.

hugs

[Guest guest]

, I think I would ask if they have tried antibiotic therapy and if so

what results are they getting, Are there any clinical studies being done and

if so where, and if not why, what would he feel is the best way to educate

drs. (all drs. all of the specialists we need). What new controls or meds

are now available or soon to be available.

I'm sure I'll come up with some more, this is just about it for my brain

tonight.

[Guest guest]

How about this one/ Why when I try to

explain to you about a flare or my pain, do you not

believe me? Or act like I am totaly off my rocker.

dawn

--- RCColloran@... wrote:

> , I think I would ask if they have tried

> antibiotic therapy and if so

> what results are they getting, Are there any

> clinical studies being done and

> if so where, and if not why, what would he feel is

> the best way to educate

> drs. (all drs. all of the specialists we need).

> What new controls or meds

> are now available or soon to be available.

>

> I'm sure I'll come up with some more, this is just

> about it for my brain

> tonight.

>

>

>

__________________________________________________

[Guest guest]

Dear Dawn, you are not off your rocker, we are all different and we deal with

a bunch of doctors who most don't know what the hell their doing. We can only

cope whats going on with each individual. Sometimes its very over whelming.

We need to be educated to talk with doctors but it is sometimes too much. I

have several books on medical technology, talk, but most don't even list some

of the words. Don't get down and realize you are you...Love, Sue